May 6, 2012 01:14PM - edited May 6, 2012 01:17PM by cinnamonsmiles
It saddens me and angers me at the poor treatment you have gotten from your surgeon. There are a multitude of post op instructions for a mastectomy (not lumpectomy)...not lifting your arms very high (I think it was no more than a 45 degree angle for me) until the surgeon says it's ok, drain information, when you can start to do stretching exercises (they help prevent scar tissue from forming and have a certain order of progression to them as well).
IF over the counter pain relievers are not helping you, then of course something stronger should be prescribed.
After a mastectomy, everyone's experiences are different but similar. There is a topic pinned to the top of this Surgery forum called Post Mastectomy Pain Syndrome.
I have had a severe case of it from the moment I awoke from surgery 1/11/11. I am still being treated for it at a Pain Clinic. I have not found anything that relieves it on my own. With the exception of learning that tighter camisoles helped and learning what clothes to wear.
I had and have the same symptoms you describe. I noticed that sometime closer to the year mark, I started to get some normal feelings back in the chest. Some do, some don't.
Some breeze through it afterwards with some discomfort, some more than others. Our timelines for healing varies greatly.
If I were you, I would get a second opinion from a different surgeon, talk to you primary doctor and read up on the PMPS thread here. I know it is long, but there is a lot of good information in there of what those of us with PMPS have gone through.
Did you have any node dissection? That is some info that would be good for us to know as well.
If your pain is much more than you can handle, see someone else. In order for my surgeon to take notice, I was very, very specific in exactly what I was feeling and and where and wrote it down so I could read it right off the paper.
Pleas let us know how you are doing. Feel free to post under the post mastectomy pain syndrome thread, as well. I can not diagnose you, but maybe you will have an "aha" moment while reading.