Topic: Shopping/packing/to-do list for surgery + recovery....

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Feb 6, 2008 06:43PM - edited Apr 20, 2021 02:06PM by moderators

Posted on: Feb 6, 2008 06:43PM - edited Apr 20, 2021 02:06PM by moderators

Panchoandlefty wrote:

OK, I admit it, I am a compulsive planner. I have had some great suggestions and tips not only regarding what to bring to the hospital, but also on how to prepare the house to make the recovery as easy as possible.

I am travelling for surgery so, for me, "packing" includes the first 10 days of post-op care.

I thought I would start a list (in no particular order) that might serve as a reference... PLEASE add your suggestions!!! Anything at all you either found helpful OR wish you'd considered before your surgery.

I am a bit of a MacGyver type and love creative uses for things like the lanyards and fanny packs for drains. I was wondering if a light/loose fly fishing vesy might be handy both for drains and for holding my phone, mp3 player, etc so I didn't have to reach so much... I am SUCH a geek.

Anyway, over-organizing seems to be keeping me occupied as my bi-latteral approaches. I know everything won't be a hit with everyone, but it gives us some things to think about.


******NOTE: MODS TOOK ORIGINAL LIST FROM Panchoandlefty AND COMBINED WITH OTHER MEMBER SUGGESTIONS UP THROUGH END OF MARCH 2015*********** We are happy to keep adding, and please let us know if we missed anything !

Combined list from what others have said in this topic !

Community member tips for Surgery

Tips for the hospital:

Hand sanitizer, antiviral Kleenex, Anti-bacterial adult wipes (in a pretty dispenser), adult "baby wipes" to give yourself sponge baths.

'skin prep wipes'. These help prep the skin for tape and other adhesives

Roll on or Spray Deodorant, NOT a solid stick.

Lozenges or hard candy of your choice.

A lip balm of choice

Face and hand moisturizer

A stool softener, dried prunes, bran cereal and "smooth move" tea, laxatives.

Clipboard, notebook and pen (for documenting when you had pain meds and drain amounts)

Zip up track suits or button up pajamas and shirts.

Slippers, cotton front snap bras

Silky bottoms/PJs to make getting in/out of bed easier

Zip up hoodies/ warm ups, soft flannel shirt is just right for after surgery.

Camisoles/tanks which can be stepped into (as opposed to pulling over-head)

Jog Bras (Natori is recommended) or whatever support is suggested by your surgeon

Pull on, easy pants or shorts, or shirt

Reading glasses

iPod, Mp3 / Music player

Cell phone/ have friends' numbers handy!

Book, magazine

Hair tie if your hair is long.

Lanyard (like for ID cards) for holding drains

Fanny pack for drains

Nurses can make a necklace from IV tubing to hold drains in shower

Luck trinkets or photos from friends and/or family.

A good eye mask and ear plugs in the hospital.

Take clothes to hospital that can be washed/sanitized at home

If you are going to sleep in bed and not a recliner at home, ask the nursing staff to show you the proper way to get in and out of bed with the least strain on your back and upper body.

If you feel you may not be up for visitors at the hospital, just let the nurses and staff know that you prefer no visitors except DH or immediate family. I knew that I was having a rough time emotionally as it was beforehand. I didn't want to put on a happy face for a friend, cousin or whomever wanted to stop by. I know the visitors mean well, but for me I just wanted peace & quiet.

Tips for the ride home:

Have a pillow and lap blanket for the car-ride home.

Fill scripts before coming home so you won't have to stop on the way

What to organize at home:

Consider getting something like the The Shower Shirt, a patented, post-surgical, water resistant garment designed to protect chest surgery patients, including mastectomy, while showering. Use code BCO for 20% off www.theshowershirt.com

Get a manicure and pedicure before your surgery, and a hair cut.

Before surgery, practice washing your hair, with or without help, with your elbows not moved away from your chest---either over the kitchen sink, using the spray or if your doc will allow, in the shower.

Or, arrange with your hair dresser to do your hair after you get home and cannot stand it any longer -- get someone to drive you.

Move commonly used items, kitchen tools, etc to low shelves before surgery

Find NON child-proof caps for meds.

Neosporin.

Arrange all post surgery robes, pj's, button down shirts and hoodies on a rack in one easy to reach place so you can dress myself easily the first couple of weeks without rummaging through my closet.

Bendy straws

Paper cups and light weight coffee cups for at home

Extra sheets to keep in rotation

Lots of pillows or a wedge or two!

A travel neck pillow - 'C' shaped - for keeping neck from getting a crick after sleeping in a recliner.

Tiny travel buckwheat pillows, or other small pillows.

Put an egg crate mattress on top of mattress and use a long body pillow.

