Posted on: Feb 19, 2013 07:35PM - edited Feb 25, 2013 10:57PM by ToriGirl
WELCOME TO THE LUMPECTOMY LOUNGE!
I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried). So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell stories, seek advice, give comfort, give high fives and do the happy dance...and just feel free to let out our thoughts about the things that we have all gone through (or all currently going through, or about to go through).
Some of you have just had lumpectomies..some of you lumpectomies plus radiation, others have had lumpectomies, chemo and radiation, and still others who have had the lumpectomy, chemo, radiation and hormonal therapy. We've all got stories...and with those stories we have questions and concerns and this is the place to put them.....so we can hear from others that have "been there, done that" and can give us a different perspective on all of it.
Let's reach as many folks as we can...I know that there are many out there that are asking, " Is this normal? Should this be numb? How am I supposed to sleep after surgery? When does it get better? Do I need to call the doctor? Should this feel like this?" How is the "new normal" going to feel? "How am I going to get through the next mammogram or MRI?"
Maybe some of you need some reassurance, maybe some of you need to know that there are others of us out there that can help...and still maybe some of you just need to scream, "My doctor didn't tell me that!"or "This sucks!" or just some nice "choice" words...
Don't worry...we get it...we understand it...
Weather you are waiting to have your surgery, just got a lumpectomy last week or you got one years ago...share your knowledge and experiences here...
There is no limit to what we can talk about! :)
Posts 91 - 120 (28,147 total)
Mar 11, 2013 01:44PM april485 wrote:
Should I be having MORE pain after a short re-excision surgery than I did after my full lumpectomy? It feels as though my entire chest wall hurts where before it was just the incision site that hurt for a day or two. It feels like an elephant sat on my chest for a few minutes and then got off leaving it intact but sore. It hurts most when I press on the area (not the incision, the chest area) Very strange. Did not have this the first time. I am wondering if it is from all of the trauma to the area in such a short amount of time as I said before. Between the stereo core biopsy, the wire loc for the first lumpectomy and the two lumpectomy surgeries, I have had a lot of stuff happening on that poor boob.
Either way, it hurts like hell. I am icing it and taking pain meds which helps some, but I sure hope it feels better tomorrow. Was hoping to go to work on Wednesday and no way I can function at work taking meds like this.
Thanks. Hoping this is normal and/or at least not abnormal!
Mar 11, 2013 01:54PM FireKracker wrote:
Hi to all you lovely ladies
It looks like there is gonna be a surgery party tomorrow
Im havin it too.
Gonna have 8-12 inces removed from my gut.This diverticular disease is killing me.Mine is at 10am.
Im bringing 2 overnite bags plus a pocketbook sooo if anyone wants to jum into mine feel free to do so.
Good luck everyone.Grannydukes
Mar 11, 2013 03:02PM april485 wrote:
I will be in that pocketbook with you Granny! Hoping it goes well for you!!
Mar 11, 2013 05:38PM - edited Mar 11, 2013 09:19PM by ToriGirl
Granny...you know I'm gonna stuff my butt into your pocketbook too!!!! You can't keep me away from joining all the fun tomorrow!
Had my mammogram and MRI today....I opted for the new 3D mammogram and it came back all clear! Yay!
The MRI was next...and I'm hoping since the mammogram was clear this too, will be the same...but I have to wait a few days for results on that one...UGH! I hate waiting! The nerve of some folks! HEE!! HEE!
april485....sorry that you hurt bad today...hopefully, it will ease up as the day goes on....just pamper yourself real good today... Also, thanks for being in my pocket today...I appreciated all the funny jokes you and RMlulu were spouting off when I needed them...
Has anyone heard from RMlulu yet today? I want to see how her fun procedure was today as well...
SelenaWolf-thanks for dropping by...please come back and chat whenever you want! :)
Mar 11, 2013 06:28PM RMlulu wrote:
Granny - sending good vibes your way for surgery & speedy healing!
April485 - sorry that you are hurting so bad :(( keep on top of your meds soft ((hugs))
Tori - glad the mammo was clear MRI will be too. Waiting the durge of BC ugh.
Did anyone notice how full y'all pockets were ha!
My throne is well polished & I was laying on the gurney all hooked up wires everywhere alone and suddenly there begins a rumbling shaking & you know it's an EARTHQUAKE but you are too attached to climb off and run to a doorway to brace...lol!
Only in SoCal. My BP heart rate went whoaoooo. Funny waited 5 min before RN came in to see if I was ok... 5.2 centered in mountains nearby. Glad it was not during procedure ... My DH said he thought it was my knees knocking:))
Found some polyps so 3-7 days for result give me a break...so now a 3 yr schedule not 10 yrs...but thankful no surprises.
Hugs to us!
