Sep 22, 2021 10:36AM
Hi everyone, long time listener, first time caller. I was diagnosed in 2018 with ER+/PR+ IDC. Went through lumpectomy and radiation, then started on Tamoxifen + Lupron injections. After a year, I was switched to AI + Lupron and have been on that "gold standard" regimen for two years. Imagine my shock when I developed a tumor in the opposite breast (thankfully small and DCIS) that is strongly ER+.
Freaking out a little as to how this is happening just 3 years later and wondering what the future holds (I'm 41). Does anyone have access to data on how common a second ER+ tumor is while on hormonal treatment? My estrogen levels had been checked just a few months prior to diagnosis and confirmed to be in the post-menopausal range. I realize nothing is bulletproof but this has me really scared.
Has anyone else been through this? How do you deal with the anxiety that this is going to happen over and over again despite being on the "gold standard" for treatment?
6/2018, IDC, Left, 3cm, Stage IIA, Grade 1, ER+/PR+, HER2-
9/2021, DCIS, Right, Stage 0, ER+, HER2-
Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary
Whole breast: Breast, Lymph nodes
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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