Medical gloves (latex free or powder free)

Small kitchen garbage bags for dressing disposals

A little plastic waste can for at home

Find NON child-proof caps for meds

Lanyard (like for ID cards) for holding drains, Fanny pack for drains, or a camisole, or nurses can make a necklace from IV tubing to hold drains in shower. An old neck tie to use as a lanyard to hang my drains on while I shower. Works like a charm

A shower chair and a hand held shower nozzle. 3M Nexcare tagaderm transparent bandage over the port where it exited my skin when I showered. Also, have a lanyard to use for your drains in the shower. I just clip the safety pins on the lanyard clip for while I shower. It seems a little heavy on my neck while I shower, but I take it off right after I shower.

Get a humidifier for home if your air is dry.

Grabbers! These are about 23 inches long, have a handle that you sqeeze, and the end clamps on stuff on the floor. GREAT for pulling up your pants when you can't bend over, or picking up stuff that you drop, (like the toilet paper, etc!) I needed two of these, as I dropped the grabber! Great for pulling the wash basket along, too!

Make sure to get safety pins, makes it easier to pin your drain tube to your pjs.

Size 1 baby diapers, sanitary napkins or nursing pads for open breast incisions.

A small step stool has been a great tool to help me get in and out of bed

Make sure there's food premade that you don't need to fuss with (sandwiches/salads in individual servings), and also keep those drinks handy.

Cook some of my favorite foods and even ordered a couple takeouts from my fav restaurants to be on hand when I got hungry.

Purchase smaller sizes of soda/juice/milk.

Stock up on heavy items (laundry soap, dry dog food, bottled water, sodas) for 2-3 months! Remember to fill up smaller containers that are easier to pick up.

Put your shampoo, conditioner, and body soap in trial size bottles so they are easier to manage and lighter.

Stock up on stuff near bed - tissues, water, magazines, lots of pillows of all sizes, medicine, remote control.

Recliner or hospital bed- can be ordered from medical supply companies. Some find a sleeping wedge very helpful, with pillow under the knees.

Drain solving problem: Zip-up hoodies or robes with pockets, I cut a slit on the inside material and popped the drains in from the inside. No one even knows they are there. It looks a little bulky, but much better than the drains hanging on my neck from a lanyard.

If you have someone a the house helping you out, when you need them call from your cell phone to the house phone or vice versa. It was so much easier than trying to yell from upstairs.

Get Netflix or rent movies.

Have an insulated cup for drinking and book and lamp by the bed.

Have someone pour milk, juice, etc from big gallon jugs into smaller containers and leave on an easy-to-reach shelf.

If a can of something needed opening, have someone do it before they leave.

******************

This thread started me thinking about what my husband/partner will need. So I am starting a basket of "surprises" for him. A friend is bringing it to the hospital to give to him after I am in surgery.

iTunes gift card - so he can dowload a book on tape, music, movie, whatever

roll of quarters - for the pop machine

deck of cards - surgery is supposed to be 8 - 10 hours. He can play cards with whoever shows up

remote control car -pure silliness but he will think it is fun!

box of Special K meal bars - at least he will have something semi-healthy to snack on

chapstick - hospital environments can be very drying

bottle of special single malt scotch - something he would never buy for himself, but will appreciate very much when he gets home

travel blanket - hospital can get cold

framed picture of the two of us

tissues

Dx 1/15/2008, IDC, 1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-
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Nov 9, 2021 08:17AM - edited Nov 9, 2021 08:17AM by cardplayer

My left prophylactic mastectomy was rescheduled (due to doctor illness. New date is 12/9.

Targeted Therapy 6/30/2020 Perjeta (pertuzumab) Chemotherapy 6/30/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 6/30/2020 Herceptin (trastuzumab) Surgery 11/19/2020 Mastectomy (Right) Hormonal Therapy 12/3/2020 Arimidex (anastrozole) Surgery 12/9/2021 Prophylactic mastectomy (Left) Dx IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+
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Nov 9, 2021 08:45PM minustwo wrote:

sorry to hear that. It's hard to get geared up for surgery and then have it rescheduled.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 7, 2021 08:44PM - edited Dec 7, 2021 09:02PM by LMF2021

I used the extensive pre-surgery list for a double mastectomy, above the muscle reconstruction all in one outpatient same day surgery on Nov. 11 and all went well. I hope yours goes well on Thursday, Nsbrown54. We were almost surgery day buddies.

I wanted to add a few items to the list that I found helpful.

1.) First a foot/step stool by your bed. Especially important if you are using a wedge and/or have a high bed.

Getting in bed with the stool, I was high enough so I could plop my bottom right where I wanted to near the lower edge of the wedge. The first few days trying to rearrange yourself in bed is very painful. You can't use your arms, so it is important to position yourself right from the beginning. If you have any memory foam on the bed, adjustments are torture.

Getting out of bed it is nice to have a step to brace your landing if your bed is high since any jerking causes pain no matter how small. Also helpful for putting your slippers on in bed. I had a large size Cosso plastic stool in the house that I used. It helped in the first week post surgery.

