Topic: Lumpectomy Lounge....let's talk!

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Feb 19, 2013 09:35PM - edited Feb 26, 2013 12:57AM by ToriGirl

Posted on: Feb 19, 2013 09:35PM - edited Feb 26, 2013 12:57AM by ToriGirl

ToriGirl wrote:

WELCOME TO THE LUMPECTOMY LOUNGE!

I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried).  So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell stories, seek advice, give comfort, give high fives and do the happy dance...and just feel free to let out our thoughts about the things that we have all gone through (or all currently going through, or about to go through).

Some of you have just had lumpectomies..some of you lumpectomies plus radiation, others have had lumpectomies, chemo and radiation, and still others who have had the lumpectomy, chemo, radiation and hormonal therapy.  We've all got stories...and with those stories we have questions and concerns and this is the place to put them.....so we can hear from others that have "been there, done that" and can give us a different perspective on all of it.

Let's reach as many folks as we can...I know that there are many out there that are asking, " Is this normal?  Should this be numb?  How am I supposed to sleep after surgery? When does it get better?  Do I need to call the doctor? Should this feel like this?" How is the "new normal" going to feel?  "How am I going to get through the next mammogram or MRI?"

Maybe some of you need some reassurance, maybe some of you need to know that there are others of us out there that can help...and still maybe some of you just need to scream, "My doctor didn't tell me that!"or "This sucks!" or just some nice "choice" words...  

Don't worry...we get it...we understand it...

Weather you are waiting to have your surgery, just got a lumpectomy last week or you got one years ago...share your knowledge and experiences here...

There is no limit to what we can talk about!  :)

Ready?  GO!

"Sorrow carves the opening for joy later..." Dx 6/4/2010, IDC, 1cm, Stage IIA, 1/11 nodes, ER+/PR+, HER2-
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Apr 21, 2013 10:35PM schoolmom wrote:

Rads were not bad on my skin. I used Aloe force which I bought on line and had some pinking and a little peeling around nip. I have only been on Ht for a few weeks so not many side effects yet.

saved my hair with cold caps with oncotype 21 Dx 9/12/2012, IDC, Left, 1cm, Stage IB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Surgery 9/28/2012 Lumpectomy: Left Surgery 9/28/2012 Lymph node removal: Left, Sentinel Chemotherapy 11/5/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2013 3DCRT: Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole) Dx 11/6/2017, IDC, Left, Stage IV, metastasized to bone/liver Targeted Therapy 12/1/2017 Ibrance (palbociclib) Targeted Therapy 12/1/2017 Hormonal Therapy Arimidex (anastrozole), Femara (letrozole)
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Apr 22, 2013 07:07AM Georgetta wrote:

I'm having a lumpectomy today and I'm really scared.  I thought I was prepared for this and I'm sitting here crying.  I think I'm more scared of the what ifs. My tumor has shrunk alot but I think I'm worried about what they find in lymph nodes. 

Thanks for listening. 

Dx 11/1/2012, IDC, 4cm, ER+ Chemotherapy 11/14/2012 AC Chemotherapy 1/23/2013 Taxol (paclitaxel) Surgery 4/21/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 5/6/2013 3DCRT: Breast
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Apr 22, 2013 09:05AM auntienance wrote:

I am nearly two years out from my lumpectomy. It and the following radiation (brachytherapy) was pretty much a piece of cake. Because of my oncotype score of 26, chemo followed radiation. As a result, I had some radiation recall and now have a very ugly half dollar size scar at the site. I also had a seroma which has caused me no problems but has been very slow to absorb.

I've been on letrozole for 15 months now. After about 3 months I started experiencing side effects of joint pain and serious hot flashes. Pain was manageable but the flashes were not, so we added effexor to the mix. My biggest problem now is hair thinning which can be an se.

Wishing all of you with impending surgeries the best.

Nancy: Oncotype score 26 Dx 6/9/2011, DCIS/IDC: Tubular/IDC: Cribriform, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 6/22/2011 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left): Sentinel Radiation Therapy 7/25/2011 Internal/Brachytherapy: Balloon applicator catheter: Breast Chemotherapy 10/3/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/11/2012 Femara (letrozole)
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Apr 22, 2013 09:29AM LaurieParr wrote:

Love and light to you Georgetta. We are all here for you. I'm so sorry you are having to deal with this. Know that you have an army of hearts with you today and going forward. God will be with you.

