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Aug 8, 2018 03:52PM
Aug 8, 2018 03:55PM
Piksie, Do not hesitate to get a second opinion. The first MO who told me no, and refused Oncotype, is at probably the most well known, well respected Medical Center in the upper midwest. They are very conservative about chemo though. I wanted more opinions, because no matter how prestigious the institution, at the end of the day, they are human, and they do not have all of the answers. I could not wrap my head around why they would not use a readily available tool to asses the need for chemo, and were just assuming this was just an isolated unaggressive local recurrence. I was SO glad that I sought another opinion with a doc who's gut, like mine, felt that this was not behaving, and was likely more aggressive. He suspected the Oncotype would be high, but we were both shocked at how high is came back! Once presented with that information, the first Medical Center agreed that chemo was necessary. Never under estimate the value of a second opinion. Hopefully they'll do the Oncotype and determine it to be low risk, but any doctor should be supportive of you seeking a second opinion. You do not want to expose your body to chemo unnecessarily, because it has its own risks, but you also do not want to skip it if warranted. My local doc and I had the same opinion of mine (and as I said...I had a strong gut feeling mine was aggressive) ....... this is a cancer that statistically, should not have come back. It did not behave. It also did not behave in that it came back while on Tamoxifen, so it's possible it is resistant to some anti-hormonals. I did not want to put all of my "eggs in one basket" relying just on an AI. Chemo was my insurance plan. There is still no guarantee, but I know it's been treated appropriately giving me the best chance of avoiding metastasis. I will never ask "what if".
If your oncotype comes back low, you'll know with great confidence that skipping chemo was the most appropriate option. You'll never have the nagging "what-if".....
8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
8/26/2013 Mastectomy: Left, Right
9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/23/2014 Reconstruction (left); Reconstruction (right)
1/29/2015 Lumpectomy: Right
2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH)
2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC)
2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal
3/31/2015 AC + T (Taxol)
8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall