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Apr 5, 2020 10:24AM
I was diagnosed with DCIS/IDC in my left breast in 2016 at age 51. I qualified for genetic testing because my Mom was diagnosed with breast cancer in her early 40's. My insurance coverage was 100% as well. I had wanted to get this done anyway before I was diagnosed because I am considered high risk because of my Mom's history and because I have two daughters (ages 26 and 29).
It turns out that I am BRCA 1 & 2 negative and addditionally the genetic counselor informed me that I was not predisposed to any other type of cancer! (Yet I still ended up with BC right) She concluded that my getting BC was a fluke! However, I think that I took birth control pills for too long - 30 yrs, so I have a feeling that may have been a cause of mine. (Could be other environmental causes but I will never know)
My getting this genetic testing done only tells half of the story for my girls as the genetic counselor told me that Dad can also pass this gene to offspring. She did tell me that my girls could get tested for only BRCA gene for about $200 and not the $5k that my full panel of testing cost my insurance.
I have offered to pay for this for my girls but at this point in time neither is interested. Maybe because mine was caught very early and because I underwent a lumpectomy, radiation and now taking Tamoxifen, they didn't witness me having to endure more extensive treatment had it been detected at a more advanced stage, the magnitude of this has not registered for them.
Colon cancer worries me just as much if not more for them as several relatives on my husband's side of the family have fought that beast.
So, to answer your concerns about genetic testing,
1. My girls were not pushed into a course of action, they were indifferent to the results, even though I am BRCA negative at this point in time.
2. They have not mentioned feeling more secure that since I don't have BRCA 1 or 2 that they will not get BC
I have told both of them that there is no rhyme or reason to who gets BC, one can have many risk factors yet never get it or have no factors but get diagnosed. I hope and pray that neither get diagnosed with BC, but if they do I know how to help them, if I am still around.
10/17/2016, DCIS/IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+, HER2-
10/28/2016 Lumpectomy: Left
12/14/2016 Whole-breast: Breast
Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)