Mar 11, 2013 09:56PM april485 wrote:
Wow RMlulu. I would have freaked out if the building starting shaking while I was on a gurney.Thank goodness they had not been doing the procedure at that time..especially that one! Sorry about the 3 year call back
Torigirl, glad the mammo went well and I am sure the US will be clear too.
Heading to bed. I was corked off on the couch in front of the television for the last three hours and DH didn't want to wake me. I am feeling a tiny amount better but man, the pain is an 8 on scale of 10 this time. Did not expect that one bit!
Talk soon lumpies
Mar 12, 2013 05:22AM Lisa1637 wrote:
Glad you're done with the surgery, April!! Heal well!! (The vacuum biopsy IS something...I thought the nurse had sat on me...)
Riverflows...I agree with Selena. I was back doing a modified yoga practice by Sunday (surgery on Wednesday). I was really careful...avoided most pushups. I remember thinking a week later, hey, I'm back. It was actually a good experience to bring more awareness to the practice...sometimes I think I forget that's what it is about.
Keep us posted of your progress!
Mar 12, 2013 07:50AM savgigi wrote:
April, hope you are feeling better this morning.
Mar 12, 2013 10:07AM marjie wrote:
Good luck to everyone heading into surgeries! Follow your doctor's advice post-op and listen to your body. I had lumpectomy (4cm + large margins) and SNB on Aug 18, 2010 and was back on the water racing with my dragon boat team a month later. Even if you're not super active, do some moderate exercises ....arm raises and such, because it's easy to kind of stay in that "hugging yourself" position!
I didn't have a lot of pain, but I sure had lots of fluid....I could hear it sloshing when I walked for what seemed like ages. Yuck . Moving your arms around and being up and about lots helps the fluid drain/get re-absorbed.
Mar 12, 2013 10:11AM april485 wrote:
I did not have any lymph nodes taken (DCIS with no expected lymph involvement) so I guess the worst of it is all of the constant assault on that side with the biopsy, needle loc and two lumpies. I am feeling a little better today, but that could be the percocet talking since I am taking it like clock work.
I was very surprised with how much my body hurt this time since it was a small surgery for one margin! I did not expect more than a tiny bit of incision pain but this time, I feel as though I was hit by a train! Not good...
Mar 14, 2013 03:14PM RMlulu wrote:
Today was my first Rad! Yippee! Crazy but I just want to get this all behind me and return to normal...even if it is a new normal. No earthquakes whoa who :)) I saw the red off button and big time off key so felt better. No more shaking going down. Zip zap over in a flash ... Now lubing my skin...confident. 1/30
Torigirl how was your mammo?
Sending good vibes to all...
Mar 14, 2013 04:29PM Lisa1637 wrote:
Congrats on getting going RMlulu! I had my dry run today and go for 1/33 on Monday...
Hoping everyone is feeling okay...:)
Mar 14, 2013 04:49PM RMlulu wrote:
Lisa1637 - yippee you got your dry run down...Monday will be here soon enough. Take care of your skin go to the store for some aloe extra protein and looks like you have some little ones to play laser tag at home with fun! They make it so worth all of this...(((hugs)))
Mar 15, 2013 03:51AM april485 wrote:
Thanks Denise and everyone! The itching this time is driving me bonkers! Want to pull the steri-strips off and put a rake to it! LOL.
Oh well, just hoping the margins are now HUGE after going through this twice. Will find out on Tues at post op appt!
Hang in there everyone! This DOES eventually get better...so they tell me
Mar 15, 2013 05:29AM - edited Mar 15, 2013 05:30AM by duckyb1
Just an idea...I had 38 Rads...I bought 38 scratch off $1.00 lottery tickets, each day when I came home i would scratch one off....I wont close to $100.00 and had something to look forward too.......several others ladies took my idea, and did it too.....it was fun....just a suggestion......good luck
Mar 15, 2013 06:48AM pupmom wrote:
April, I remember the itching from those strips to be awful! I would pull the edge off a little bit and scratch. I really think they, along with the drain, should be removed sooner.
Mar 15, 2013 11:39AM CameraKim wrote:
Hi eveyone :) It's fun to follow all the stories on here.
Wanted to share that I got my patholgy back after lumpectomy and node dissection last week and it shows a pCR! I am thrilled beyond words.
Meet with my RO in two weeks and then on from there! I have herceptin for another 10 months, but at least now I can see light at the end of the tunnel!!
Mar 15, 2013 02:13PM RMlulu wrote:
Hey Lumpies it's Friday!
CamerKim - Happy Dancing for you:)) yippee a good path report and the light is getting brighter the haze is lifting.
April - ugh those steri-strips itch so bad:(( but soon they will come off as they do there job holding it all together...praying for those clear margins Tuesday!
Grannydukes - hope you are feeling better.
