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Topic: Recurrence after bilat mastectomy?

Forum: Second or Third Breast Cancer — For those confronting a new primary diagnosis or undergoing treatment.

Posted on: Jan 17, 2009 05:17PM

slmdavidson wrote:

I've just had a recurrence after a bilat mastectomy 15 months ago.  Just wondering if anyone else has had this??  I thought I was done with breast cancer after removing both breasts!  I did not have rads, chemo or tamoxifen last time.  Just had my "lumpectomy" and 5 LN taken out this week, and still waiting on the pathology report.  Looks like probably radiation this time and tamoxifen but not sure yet about chemo.  Will know more at my follow up appt this week.  I guess it was good I found it early - it was right there under the skin.  Seems like I read 1% recurrence rate after mastectomy but that seems high to me since I haven't read much about it.  Anyone else have this?  Thanks, Laura

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Aug 17, 2019 04:14PM Debflo wrote:

had two reoccurrences after bilateral mastectomy , it has been since 2014.

Surgery Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Aug 17, 2019 04:19PM - edited Aug 17, 2019 04:19PM by Debflo

Was diagnosed with TNBC in 2012, had 3 reoccurrences after this time, but have not had any issues since 2014. I am concerned now because I am having pain along the scar area, burning sensation. Has anyone ever had this

Surgery Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Aug 17, 2019 09:01PM - edited Aug 17, 2019 09:02PM by MinusTwo

Deb - did you have radiation? If so, those scars often pull or hurt. But I would go ahead and make an appointment to see your MO if you don't have a yearly appointment coming up. OR maybe you could start with your GYN if that's an easier doc to see.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Aug 24, 2019 10:04AM Bethh23 wrote:

Hi, Aug 2018 had DMX and TRAM recon followed by chemo for reoccurentce after 15 yrs from initial early BC (lumpectomy , radiation, Tamoxifen). This week had bb feeling hardness near skin surface mammo/ultrasound/MRI and Mon getting it biopsied. I'm hoping it's necrosis. Keep us updated on your pathology and I'll do the same. Oh I learned last summer I'm BRCA2 positive and hence DMX instead of unilateral.

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Aug 24, 2019 10:27AM KBeee wrote:

Hoping the biopsy comes back benign!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Sep 20, 2019 07:30PM mel147 wrote:

Hi, All - Wow...it's been a long times since I've posted anything on this site!

My situation now is that I have a tiny lump (about the size of a grain of rice) at the end of my mastectomy scar on the side where I had cancer. I did not have reconstruction, so I'm flat. The breast surgeon said to get an ultrasound of my chest and that they could biopsy it at that time if they see anything and feel like they need to. When I called the scheduling place, they said the regular ultrasound department wanted me to go to a breast imaging place since I had breast cancer. That makes sense to me, but what is confusing to me is that when they scheduled it, they scheduled a diagnostic mammo first and then the ultrasound, even though I have no breasts. And it says you can't have an ultrasound without a mammogram. They're also asking for past mammo's, but I haven't had one in 5 years and nothing showed up on them anyway - it only showed on the MRI. My friend suggested I go in and talk to them about it at the office instead of calling and going through scheduling so I think I will do that, but I'm curious to know if anyone else has run into this issue and how easily was it resolved. It took 45 minutes on the phone just sorting out where they wanted me to go, then another probably 15 with my husband when they called back to the house to actually set the appointment and then I was shocked to see the notifications in my chart that it was scheduled for the mammo, too, even though I repeatedly explained I have no breasts. I'm kind of 50/50 on what I think it is. Part of me is doom and gloom, and part of me is this is no problem. Thanks!

Dx 6/12/2014, DCIS, 6cm+ Surgery 7/15/2014 Lymph node removal: Left, Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Dx 7/16/2014, IDC, <1cm, 0/6 nodes, ER+/PR+, HER2-
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Sep 20, 2019 07:43PM mammalou wrote:

I had something show up in the posterior area of my breast 12 cm above my nipple on MRI. Does this seem like a possible place where you could get a recurrence after mastectomy? It’s pretty high and seems it must be close to my ribs. I had a deip flap 4 years ago

DX 12/2018 ADH right breast Dx 1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH) Surgery 1/11/2011 Lumpectomy: Left Chemotherapy 3/2/2011 AC Surgery 5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/13/2012 Reconstruction (left): Silicone implant Surgery 6/26/2013 Reconstruction (left): DIEP flap
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Sep 20, 2019 08:39PM MinusTwo wrote:

mel - Different departments tried to make me have a mammo several times - in spite of the fact that I had a bilateral mastectomy and had no breasts. My MO always stood behind me and ordered that I go directly to ULS. Good luck.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 20, 2019 09:37PM - edited Sep 20, 2019 09:37PM by mel147

Thanks! I hate the extra stress stuff like this adds, but hopefully I will get straight to ultrasound and it will end up ok!

