Posted on: Feb 19, 2013 10:35PM - edited Feb 26, 2013 01:57AM by ToriGirl
WELCOME TO THE LUMPECTOMY LOUNGE!
I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried). So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell stories, seek advice, give comfort, give high fives and do the happy dance...and just feel free to let out our thoughts about the things that we have all gone through (or all currently going through, or about to go through).
Some of you have just had lumpectomies..some of you lumpectomies plus radiation, others have had lumpectomies, chemo and radiation, and still others who have had the lumpectomy, chemo, radiation and hormonal therapy. We've all got stories...and with those stories we have questions and concerns and this is the place to put them.....so we can hear from others that have "been there, done that" and can give us a different perspective on all of it.
Let's reach as many folks as we can...I know that there are many out there that are asking, " Is this normal? Should this be numb? How am I supposed to sleep after surgery? When does it get better? Do I need to call the doctor? Should this feel like this?" How is the "new normal" going to feel? "How am I going to get through the next mammogram or MRI?"
Maybe some of you need some reassurance, maybe some of you need to know that there are others of us out there that can help...and still maybe some of you just need to scream, "My doctor didn't tell me that!"or "This sucks!" or just some nice "choice" words...
Don't worry...we get it...we understand it...
Weather you are waiting to have your surgery, just got a lumpectomy last week or you got one years ago...share your knowledge and experiences here...
There is no limit to what we can talk about! :)
Posts 61 - 90 (28,153 total)
Mar 4, 2013 05:01PM savgigi wrote:
Good luck tomorrow, April
Mar 5, 2013 12:50AM april485 wrote:
Thanks Savgigi. I am really nervous but happy to finally get my results!
Mar 5, 2013 04:08PM RMlulu wrote:
Yeah I'm so happy relieved my post op MRI is clear :)) RO said 1st MRI was over read...no more biopsies no more surgery I get to move past go on to Radiation Road yippee!
Friday will be my setup & Tatoos. So ready to be out of jail and move to next step.
April485 hope you received good news too!
Today is good. Getting use to left side smaller & higher with a dimple just wish it wasn't so tender when walking. Incision scar is hard does that go away? Hope I can get past a boob sock & extra sports bra when walking ...
Hugs to you all!
Mar 5, 2013 04:52PM april485 wrote:
I am really happy for you RMlulu! Unfortunately, although I did get clean margins, one of them was <1mm so I go for my re-excision surgery on Monday the 11th. Although I am totally bummed about needing more surgery, the bright side is that all they found was DCIS and NO invasive or LCIS. I was more worried about that than my clean margins. It just means my tx gets pushed back farther out and that is a bummer. I wanted to be all done before May! Now, I won't even likely begin rads until early to mid April...sigh.
Anyway, it is what it is as my Mom used to say. Thanks for your kind thoughts!
Mar 5, 2013 08:40PM savgigi wrote:
April, bummer about the margin, but the best news is no invasive disease. Hooray for that good news!
Mar 6, 2013 12:46AM snorkeler wrote:
RMlulu--My surgeon told me that the hard area under the incision is due to scar tissue forming. She recommended massaging the area (with or without lotion or oil) to break up the tissue. I'm about 10 months out of radiation and my scar has improved a lot, both in feeling and visually.
Mar 7, 2013 11:50AM CameraKim wrote:
Hi Everyone :)
Glad to hear everyone seems to be doing fine! Hoping for lots of positive reports!
I had neoadjuvant chemo, so my pathology from this lumpectomy will determine how effective it was for me. My tumor was grade three and we know from an earlier biopsy that I had at least one node that was positive.
I had my wire guided lumpectomy yesterday and am feeling great today. Both procedures were very easy! They weren't able to make out my tumor on the ultrasound since it had shrank so much from chemo, so I had to do it via mammogram. That wasn't nearly as bad as I had imagined since they don't compress you nearly as hard as they do during a regular mammogram...really only just enough to keep you still.
