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May 8, 2018 02:37PM
I'm on my third bc diagnosis. First primary in 2007 at age 38, local recurrence in 2015, new primary in 2018. Both parents died of cancer (mom had bc), and my dad was an Ashkenazi Jew who died of pancreatic cancer. I look like a poster child for BRCA+, except that I'm not.
I had genetic testing run the first two diagnosis (BRCA both times, BreastNext 17 gene panel the second time), and nothing showed up. I called my genetic counselor after this latest diagnosis, and she said there was nothing new to run. Like NancyHB, I've always been told there is probably something genetically wrong that they just don't have a test for yet.
My parents and I started growing tumors within a few years of each other, so I do wonder if there was something going on environmentally in my childhood home. I grew up in NM, where there had been atomic testing. Not specifically where I lived or at a time when I was alive, but the test site was a few hours away, and who knows about lingering radiation. Maybe because of that, something happened to my immediate family's genes to tweak a cancer suppressor gene or something, as opposed to a mutation that was passed down to me.
Who knows, but I do ponder why on earth I've had bc three times before I've even turned 50, when I've spent a lot of time eating organic brussel sprouts, using green cleaning products and makeup, and exercising like mad.
Stage IV Pleomorphic ILC, initially diagnosed at age 38
6/7/2007, ILC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH)
7/19/2007 Lumpectomy: Left; Lymph node removal: Sentinel
12/27/2007 Whole-breast: Breast, Chest wall
3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
4/24/2015, ILC, Left, 1cm, Stage IA, Grade 2, 0/10 nodes, ER+/PR+
5/15/2015 Mastectomy; Reconstruction (left): Latissimus dorsi flap
2/1/2018, ILC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+
2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel)
6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain, Grade 3, ER+/PR+