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Topic: Drinking cold things feels weird after mastectomy

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Jul 11, 2009 06:28AM

momgovero wrote:

Every time I take a drink of ice cold water (or anything ice cold), it feels as though someone is pouring ice cold water down my chest on the outside!  It takes my breath away!  Is this normal? 

When God brings you to it, God will bring you through it! Dx 12/9/2008, IDC, 6cm+, Grade 2, ER-/PR-, HER2+
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Jul 11, 2009 06:32AM wallycat wrote:

I think this will go away---not sure how long out you are.

I did have the intial cold feeling but either I've gotten used to it, or it has stopped.  I'll have to pay attention next time!

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Jul 11, 2009 06:01PM lovinmomma wrote:

I get that too!  i am 6 weeks out!! Isn't it a wierd feeling????

Kimberly 45 yo fighter Dx 10/1/2008, ILC, 6cm+, Stage IV, Grade 3, 26/26 nodes, mets, ER+/PR+, HER2- Chemotherapy 10/02/2008 Adriamycin (chemical name: doxorubicin), Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel) Surgery 05/07/2009 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side ; Prophylactic (also called preventive) removal of the ovaries Hormonal Therapy 05/12/2009 Femara (chemical name: letrozole, class: aromatase inhibitor) Surgery 07/10/2011 Reconstruction of my left breast; Reconstruction of my right breast Chemotherapy 09/24/2012 Abraxane (chemical name: albumin-bound or nab-paclitaxel) Chemotherapy 01/28/2013 Halaven (chemical name: eribulin) Chemotherapy Xeloda (chemical name: capecitabine)
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Jul 12, 2009 08:28AM kmmd wrote:

Took about 6 months for that to get better for me.  For anyone dealing with TE's--the opposite was true for me too.  Drinking something warm/hot helped with the pec muscle spasms

www.youtube.com/watch?v=vrpJD2... Keep breathing is my new motto. Kate
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Jul 12, 2009 09:03AM reen wrote:

I didn't have a mastectomy, but had many lymph nodes removed and when I drink anything cold it feels like it's all going to that area.  Weird.

First Dx. 11/2005 Mucinous Carcinoma Stage 1 Grade1 0/15 nodes Rads 2nd Dx 6/5/08, IDC, Stage 1, Grade 2, 2/44 nodes ER+ PR+ HER2-
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Jul 12, 2009 09:29AM , edited Jul 12, 2009 09:29AM by jacee

Ha...can't believe I just found this thread. I've was thinking about asking that question last night. I'm 4 weeks out from rt mast and it's very noticeable when I drink anything cold. I thought, "Is this what men feel all the time?" My dh says no. I hope it passes. I don't notice when I eat or drink something hot. So, I'm thinking drinking ice water during hot flashes might feel pretty good...

Joni

My body has cancer, my spirit does not! Dx 4/27/2009, IDC, <1cm, Stage IIA, Grade 1, 3/11 nodes, ER+/PR+, HER2- Surgery 05/04/2009 Prophylactic (also called preventive) removal of the ovaries Surgery 06/05/2009 Mastectomy of one or both breasts: Mastectomy of my right breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Chemotherapy 07/05/2009 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol Hormonal Therapy 01/03/2010 Femara (chemical name: letrozole, class: aromatase inhibitor) Radiation Therapy 02/11/2010 Surgery 09/08/2010 Prophylactic (also called preventive) mastectomy of one or both breasts : Prophylactic (also called preventive) mastectomy of my left breast ; Reconstruction of my left breast: DIEP flap; Reconstruction of my right breast: DIEP flap Surgery 10/08/2011 Reconstruction of my left breast: Nipple reconstruction; Reconstruction of my right breast: Nipple reconstruction
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Jul 12, 2009 05:29PM Barbara4122 wrote:

Yep...I had bi lat mastectomy w\expanders 6/16 and I feel anything cold that I ear or drink as it goes down...it feels so weird!

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Jul 12, 2009 06:50PM LynnVA wrote:

Crazy isnt it!  I feel it too.  2 months out and I feel it everytime!

BL Mast w/ TE, Rads, waiting for exchange
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Jul 13, 2009 03:33AM abbadoodles wrote:

This is very common.  I had my mx 3/07 and I still feel it.  You get used to it.Laughing
Tina
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Jul 27, 2009 09:27AM jacee wrote:

bump

My body has cancer, my spirit does not! Dx 4/27/2009, IDC, <1cm, Stage IIA, Grade 1, 3/11 nodes, ER+/PR+, HER2- Surgery 05/04/2009 Prophylactic (also called preventive) removal of the ovaries Surgery 06/05/2009 Mastectomy of one or both breasts: Mastectomy of my right breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Chemotherapy 07/05/2009 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol Hormonal Therapy 01/03/2010 Femara (chemical name: letrozole, class: aromatase inhibitor) Radiation Therapy 02/11/2010 Surgery 09/08/2010 Prophylactic (also called preventive) mastectomy of one or both breasts : Prophylactic (also called preventive) mastectomy of my left breast ; Reconstruction of my left breast: DIEP flap; Reconstruction of my right breast: DIEP flap Surgery 10/08/2011 Reconstruction of my left breast: Nipple reconstruction; Reconstruction of my right breast: Nipple reconstruction
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Jul 27, 2009 10:09AM makingway wrote:

It's been 8 weeks since my MX. Why was I never told this would be another side effect. I feel it on the right side of my throat as it's going down all the way to my chest. It's a constant reminder I have cancer...or had. I think it's nerve damage, but what do I know-it's my body I've lived with for 50 years, I'm no doctor.

