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All TopicsForum: Second or Third Breast Cancer → Topic: Recurrence after bilat mastectomy?

Topic: Recurrence after bilat mastectomy?

Forum: Second or Third Breast Cancer — For those confronting a new primary diagnosis or undergoing treatment.

Posted on: Jan 17, 2009 04:17PM

slmdavidson wrote:

I've just had a recurrence after a bilat mastectomy 15 months ago.  Just wondering if anyone else has had this??  I thought I was done with breast cancer after removing both breasts!  I did not have rads, chemo or tamoxifen last time.  Just had my "lumpectomy" and 5 LN taken out this week, and still waiting on the pathology report.  Looks like probably radiation this time and tamoxifen but not sure yet about chemo.  Will know more at my follow up appt this week.  I guess it was good I found it early - it was right there under the skin.  Seems like I read 1% recurrence rate after mastectomy but that seems high to me since I haven't read much about it.  Anyone else have this?  Thanks, Laura

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Oct 6, 2017 09:48PM KBeee wrote:

I just replied on a different post. I recurred in 2 spots 14 months after finishing chemo. My second time it was very aggressive. It was frustrating to have to do chemo again, but I knew chemo was my best chance to be cancer free long term. I thought of chemo as my ally in my fight for more years with my kids. I tolerated it very well, and so far, so good. I still see MO every 3 months. I just saw him today. I do have to admit that the second time was more challenging mentally for me. The fear has lingered longer this time, but it is not always on my mind. How are you ferling

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Oct 14, 2017 09:26PM NTK2 wrote:

Hi Laura, Sorry to hear about your recurrence. I had a double mastectomy a little over a year ago, and like you no rads, chemo or meds. My doc said it was a low I think only a 2% chance of recurrence after removing all the breasts in DCIS. Negative sentinel nodes. It still concerns me though when I see what others are going through, even though I don't know all the details of the others, or type, stage, etc. I look to this forum for other information and situations, it is really a help. It still concerns me about recurrence and how would I know since there is no mamos. How did you detect your recurrence. Hope things are going well for you.

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