Dx 6/12/2014, DCIS, 6cm+ Surgery 7/15/2014 Lymph node removal: Left, Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Dx 7/16/2014, IDC, <1cm, 0/6 nodes, ER+/PR+, HER2-
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12 hours ago Kopack32 wrote:

Hi All,

Question to all: I had a bi Mastectomy with aggressive Chemo, I went with the nipple sparing and it failed on the cancer side breast. I than had the latisimss Doris flap on the cancer side( left) and the expander in right. The Lat side failed again. I went home to rest and think on options and darn, I got Sepsis, and hospitalized for the 3rd time and put in ICU for 8 days, home with IV for approx month. All this within a year, ugh! Since I was cleared from infection, I started Arimdex . It was not good for me, her sister drug failed as well. I am currently on day 8 of Tomoxifen and have vomited all 8 nights, several times a night oh, I should mention that I take Zofran before the tomoxifen.. now my question - I have no left breast, but a expander in the right breast. I’ve had the expander in for 6-7 months now. I just recently noticed to lumps in the reconstruction scar and pain in the armpit and near the scar of where my port was. I had my sister feel the areas and she said she feels the lumps, I to feel them. I was wondering if anyone went through a similar situation and could it just be scar tissue. Btw the 2 lumps under the breast in the scar were never there, they don’t feel hard but very white and protruding. The 2 near my armpit, and port scar are hard and sore. I’m driving myself crazy, any one else experience this? Reply’s would be very appreciated.




Dx 10/18/2017, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/5 nodes, ER+/PR+, HER2- Dx 11/11/2017, DCIS/IDC, Left, Stage IIB, Grade 3, ER+/PR+, HER2- Hormonal Therapy 4/13/2018 Arimidex (anastrozole)
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10 hours ago - edited 10 hours ago by buttonsmachine

Kopack, I am sorry you are going through this! The only way to know for sure is to biopsy the lumps - you should talk with your surgeon and/or oncologist to arrange that.

Often the lumps after a mastectomy are scar tissue or fat necrosis. Unfortunately sometimes it can also be cancer, so I tend to encourage people to advocate for a biopsy.

In my case my original Drs said the lumps were fat necrosis, but the lumps were actually multiple local recurrences of my original cancer. The cancer did a lot of damage while we "watched it." I trusted their judgement at the time, but now I wish they had taken things more seriously given my cancer's aggressive features. But that was just my experience - I hope yours is better, but it's definitely good to get the lumps checked out.

Initial diagnosis at 32 years old. Chest wall resection 18 months later due to skin metastasis, probably from needle seeding during initial biopsy. Skin graft from right thigh! Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 9/30/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/31/2017 Whole-breast Hormonal Therapy 4/30/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 9/2017, IDC, Right, Grade 3, 2/5 nodes, ER+/PR+, HER2- Surgery 10/31/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 12/27/2017 AC Dx 1/2018, IDC, Right, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 4/30/2018 Lymph node removal: Right; Mastectomy Radiation Therapy 5/10/2018 External: Lymph nodes, Chest wall Hormonal Therapy 7/1/2018 Zoladex (goserelin) Chemotherapy 7/1/2018 Xeloda (capecitabine) Hormonal Therapy 1/15/2019 Aromasin (exemestane)
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2 hours ago helenlouise wrote:

I too had a couple of small nodules come up around my mastectomy scar cancer side. Oncologist referred me directly to surgeon who ordered core needle biopsies. Surgeon and radiologists said most likely scar or fat necrosis. But they never know until they test. The nodules biopsies as tnbc recurrence. Skin Mets. Make sure to get your drs opinion ASAP.

Good luck and best wishes.

2013 DCIS treatment lumpectomy x2 plus radiation. 2018 new IDC treatment Neo adjuvant chemotherapy. Surgery July 18. Radiation August through to October 2018. Xeloda till April 2019. Skin mets April 2019. Dx 1/2013, DCIS, Left, <1cm, Stage 0, Grade 3, ER+/PR+ Surgery 2/3/2013 Lumpectomy: Left Surgery 2/10/2013 Lumpectomy: Left Radiation Therapy 2/28/2013 Whole-breast: Breast Dx 2/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/8 nodes, ER-/PR-, HER2- Chemotherapy 2/25/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/23/2018 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 8/28/2018 Chemotherapy 8/29/2018 Xeloda (capecitabine) Dx 4/2/2019, IDC, Left, 2cm, Stage IIIC, Grade 3, 1/8 nodes, ER-/PR-, HER2- Dx 4/16/2019, IDC, Left, 2cm, Stage IV, metastasized to other, Grade 3, 1/8 nodes, ER-/PR-, HER2- (DUAL)

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