2) Zip up hoodies. These are helpful if you have drains because you need easy access, even buttons would be too much in the early stages. My drains were in 7 days and I rotated through 4 inexpensive regular cotton hoodies. After the drains were out I was okay with button down shirts since I didn't need to check things as often. In bed (I had an Elizabeth Pink mastectomy bra provided by the hospital with the drains attached to the bottom of my bra), the hoody contained the tubes and the bottles rested on my chest underneath and I could open the zipper and make sure everything was in order without sitting up or feeling around too much. It works well in cool or colder weather. Perhaps a lighter cotton version would work in summer.

3) Elizabeth Pink mastectomy bra - I was put in one by the hospital and I am not sure the regular $50 price tag is worth it but you could easily add the hanging drain bottle loops to any front opening sports bra, Sew in a ribbon loop on the band hanging down about 1.5 inches under the center of each breast. Using a soft plastic shower curtain snap ring or aluminum climbing ring on the ribbon loop so you can hang your drain bottles and easily remove them. I have a kitchen counter height bathroom vanity, so I could drain the bottle into the cups without removing them from the bra. It made things so much easier and no chance of dropping them and stressing the skin opening. The other advantage of hanging the bottles on the bra is that you don't risk pulling them when you remove your shirt, they are part of the bra. With a hoodie you barely notice the bottle bulge since they stick out near the bulky bottom anyway. A downside of the real Elizabeth Pink bra is the velcro closures, If you get a case of hypersensitive skin while the nerves regenerate, the velcro will drive you bonkers with itching. It gets worse after washing because the long front velcro closure gets wavy.

Thanks to everyone who has contributed to this thread, you all helped me so much to prepare and cope with post surgery.

my story Dx 9/15/2021, DCIS, Left, 2cm, Stage 0, Grade 2, 0/3 nodes, ER+/PR+ Surgery 11/11/2021 Mastectomy; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Dec 7, 2021 09:28PM minustwo wrote:

LMF - glad to hear everything went well. Thanks for the additional tips!!

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 8, 2021 04:36AM moderators wrote:

These are wonderful tips, LMF2021, thank you!

The Mods

To send a PM to the Mods: community.breastcancer.org/my/...
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Dec 27, 2021 05:19PM - edited Dec 27, 2021 05:20PM by dancemom

so, is it better to lie flat and keep pillows around so you don't roll, or should you be semi reclined on a wedge? And if on a wedge, how do you not roll off? I'm kind of obsessing with this sleeping situation!

Dx 3/16/2021, IDC, Right, 3cm, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/29/2021 Femara (letrozole) Targeted Therapy 4/26/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Radiation Therapy 3/14/2022 Whole breast, Radiation boost: Right breast, Chest wall, Lymph nodes, Other part
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Dec 27, 2021 11:36PM minustwo wrote:

I couldn't manage a wedge. I just plumped up a couple of pillows under my head & shoulders and made sure there were more pillows on each side so I couldn't turn. Since I had never in my life slept on my back - it was a challenge.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 28, 2021 12:35AM dancemom wrote:

funny, I am now such a side sleeper after 3 kids. I had to train myself during first pregnancy to stay on my left side!, Then I would up nursing lying down most nights. (Total of 5 1/2 years, what happened to breast feeding lowering the risk of breast cancer?!) I will be prepared with pillows AND a wedge!

Dx 3/16/2021, IDC, Right, 3cm, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/29/2021 Femara (letrozole) Targeted Therapy 4/26/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Radiation Therapy 3/14/2022 Whole breast, Radiation boost: Right breast, Chest wall, Lymph nodes, Other part
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Dec 28, 2021 03:53AM sondraf wrote:

There are lots of different wedges! I would suggest getting one with a less steep incline - mine is really steep and I only slept like that a few times, but then the "ramp" it would make was too long (see photos on internet of some people putting a pillow at the top of a low wedge and then laying on it) and I was practically out the bottom of the bed! In the end I went with lots of pillows and then one under my knees to prevent me from rolling and take pressure off my stomach skin. Now at 4 weeks out (3 back at home) I am sleeping almost back to normal and juuussstt about to try rolling on my side. Trust me, your body will let you know if its ok to do this or not! It just doesn't feel right!

Also maybe look into a "reader" pillow - one of those heavy ones with arms. We keep one in the spare room and that + two pillows = good nights sleep.

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy 11/29/2019 Ibrance (palbociclib) Surgery 11/28/2021 Lymph node removal (Right): Underarm/Axillary; Mastectomy (Right) Targeted Therapy 3/1/2022 Lynparza (olaparib)
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Dec 28, 2021 12:38PM dancemom wrote:

my kids love those armed backrest pillows! I'll invest in one of those as well, as I know it will be easily re-gifted to one of my older kids (ie, not living here) when my husband complains we have too much stuff. Getting nervous...

Dx 3/16/2021, IDC, Right, 3cm, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/29/2021 Femara (letrozole) Targeted Therapy 4/26/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Radiation Therapy 3/14/2022 Whole breast, Radiation boost: Right breast, Chest wall, Lymph nodes, Other part

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