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Topic: 7.5 Years Out

Forum: Second or Third Breast Cancer — For those confronting a new primary diagnosis or undergoing treatment.

Posted on: Sep 20, 2021 01:09PM

NicInTexas wrote:

Hi all,

Been off the boards for a long time. All smooth sailing up until 2 weeks ago: found a lump near my lumpectomy scar. Got in quickly for an ultrasound and then a biopsy. Confirmed as IDC with lobular features. Do I treat this (in my mind) as if it's ILC? They are calling it a new primary.

Waiting for all of the scary tests and their results right now, but I'll be getting a bilateral mastectomy at a minimum. Sigh.

Sad to be back.

Dx 11/22/2013, IDC, Right, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/15/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Hormonal Therapy 1/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/23/2014 Whole-breast: Breast Dx 9/16/2021, IDC, Right, 1cm, Grade 1, ER+/PR+, HER2- (IHC)
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Sep 20, 2021 01:28PM MountainMia wrote:

Oh, Nic, I'm so sorry! Looks like it is smallish and grade 1, which is definitely in your favor. Even so, I can't imagine how disheartening this might be for you. :(

Let us know when you find out more.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Sep 20, 2021 01:48PM AMG2 wrote:

Hi Nic, that is terrible news, and I'm so sorry. Only your oncologist can tell you how to treat it (lobular vs ductal), but mine was IDC with lobular features and is being treated as ductal, not lobular. It seems there was some part of the pathology report from the biopsy that made that distinction.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/2/2021 Lumpectomy: Right Targeted Therapy 8/31/2021 Herceptin (trastuzumab) Chemotherapy 8/31/2021 Taxol (paclitaxel) Hormonal Therapy Radiation Therapy Breast
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Sep 20, 2021 02:01PM AMG2 wrote:

Looking back, I'm pretty sure it was the E-cadherin expression that distinguished ductal from lobular; mine was "retained/positive": https://www.ncbi.nlm.nih.gov/pmc/articles/PMC36810...

Again, though, talk with your oncologist for confirmation.

Dx 6/17/2021, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 8/2/2021 Lumpectomy: Right Targeted Therapy 8/31/2021 Herceptin (trastuzumab) Chemotherapy 8/31/2021 Taxol (paclitaxel) Hormonal Therapy Radiation Therapy Breast
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Sep 20, 2021 04:17PM NicInTexas wrote:

Thanks for the replies! Yes, that E-cadherin expression value was what they cited on my pathology report to call it IDC. It was absent (or not visible most likely) on my March mammo.

Bone scan and CT next week. Meeting with one surgeon this week. Still can't believe I'm going down this road again, but I'll keep my chin up. :)

Dx 11/22/2013, IDC, Right, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/15/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Hormonal Therapy 1/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/23/2014 Whole-breast: Breast Dx 9/16/2021, IDC, Right, 1cm, Grade 1, ER+/PR+, HER2- (IHC)
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Sep 20, 2021 04:27PM NicInTexas wrote:

Just for clarity, I meant the lump was not visible on my March mammo.

Dx 11/22/2013, IDC, Right, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/15/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Hormonal Therapy 1/31/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/23/2014 Whole-breast: Breast Dx 9/16/2021, IDC, Right, 1cm, Grade 1, ER+/PR+, HER2- (IHC)

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