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Topic: 2nd dx 15 years later

Forum: Second or Third Breast Cancer — For those confronting a new primary diagnosis or undergoing treatment.

Posted on: Jan 1, 2021 10:00PM

c00l wrote:

2005 +++ 1.5 cm R Mast Lat Flap AC+TH tamoxifen

2020 ++- 1.8 cm L Mast implant only Hormone Blocker

Hi. I’m returning here after almost 15 years because this group was so helpful for me the first time around. I’m not sure what to say besides here I am again. This time I have a loving husband by my side. It helps so much to have bc sisters to talk to. Just had Surg for a perm implant on R and revisions on L. Sitting at home taking it easy...and taking it all in. Thanks for letting me introduce myself...again

2005 Invasive DCIS, Right Stage 0, Grade 3, +++ Mast with lat flap, AC/TH 2020 1.8cm tumor, Left Grade 2, ER+PR+Her2- Dec28 Mast with implant only
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Jan 2, 2021 03:56AM annadou wrote:

Hi there

I’m back too after 11 y 9 m. Shell shocked , numb upset stressed it’s all hit me Get my treatment plan on Wednesday and I’m pretty sure it will involve chemo etc all over again. Mine is in the right lung

Stay strong keep posting. As for you this board helped me the first time round

Here’s to 2021 hope it brings good news for everyone

Ann

Anna Dx 3/13/2009, IDC, Left, <1cm, Stage IIB, Grade 2, 4/21 nodes, ER+/PR+, HER2- (SPOT) Dx 12/7/2020, IDC, Right, Stage IV, metastasized to other, ER+/PR+, HER2-
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Jan 2, 2021 07:11AM LivinLife wrote:

c001 and annadou - Welcome to you both and again unfortunately. Recurrence, or new recurrence, is certainly something I believe we all are concerned about, at least at times.... Here the two of you are... and so many years later... it still blows my mind and yet stories like yours are not uncommon on this site unfortunately. I'm glad you logged back in for all the info and support this site can offer! Sounds like you both had positive experiences the first time. This is a great site!

c001 I hope your recovery continues going well... sounds like it has been all right thus far?

annadou Seems you will have a busy treatment schedule. Glad you're finding out about that soon - as you know the waiting can be so difficult. You may want to start your own thread (or begin adding to you old one) if you haven't already. I just logged in so am not sure what else is on the site since yesterday at some point....

I wish both of you well and please keep us updated on how each of you are doing!


with expansive comedo necrosis & weak ER/PR Dx 7/2020, DCIS, Left, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/30/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Jan 2, 2021 12:15PM Moderators wrote:

Hi ladies! We're so sorry you are going through this again, but glad you decided to come back to the Community.

Good luck with tests and treatment and please, keep us updated on how you're getting on.

Best wishes,

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jan 2, 2021 12:52PM moth wrote:

sorry you find yourselves here again.

I think at some level I thought ok, I paid my dues, I'm done with being sick .. but of course it doesn't work like that.

Ann, there's a lung mets thread if you're interested; I'm there :) . https://community.breastcancer.org/forum/8/topics/...


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Jan 3, 2021 11:10PM c00l wrote:

Hello annadou. Greetings from Texas.

I can relate to your shock. I felt a lump one day. I had to be very assertive with my doctor just to have her send me for a mammogram. The morning of the mammo, the technician had me stay there afterward while he called my doctor for an immediate referral for a biopsy. I was not prepared, though I guess we never are for something like this.

I am healing well from surgery, and trying to get back into my routine. My next doctor’s appointment is on the 5th for a surgery follow-up.

Please continue to post! I would appreciate knowing how your treatment plan shapes up.

Hugs!

2005 Invasive DCIS, Right Stage 0, Grade 3, +++ Mast with lat flap, AC/TH 2020 1.8cm tumor, Left Grade 2, ER+PR+Her2- Dec28 Mast with implant only
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Jan 9, 2021 09:06AM annadou wrote:

Hi all

Hope you are doing well and thanks for your message

Super sunshine here in Athens I think winter has forgotten us this year

Treatment plan is Ibrance and Falsodex to start fairly soon do I’m psyching myself up fior that. I tolerated the treatment the first time round so here’s hoping 🤞🏽

Take care all

Hugs

Anna

Anna Dx 3/13/2009, IDC, Left, <1cm, Stage IIB, Grade 2, 4/21 nodes, ER+/PR+, HER2- (SPOT) Dx 12/7/2020, IDC, Right, Stage IV, metastasized to other, ER+/PR+, HER2-
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Jan 14, 2021 02:43PM annadou wrote:

Hey cOOl

Just checking in to see how you are after surgery and your check up on the 5 th

Have been very busy with all these tests etc damm full time job this cancer is. Start treatment tomorrow with the injections and the pills on Monday

Hope all is well with you

Anna

Anna Dx 3/13/2009, IDC, Left, <1cm, Stage IIB, Grade 2, 4/21 nodes, ER+/PR+, HER2- (SPOT) Dx 12/7/2020, IDC, Right, Stage IV, metastasized to other, ER+/PR+, HER2-
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Jan 21, 2021 07:10PM KBeee wrote:

Sorry you both find yourself back here. Hoping treatment plans are in place soon and that treatments are well tolerated.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Apr 11, 2021 11:57AM - edited Apr 11, 2021 11:58AM by edwards750

This really sucks for you guys. That's a long time to be cancer-free and then have that insidious disease rear it's ugly head again. I guess that's why we never feel we have totally whipped the beast.

I was DX in 2011 with IDC, Stage 1b, Grade 1. I had a lumpectomy and 33 rounds of radiation. I took Tamoxifen for 5 years. My Oncotype score was 11. 8% chance of recurrence. Looks like the odds are in my favor but I still panic right before my mammogram. I'm pretty sure I will always have that fear factor.

Still what a shock for you ladies. Thing is though you made it through the first one and you'll make it through this tone around too. Best of luck.

Keep the faith.

Diane

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