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Topic: Just diagnosed with Metastatic breast ca to my lung

Forum: Second or Third Breast Cancer — For those confronting a new primary diagnosis or undergoing treatment.

Posted on: Aug 2, 2019 11:22AM

PaulaDurao57 wrote:

In 2004 on a regular mammogram calcifications were noted in my right breast. I was diagnosed with invasive lobular breast cancer. I had 2 lumpectomies, tested the sentinel node and rec'd radiation therapy. Was then put on Tamoxifen, but had to stop after 2 years because it was messing with my liver. Then in 2009 I had a lump removed from my right armpit. It was a very aggressive and rare type of tumor in my breast accessory tissue. I was told I would need a double mastectomy to be safe! I had immediate reconstruction. I had to undergo chemo again and radiation therapy again. I was then put on Femara for 6 years. In November 2015 I began to have lymphadema in my right arm and a lot of pain...I had testing done and was told the breast cancer had metastasized to my right brachial plexus.I was told it was treatable but not curable!! I could not undergo any more radiation, no surgeon wanted to touch it because of it's location! My only option was chemo for life! During the last 4 years I have been on 9 different chemos, I have severe nerve damage in my right arm and have lost function of my right hand, I have neuropathy in my feet and fingers from chemo...then in July 2019 I started having SOB so oncologist ordered CXR stat and it confirmed that my lung on LEFT SIDE was surrounded by fluid which they had to perform thoracentesis immediately! This was an extremely painful procedure but necessary! They sucked out 1 liter and 1/2!!! A week later the SOB returned so I had to have my lung drained again.They sent off the fluid to be biopsied and it was positive for metastasized from my main source breast cancer to my outer lung, almost like a spider web covering it! I also had a Pleural Drain put in and that gets drained every other day for now and I have been put on another new chemo for me called Ixempra. It has only a 6 month period where it works and then plateaus. I have never heard of this kind of cancer! Does anyone out there have this type or knows of someone who does? I'm scared they are running out of options fo me...I STILL HAVE A LOT OF LIVING TO DO!!!

Paula Durao
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Aug 3, 2019 07:04AM sbelizabeth wrote:

PaulaDurao57, I have no words of wisdom for you, but I'm sending gentle hugs over the internet. I'm sorry you're enduring this.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Aug 3, 2019 11:32AM candy-678 wrote:

I don't have lung mets. But here is the link to a Thread on lung mets that is currently active. Hope this helps.

https://community.breastcancer.org/forum/8/topics/...

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo, then switched to hormone therapy/targeted therapy. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Aug 3, 2019 04:32PM romashka wrote:

Wishing you calm strength.

PALB2 Dx 8/22/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 10/10/2017 Mastectomy: Left, Right
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Aug 3, 2019 04:33PM - edited Aug 3, 2019 04:33PM by romashka

This Post was deleted by romashka.
PALB2 Dx 8/22/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 10/10/2017 Mastectomy: Left, Right
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Aug 6, 2019 11:35AM ramona131313 wrote:

Hi Paula,

You don't say if the cancer is ER+/PR+ or HER+ or triple negative. Depending on the type, you might want to check out this link to a new immunotherapy drug being tested: community.breastcancer.org/for... I can't imagine all you've been through. I have just received my second diagnosis of BC after seven years. The first time I had a MX on the right side, now it looks like it will be the same thing on the left. I am having issues with SOB but no fluid or anything they can put their finger on yet. However, I am having a cardiac work-up because I feel it might be pulmonary hypertension that is in the early stages and I want to find out before I go under for a long surgery. Hugs-

Dx 7/2012, IDC, Right, 2cm, Stage IIB, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/25/2019, DCIS/ILC/IDC, Left, Grade 2, ER+/PR+, HER2- (IHC)
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Aug 7, 2019 02:26PM KBeee wrote:

I am so sorry that you are deaing with this. Hoping the chemo works for much longer than they estimate, and that some better treatments are on teh horizon.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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