Visit my website for helpful tips when using cold caps:penguincoldcap.wix.com/help Dx 3/2/2009, ILC, 4cm, Stage IIB, Grade 2, 1/19 nodes, ER+/PR+, HER2-
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Jul 27, 2009 10:27AM CjPA wrote:

I just had a double mast 6 days ago and have the same feeling.  I've stopped adding ice to my drinks and now have less of a problem.  The first time it was so painful it took my breath away.  Doing better now .

Dx 5/13/2009, LCIS, 5cm, Stage II, 0/2 nodes, ER+/PR-, HER2- Chemotherapy 08/15/2009 Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel) Radiation Therapy 12/20/2009 Hormonal Therapy 02/15/2010 Femara (chemical name: letrozole, class: aromatase inhibitor)
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Jul 27, 2009 11:50AM LovingLifeToday wrote:

Thanks for the bump Joni... I thought it was just me being weird!  LOL

May God bless you in your time of need. May He bring you strength and courage to face this and may you feel the warmth of His loving arms around you to bring you comfort! Dx 5/29/2009, IDC, 6cm+, Stage IIIA, Grade 3, 4/10 nodes, ER-/PR-, HER2+
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Jul 28, 2009 07:20AM spinnaker wrote:

How funny that I found this thread.  I noticed that right after surgery, too, and I thought it was just me.  I have TE on left side and that's where I really notice it.  It's almost like the liquid is running down the outside of my chest when I drink something cold.  Very strange sensation and I keep forgetting to ask the PS.  Glad to know I'm not the only one.  Has anyone had this go away after the exchange surgery?  Just curious.

Karen Dx 5/27/2009, ILC, 1cm, Stage I, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Aug 1, 2009 05:26PM leslie43 wrote:

hey - i have same. throat feels raw on one side. i am trying to find out how long it will take to go away - will post anything useful

T1 nomo grade 2 er- pr- her2 !hc3+ npi 3.2 Dx 5/2009, DCIS, Stage II, Grade 2, 0/8 nodes, ER-/PR-, HER2+
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Aug 1, 2009 05:52PM pip57 wrote:

I had those same feelings with hot and cold drinks.  They did go away eventually but I can't remember when.

PIP - multi focal, FEC100/Tax, rads, dble mast with no recon, ooph/hyst, arimidex Dx 2/1/2007, IDC, Stage IIIB, Grade 2, 9/16 nodes, ER+/PR+, HER2-
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Aug 1, 2009 05:56PM , edited Aug 1, 2009 05:57PM by hollyann

I still can't drink really cold water..It has to be room temperature..My PT told me all bc patients go through this after surgery.....Strange but true......I was so glad I wasn't crazy!.......I think mine went away after 6 months...I honestly thought when I drank cold things that I was spilling it!.....Of course it is because I was numb from the neck down!......I could not feel anything from my breast bone to my pubes!.......Really strange feeling!>........

leslie the sore throat is probably from the tube they put down your throat....it probably is bruised a little....... I think mine went away after 2 weeks......good luck!.....

Hugs and Love....Lucy Dx 1-15-07 IDC stage 1b grade 1, 1.6 cm.....Also DCIS grade 3, both in left breast Dx 1/15/2007, IDC, 1cm, Stage IB, Grade 1, 0/6 nodes, ER+/PR+, HER2-
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Aug 1, 2009 10:23PM Lauren3 wrote:

Me too!  8 weeks out.  I thought I was just crazy!

Finished 6 rounds of TAC 10/14/09; Started Lupron (Trelstar) injections 11/4/09; Stopped Trelstar 10/10; Started Tamox 11/11/09; Finished 28 Rads 12/14/09 Dx 5/5/2009, IDC, 1cm, Stage IIA, Grade 2, 4/20 nodes, ER+/PR-, HER2-
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Nov 23, 2009 06:58PM CatLeuci wrote:

Same here....6 months and still feeling it....no reconstruction surgery...

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Nov 23, 2009 07:32PM terrij152 wrote:

I felt the same thing too after my BMX.  It finally went away after 3 months or so.  Interesting!

Life is a journey...Enjoy the ride!!! Dx 3/16/2009, IDC, Right, 2cm, Stage IIA, Grade 2, 0/14 nodes, ER+/PR+, HER2- Dx 4/2/2015, IDC, Left, 2cm, Stage IV, ER+, HER2-
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Nov 23, 2009 07:40PM PeggyDixon wrote:

I have the same thing but it's been 4 years and it's still there sometimes. I had not heard of another person with this until reading this thread tonight. Weird!!