The lumpectomy and SNB took about 2 hours. They ended up taking three lymph nodes. I was in recovery for about an hour and then was sent on my way. I had virtually no pain and didn't need to even take Tylenol last night. Slept for a good 13 hours and I'm feeling great today!
Best wishes getting through this everyone :)
Mar 7, 2013 12:17PM RMlulu wrote:
CameraKim- Wow! Glad you are feeling great :). Will be praying for clear margins & nodes good path report. Yeah the T is gone... Speedy healing.
Mar 8, 2013 12:56AM Denise51 wrote:
Hi Lumpectomy Lounge Ladies,
I had a lumpectomy on 2/19/13 ( right breast, 1 cm mass). Prior to the lumpectomy, I was stage 1 grade 1. When I visited my surgeon on 3/1/13 she informed me that margins where clean, but 3/4 lymph nodes were positive and I was bumped up to stage 2 and now am looking at chemo, not just radiation. I felt good ( as good as one could feel) at stage 1, not so positive about lymph node involvement.
As for the lumpectomy itself, and sentinel lymph node excision I experienced very little post operative pain and no complications, but I slept and slept and slept. This could have been a result of the nature of my particular surgery or because I could not sleep for several days prior to the surgery. The worst thing was the plastic they placed over the bandage/incisions. I developed an extremely itchy blister. I did wear a bra continually for the first two weeks and I think that helped alot with stabilizing the breast. The Walmart sports bras with front closures, mentioned on some of the other threads were great and did not required calesthetics to put on!
Cosmetic results in my case - one breast is now slightly flatter than the other and I do not consider it a big deal. Of course, I am an old lady of 62.
I was sorry to hear that some of you had bad experiences. This is a tough disease that seems to be different for each one of us. While I feel great physically, I am not so hot mentally. I went for a CT scan on Wednesday and am having a bone scan on Friday. I hate waiting for the results. But I did meet with a good friend today and it did me a world of good - for a moment I forgot what I was facing and even had several good laughs. For all, hang in there and I am sending all my positive thoughts your way.
Mar 8, 2013 07:19AM april485 wrote:
Ah Denise, sorry you were upgraded to stage 2, but clean margins are a good thing (prefer to look a the glass being half full with this stuff I have to have a re-excision on Monday for one margin being too close (less than 1 mm) but other than that, the lumpie was all good from where I sit. I now have the official pathology of my lesion and it is pure DCIS. So, that is what I will focus on, not the fact that they have to cut my poor boob yet again.
I was sweating the "upgrade" to another stage also, but got lucky this time. Hoping your scans are all clear and that you can go on with your life and put this in the back corner of your mind when you finish tx. It never goes away as we are always worried about recuurence, but at least when tx is complete, we can get back to some sense of our old life before BC.
I think what bums me out the most is having to wait to start rads. But, my day will come soon enough and then on to tamoxifen or Aromasin. My MO has not decided yet but thinks even though I am post menopausal, tamoxifen might be the way to go. We shall see...
Best to you!
Mar 8, 2013 04:05PM Denise51 wrote:
Thanks for your positive remarks. I hope your Monday surgery goes very well with minimal discomfort. I understand how you feel about the waiting. I was initially diagnosed on 12/21/12 and had to wait until February for the surgery. In between those dates, the tumor board "reinterpreted" my ultrasound and saw another area they found questionable and I had to undergo a second biopsy. That area gladly turned out to be OK. But, oh- the waiting....
So- I went for my bone scan today. Soon after I got home, I got a voice mail from the medical oncologist's office. I have not met her yet, my first appointment was scheduled for the 19th. They wanted to reschedule to the 12th.
Well, I do try to be a positive person, but the first thing that went through my mind was that something nasty turned up on one of the scans and they wanted to see me right away. I just got a really sick feeling in my stomach. I cleared it up whe I called back to reschedule - they really just did have a cancellation.
This is such an emotional rollercoaster! But we will get through all of this.