XOXOX
laurie

"My kids are my life. They are my purpose." Dx 3/21/2013, DCIS, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 5/27/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 6/5/2013 Lumpectomy: Right Radiation Therapy 7/15/2013 Breast Dx 0/1 nodes
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Apr 22, 2013 10:57AM RMlulu wrote:

Georgetta - (((hugs)))
Deep breaths...we are here with you...in your pockets (((squeeze))) and we will be with you when you wake up after your lumpie and we will be with your waiting for results of margins and nodes! We are here...lean on us.
Congrats that you've come so far in your battle ,,, you are a brave warrior!
Sending calming confident thoughts (((hugs)))
Cindy

Dx 12/18/2012, IDC, <1cm, Stage IB, Grade 2, 0/7 nodes, ER+/PR+, HER2- Surgery 1/22/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 3/13/2013 Hormonal Therapy 5/31/2013 Aromasin (exemestane)
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Apr 22, 2013 07:43PM elkatho wrote:

Hi All....

Geotgetta...sending positive thoughts your way. Hoping your are resting comfortably. Everyone is so strong.

As everyone says the waiting is the hardest. My biopsy was positive for Her2 so I expected to have chemo. When they tested the tumor after surgery with a different test, FISH, it came back negative. So now what....another test...mamaprint and another two weeks for results. This test should help determine if chemo is recommended. It is a "off" feeling being ready to go through all treatments then whammy it may all change. It feels like a gray area. I set up a second opinion with another MO.

Stay strong everyone....love all the positive energy!!!

"Three things in human life are important. The first is to be kind. The second is to be kind. And the third is to be kind." - Henry James Dx 2/28/2013, IDC, 1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/4/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 5/15/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/27/2013 Breast Targeted Therapy 1/22/2014 Herceptin (trastuzumab) Hormonal Therapy
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Apr 22, 2013 10:30PM RMlulu wrote:

Elkatho - sorry you are in the holding zone:(
Have you asked your BS or MO if they can rerun your her2 test? Might be good to confirm the findings. It's so hard to wait, but try and use this time for healing...stay focus on today. Don't get ahead of the journey. Remember we want the best! We want to have the truth as we move forward inpur tx decisions. Sending healing thoughts and (((hugs))) hang in there warrior!
Cindy

Dx 12/18/2012, IDC, <1cm, Stage IB, Grade 2, 0/7 nodes, ER+/PR+, HER2- Surgery 1/22/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 3/13/2013 Hormonal Therapy 5/31/2013 Aromasin (exemestane)
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Apr 23, 2013 06:39AM Georgetta wrote:

Thanks for the kind words. Lumpectomy went well. No lymph node involvement - yay!

I'm sore today, but I'll be ok. Looking at brachytherapy maybe as the the next step. Any thoughts?

Hoping for a good day for all,
Georgetta

Dx 11/1/2012, IDC, 4cm, ER+ Chemotherapy 11/14/2012 AC Chemotherapy 1/23/2013 Taxol (paclitaxel) Surgery 4/21/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 5/6/2013 3DCRT: Breast
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Apr 23, 2013 07:54AM LaurieParr wrote:

Yay Georgetta! What a trooper you are!!

Please rest as much as you can. We will be here......

XOXOX
Laurie

"My kids are my life. They are my purpose." Dx 3/21/2013, DCIS, 1cm, Stage 0, Grade 2, ER+/PR+ Surgery 5/27/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 6/5/2013 Lumpectomy: Right Radiation Therapy 7/15/2013 Breast Dx 0/1 nodes
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Apr 23, 2013 09:16AM auntienance wrote:

For me, brachytherapy was a breeze. Be aware though that seromas are not uncommon with it. The worst part is not being able to shower for 7 to 10 days.

Nancy: Oncotype score 26 Dx 6/9/2011, DCIS/IDC: Tubular/IDC: Cribriform, Left, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 6/22/2011 Lumpectomy; Lumpectomy (Left); Lymph node removal; Lymph node removal (Left): Sentinel Radiation Therapy 7/25/2011 Internal/Brachytherapy: Balloon applicator catheter: Breast Chemotherapy 10/3/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/11/2012 Femara (letrozole)

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