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Topic: New diagnosis & upcoming surgical appt

Forum: Second or Third Breast Cancer — For those confronting a new primary diagnosis or undergoing treatment.

Posted on: Nov 12, 2020 10:45PM

marjie wrote:

So (tosses in my 10 yr chip), my second kick at the can is high grade DCIS in my other breast. I have an appt with the surgeon in a few weeks and this time around, I really think I'd rather just go for mastectomy. First time, whether I had mastectomy or lumpectomy made no difference to the outcome or treatment, so it was suggested I go for lumpectomy... lesser surgery in preparation for the treatment ahead.

This time.... I'm seriously tired of the mammograms and MRIs; tired of the stress once or twice a year; and honestly, having two biopsies in a week just did me in. Don't even get me started on my husband and kids... getting that deer-in-the-headlights look again. The 'girls' gotta go but I'm worried I'll be told I'm over reacting.

Don't get me wrong! I know it's early and DCIS but still.... Just looking for other stories and/or opinions....

Treatment: Rt Lump/SNB Aug 2010, FECx3/Tx3, radsx25+8, Herceptin x18 Dx 7/13/2010, IDC, 4cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2+
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Nov 13, 2020 12:32AM Peregrinelady wrote:

I am not in a similar situation, but I would think with your previous diagnosis that there would be no problem getting a mastectomy this time. Best wishes.
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Surgery 5/18/2015 Mastectomy: Left Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/19/2016 Mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 8/1/2016 Arimidex (anastrozole) Hormonal Therapy 7/20/2020 Femara (letrozole)
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Nov 13, 2020 09:36PM MinusTwo wrote:

I was diagnosed with DCIS in 2011 and opted immediately for a BMX. No problems with the doc or the system.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 14, 2020 09:01AM LivinLife wrote:

I have not had a recurrence - just had surgery for my first diagnosis. Initially I was diagnosed with DCIS Grade 3 with comedo necrosis. The surgeon expected invasion though none was present upon final pathology. The initial 5 cm area also only ended up with a smaller area of DCIS than thought with other benign and pre-cancerous conditions. Grade 3 with expansive comedo necrosis held.

That being said I was not a candidate for lumpectomy b/c I could not have radiation due to scleroderma. I had larger breasts, am 58 so gravity was unkind, etc. so I opted for a BMX right off the bat b/c I already was told I had to have a UMX (though already had my mind made up about BMX). I realize the recurrence rate is not different though also knew I could not continue going through all the diagnostics over time (already had many call backs and two stereotactic biopsies on my other breast the last several years), as well as additional surgeries that many seem to have to undergo b/c of margins, recurrence, etc. Long and short is I have not had any regrets!!! I wish you well in your decision!!!

Dx 7/2020, DCIS, Left, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Nov 14, 2020 09:26AM SuQu31 wrote:


I had high grade DCIS (comedo necrosis) and was ER-/PR-. Mastectomy was recommended by two surgeons. The hormone receptor negative and high grade/comedo necrosis seemed to be the reason for the recommendation, because there would not be as many options if it recurred. I chose double mastectomy and do not regret that decision at all.

Re-excision for close anterior margin 10 days after BMX. Dx 10/31/2018, DCIS, Left, Stage 0, Grade 3, ER-/PR- Surgery 12/9/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Dx 12/10/2018, DCIS, Left, 2cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 12/19/2018 Surgery 9/13/2019 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Nov 14, 2020 03:55PM suzopedia wrote:

It got me again after 15 years. Dx was DCIS. Previous was IDC. This time I had 2 lumpectomies and the second one showed microinvasion and lots of ADH and I decided I had enough. Even tho surgeon was not recommending more surgery, no one balked. I was done and they all said ok.

Dx 1/5/2005, IDC, Left, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+, HER2- Surgery 2/25/2005 Lumpectomy Chemotherapy 3/1/2005 TAC Radiation Therapy 6/1/2005 Whole-breast: Breast Hormonal Therapy 7/31/2005 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/23/2020 Lumpectomy: Right Dx 7/27/2020, DCIS, Right, 3cm, Stage 0, Grade 2, ER+/PR+ Surgery 9/21/2020 Lumpectomy: Right Dx 9/27/2020, IDC, Right, <1cm, Stage IA, Grade 2, ER+/PR+
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Nov 18, 2020 07:28PM - edited Nov 18, 2020 07:36PM by Tmh0921

I was Dx with IDC stage I in 1999 (at 27), had a lumpectomy, radiation, and Tamoxifen

Between then and 2016, never had a normal mammogram, and had biopsies almost yearly

In 2016, I was Dx with ADH

In 2018, I was Dx with ALH and DCIS

In 2019, I was Dx with stage 2A IDC and opted for a bilateral mastectomy

After 20 years of abnormal mammograms and biopsies and anxiety, I was done. If I had known in 1999 what a long stressful road it would be I would have opted for bilateral mastectomy then


*Edited to add, after my 2018 DCIS diagnosis I had spoken to my surgeon and insurance company about mastectomy and reconstruction and both were ok with it. Unfortunately, I went with one more lumpectomy 😞. If I'd followed my instincts maybe I could have avoided a stage 2A Dx less than a year later.

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/15 nodes, ER+/PR+ Surgery 12/22/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/30/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/1/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/4/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/2/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Hormonal Therapy 3/24/2020 Femara (letrozole), Zoladex (goserelin) Surgery 7/15/2020 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 24, 2020 11:03PM marjie wrote:

Thanks everyone! I finally have my surgical consult tomorrow. I want BMX and will be open to suggestions on reconstruction, but I'm standing my ground to have these effing things gone!

Treatment: Rt Lump/SNB Aug 2010, FECx3/Tx3, radsx25+8, Herceptin x18 Dx 7/13/2010, IDC, 4cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2+

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