Mar 8, 2013 04:27PM april485 wrote:
"This is such an emotional rollercoaster! But we will get through all of this." As the kids like to say Denise, TRUE DAT! LOL
I will keep you in my thoughts as you wait for that scan result and appt with your MO. WAITING seems to be the order of the day with BC for sure. We hurry up and then we wait...wash, rinse, repeat. It is so crazy!
Thanks for the good thoughts. I just want the surgery part to be over with. Sorry you had to wait so long between diagnosis and surgery. That would have made me nuts too. Glad your biopsy was clear though. Being thorough is a very good thing and the "tumor boards" are a great idea in my opinion. As they say, two minds are better than one so many minds are certainly even better than two.
Hugs and good wishes!
Mar 8, 2013 04:32PM marjie wrote:
Hi all -
Just reading thru the posts. I'm not on the boards that often anymore but I had a lumpectomy and SNB at the same time. Followed by chemo, radiation and a year of herceptin. This summer will be 3 years since diagnosis for me and I'm doing excellent.
Takes a bit to get your strength back and the radiation sure does a number but all is good....I found massage therapy really helped release the muscles/tissue that were seized up from the rads.
Mar 8, 2013 04:41PM april485 wrote:
Thanks Marjie! The information about massage is very useful My BC center at Yale offers complimentary once a week massage therapy to all BC patients. I think I might just take them up on it. Then I can have my hubby supplement in between
Mar 8, 2013 04:55PM - edited Mar 8, 2013 04:58PM by duckyb1
Hi Ladies......just passed my 2 year mark......SNB, done right before lumpectomy, them Rads for 7 weeks (which was done 6 weeks after surgery) ..........then on to Femara, for the next 5 years......worst thing.......the Femara...... I did not want to take it after reading the SE's, but thought of the alternative.......l would do radiation again, rather then take 1 year of Femara, let alone 5..........
You all can do this......it is not easy, but it is like Granny says......doable...
Hey Granny you old "coot"..........looks like we can't stay away from each other....love ya girlfriend....
Hugs ladies, and keep the faith.......sorry you had to come here, but welcome.....these ladies on here are the best, and will become your best friends..
Mar 9, 2013 06:59PM LindaJD wrote:
I've read all of your posts because I will find out on Monday, the 11th, my surgery date for a lumpectomy. I'm glad some of you explained about clean margins & about the radioactive tracer. My surgeon only told me I would get a shot (of dye) the day before the surgery & that I have to go to the hospital to have it done. I am so not wanting to go through all of this! I get this sick feeling in the pit of my stomach when ever I think about this:( I'm sure you all know what I mean.
Mar 9, 2013 08:33PM RMlulu wrote:
Hi LindaJD- welcome to the lumpies:)) & glad you found this site there is so much good info & encouragement here. You are not alone.
Waiting for the lx is much harder than surgery day & recovery. Make sure you have your list of questions for BS & confirm how & when you will receive your path results as they come in! This is so important so you are not worried. Each BS is different so it is important to know...most of us just want to hear ASAP nodes&margins margins :)) ( I called the office to receive that info then path report with staging a week after lx in office).
All is doable. Wire localization then isotope dye for SND 4 shots(they will numb the area with cream) then off to surgery. You can ask for something pre-op to take the edge off if you like.
I slept most of the first day...relief it was over & up & around the house with family the next day :)). Very little discomfort only took med at night to ensure a good night...was so much easier than what my head had made it!
You will be fine...sending peaceful calming thoughts (((hugs)))
Mar 10, 2013 07:12AM LibraryLynn wrote:
Surgery day was the looming terror for me, but absolutely nothing about that day was bad at all. I expressed my fears, and every single hospital person respected them and webfoot of their way to alleviate them for me. Don't be afraid to do that. It helped me a great deal during that day.
I had my lx last Tuesday, and I have truly had zero post op pain. The anesthesia kicked my butt though so rest a lot and take care of you.