Peggy Dx 1/19/2006, ILC, Stage IIIC, ER+/PR+, HER2-
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Nov 24, 2009 06:56AM Luah wrote:

Thank you ladies!  I was going to ask my surgeon about that sensation.  I definitely feel cold water going down, like it is filtering through my chest.  Had a lumpectomy and SNB almost 6 weeks ago - didn't notice it then, but now after lymph node dissection 2 weeks ago, the feeling is  definitely there.

We've been through some things together/With trunks of memories still to come/Long may you run (Neil Young). Lx, ALND, 4 DD AC &12 weekly Taxol, 31 rads, completed Jul 10 Dx 9/14/2009, IDC, 2cm, Stage IIB, Grade 3, 1/14 nodes, ER-/PR-, HER2-
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Nov 24, 2009 10:28PM Shrek4 wrote:

Ihave this off and on. Only with cold drinks, and only if I drink from a glass - not from a straw or bottle.

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Nov 25, 2009 09:56AM CheeseGirl wrote:

Yes! Me too! I've told people about it and they just don't get it. Man, I'm glad it's not just me! It is so weird. Does anyone know why this happens? I had my bilat mast 6 months ago, and I have gotten used to it, but I still feel it. Glad I found this thread -- I got a good laugh!

I'll be whatever I wanna do. -- Phillip J. Fry Dx 11/17/2008, IDC, 3cm, Stage IIA, Grade 2, 0/8 nodes, ER-/PR-, HER2-
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Nov 25, 2009 10:30AM pip57 wrote:

Me too.  Not as often though.  I am two years out.

PIP - multi focal, FEC100/Tax, rads, dble mast with no recon, ooph/hyst, arimidex Dx 2/1/2007, IDC, Stage IIIB, Grade 2, 9/16 nodes, ER+/PR+, HER2-
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Nov 25, 2009 10:43AM GryffinSong wrote:

I'm almost a year out and I feel it too. Very strange. I keep thinking it's because I don't have any insulation left. LOL

bmx, no recon - December 16, 2008, AC/T, rads Dx 11/4/2008, IDC, 1cm, Stage II, Grade 2, 3/18 nodes, ER+/PR+, HER2-
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Nov 25, 2009 10:50AM makingway wrote:

I have this also. It's nerve damage. I don't have it as often as I did after my surgery which was 5 months ago. I had an axillary lymphnode dissection-I think that's what caused the nerve damage.

Visit my website for helpful tips when using cold caps:penguincoldcap.wix.com/help Dx 3/2/2009, ILC, 4cm, Stage IIB, Grade 2, 1/19 nodes, ER+/PR+, HER2-
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Jan 24, 2010 07:43AM robinlbe wrote:

I am so glad to have found this thread.  I am 2.5 weeks out of my bilateral with no reconstruction.  I had five nodes taken, 3 SN and 1 AN from my left, and 1 SN from my right.  I never thought that the nodes would have caused this odd sensation.  I just thought it was from a loss of "insulation", although there wasn't much of me to begin with :)

I find that the cold liquids are really cold going down, but the warm liquids, including soups, are equally as warm.  It seems that all the weird things I'm experiencing are all chalked up to "nerve damage", so I guess this is just one other....

and like the rest of you, I guess this is something I'll get used to, but it sure is odd.  Interesting that so many of you are still feeling it one and two years out....

Multi-focal DCIS, Bilateral Mastectomy (no reconstruction) 1/6/10 Dx 11/6/2009, DCIS, Stage 0, Grade 3, 0/5 nodes, ER+/PR+
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Feb 13, 2010 10:35AM WOODSEER wrote:

Oh my God !!! I'm so pleased that this hasn't only happened to me. What's it all about ??

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Feb 13, 2010 12:37PM 2Hands4me wrote:

I'm not sure if it's "nerve damage" or just "nerve irritation"!!! They cut nerves in surgery (my surgeon says it would take HOURS to find and dissect around the nerves without cutting them - making it more risky and lengthening recovery time). Maybe the nerves try to re-grow, and it takes awhile for them to grow and re-learn what message they should dend in respnse to the temperature extremes!

I had right mastect. with SNB last Feb. and didn't notice this at all. In Nov, I had left mastec. (no SNB or node dissection) and definitely have this sensation. It's more with cold, sometimes with hot liquids. Feels like there is no place for the fluid to go, so it spreads out inside your chest! Completely impossible, and something we've never felt before, so it's no wonder we describe it as a "strange sensation".

I can do all things through Christ which strengtheneth me. Philippians 4:13 His Hands hold me up! Dx 1/8/2009, IDC, <1cm, Stage I, Grade 3, 0/5 nodes, ER-/PR-
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Feb 15, 2010 01:09PM robinlbe wrote:

Hey there...just thought I'd check in once again....I just noticed over the weekend, that I'm not quite as sensitive to the liquids as I was....so maybe some healing is going on!  I am 5.5 weeks post BMX....so for any newbie out of surgery, I thought this might be of some encouragement...

Multi-focal DCIS, Bilateral Mastectomy (no reconstruction) 1/6/10 Dx 11/6/2009, DCIS, Stage 0, Grade 3, 0/5 nodes, ER+/PR+

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