Healing white light and angels coming your way,
Mar 10, 2013 10:27PM ToriGirl wrote:
Ladies...(Lumpies...I love that!)
I'm so glad to see that people are dropping by and saying hello and just letting us know how they are doing..I love that some folks that are years out are coming in an letting you know good things...very good things...
Tomorrow I go in for followups....mammogram and MRI...not excited at all..not one bit..so coming here to see if anyone would like to sneak into my pocket for some encouragement....let me know...appointment at 10:30am (CST)...all are welcome as long as you bring snacks!
Hope you are all doing well and keep coming back to let us know how you are doing and to encourage others...we are blessed to have each other...
Mar 10, 2013 10:53PM RMlulu wrote:
Hey Tori- Thanks for starting this thread :) which pocket...cheese crackers and no whine ha!
Sending calming vibes (((hugs))) that your follow ups will reval the truth of breast. Praying for the best for you.
Trade places tomorrow am is my colonoscopy ... I can hear you LOL!
Mar 10, 2013 11:09PM april485 wrote:
Tomorrow is my re-excision surgery so spending time in your pocket RMlulu since you are in mine...colonocopy is a piece of cake! Have an uneventful one..the prep is the worst part!
Mar 10, 2013 11:10PM april485 wrote:
I am in your pocket too Torigirl..It will be all good!
Mar 10, 2013 11:14PM ToriGirl wrote:
You know, we are like superheroes...able to be in 3 places at one tomorrow! Okay...I'm with april485 and RMlulu tomorrow...
Make room for me though...I'm bringing snacks for everyone!!!
Mar 10, 2013 11:16PM RMlulu wrote:
April485 - sending you calming thoughts clear margins & speedy healing (((hugs))) you got this!
Mar 10, 2013 11:17PM april485 wrote:
You guys are the best! Sweet dreams!!
Mar 11, 2013 12:12PM RiverFlows wrote:
I have a "good" problem to send out to group, of course I will consult my medical team as well, but I am seriously missing my yoga classes. 5-days post-op I have pretty good range of motion on my arms although my family is really babying me, not let me lift anything, even my super light purse (which is basically just a wallet with straps).
I know not to do all the downward dogs, planks, etc. but what about other flows and/or restorative poses? Any yogis out there with some words of support, experience, suggestions? I am doing some very simple meditation and breathing practices on my own but miss the community in the class so may show up and just sit in lotus the whole 90 minutes
Mar 11, 2013 01:43PM - edited Mar 11, 2013 01:50PM by SelenaWolf
My surgeon told me that there was, absolutely, no reason why I shouldn't return to normal activities after my lumpectomy. That said, he said not to do anything too crazy - like go rock climbing or bench-press 200lbs., at least, right away - he said that the earlier you begin using your arm for normal activities, the better. I took him at his word; three days post-lumpectomy, I was back on my bicycle and did a 20km ride (albiet with a really supportive sports bra) and, within the week, returned to my intermediate-level pilates class.
So, unless you've been told for a specific reason for your particular case, to go easy on the lifting/other activities, I would say that - since yoga is a "normal" activity for you, it's probably okay to go to class and do some of the less strenuous moves/stretches than don't involve supporting your entire weight on your arms/shoulders. But, as always, check with your doctor first.
Edited to add: I really REALLY like the "Lumpectomy Lounge". It's a good addition to the boards.
Mar 11, 2013 02:39PM april485 wrote:
I just returned from my re-excision surgery for my lumpie (had it this morning) and discharge paper says the following:
May return to normal activities after 48 hours
No lifting anything heavier than 10 lbs for 4 weeks
No swimming or bathing (tub) for 2 weeks
Hope that helps!
PS: Weird that my re-excision is MORE painful that the full lumpectomy was? I guess that is cause my poor boob has had a vacuum stereo biopsy and two lumpectomy surgeries since 1/25...either way, percocette and sofa, here I come.