Lisa - enjoy your weekend & aloe that breast...praying for Mondays rad...the getting in position takes more time than the 1 minute zap off rotate 1 minute zap you are done...you will be a star! Go early so you have auberge 5-10 minutes to get in your happy place calm :))
And Denise & Torigirl how are you doing!
Prayers and healing thoughts to all (((hugs)))
Mar 15, 2013 02:51PM rivercottagegal wrote:
Anyone having trouble with insurance company NOT wanting to pay for breast MRI? Mine was sent back for additional information as to "medical necessity"... Not getting any warm fuzzies over that! Like I don't have enough to worry about with starting TCH next week!
Mar 15, 2013 03:29PM RMlulu wrote:
Rivercottagegal - sorry that your insurance is being difficult. My RO 2/6 had to push for my post op MRI. But insurance called and said approved like there was no issue...who knows. Hope you get approval so you can move on...my gap was from 1/23 to 2/28 but my body and mind used it for healing. I made that time a no c talk think time. It helped so much in my healing. Just focused on today & gratefulness.
Live in Horseshoe Bay TX on Lake LBJ....see you're a TX gal on water...fun
Sending good thoughts .... For healing peace of mind and Insurance get with it!
Mar 15, 2013 08:19PM ToriGirl wrote:
Hey Lumpies! (whoever started that name...I love it!)
Friday night and I'm home...dang it...
RMlulu---I opted for the 3D mammogram and got the ALL CLEAR! Yay!
But, I still haven't gotten back any news on the MRI I got...I'm hoping and praying that it's as clear as the mammogram though! My mind goes crazy with these tests...in the back of my mind I'm thinking, "Maybe they haven't called me because it's bad and they don't know how to break it to me"...then the rational side of me says, "Normally, no news is good news...the first MRI I got when I was first diagnosed was done and they called me the day after to tell me they saw something else naughty that they wanted to look at more closely"... Geez...I"m losing my mind... If anyone finds it, let me know, okay?
RMlulu-congrats on getting the first rad done...it will go by quicker than you imagine..just be gentle with yourself and your skin...this will wear you out, but you will do great...I just know it!
CameraKim---that is awesome news! Doing the "happy chair dance" for you!
duckyb1-what a fantabulous idea! Wish I would've done that when I was going through rads..might have made me happy to win some money!
Lisa1637-For me, the dry run was more annoying than the actual rads...but now that you have that out of the way, enjoy your weekend and take charge on Monday! We are here for you!
I got a quick PM from Granny...she's recuperating, but in a lot of pain right now...now sure if she has been on the boards much yet...I have yet to check other threads...Still praying for a fast recovery for her...if any of you don't know her...you gotta get to know here...she is cooler than the back side of my pillow and doesn't take sh*t from anyone! She's a hoot and just an amazing lady!
Have an amazing night all!
Prayers for all preparing for surgery, having surgery, recovery from surgery, going through treatment of any kind, and any other petitions you all may have...
Mar 15, 2013 08:48PM RMlulu wrote:
Good to hear from you....yippee all clear a Happy Dancing:)))
Don't get ahead of the ride...just enjoy dancing for today.
But know the scourge of waiting got good news from mondays earthquaking colonoscopy polyps were B9! A big relief ha!
Night night lumpies...healing dreams speedy recoveries hearts full of joy!
Mar 15, 2013 09:27PM - edited Mar 17, 2013 12:05AM by ElleRusin69
Good evening ladies
Insurance finally approved my MRI had it on Monday afternoon was a nervous wreck till Tuesday am didnt sleep at all with ambien and Ativan I still was wide awake. And Im the size of your average 12 yr old . Dr called very early around 7 am which made me think it was going to be bad news (they said 24 -48 hrs ) I know I know calm down woman. No signs of anything cancerous but numerous papillomas and some calcifications
So I have been too scared to figure out if either of those can be something that could cause me trouble . She my bs wants me to come in and talk about what the next steps are . But I'm just enjoying that crushing fear has left !!! Since November when my breast pain started I've been having intense pain in my L shoulder blade armpit and down into my L hand some days I can't even use it. Nothing I took helped so I was hoping maybe it was a deep cyst that would show up I'm my MRI . So since it was still bothering me I got into see my PCP who after examining me dx me with a pinched nerve sent me back to the imaging center for X-rays of my shoulder and neck. And I have a slipped or bulging disc in my neck so I feel like a fool I thought it was breast related. But she prescribed me something to get me out of pain and a muscle relaxer but I cosider this great news!!! Funny thing I don't remember hurting my neck and don't have neck pain but she said when you get older things start to detiriorate and you can roll over in bed and slip a disc . Note to self try to remain in the same position until you wake up!!! And older?? im 45 and take care of myself because i have to be here for my kids I'm all they've got.. .
So I'm just going to be happy & grateful & count my blessings and avoid reading anything about papillomas or calcifications as Scarlett O'Hara would say " I'm not going to think about that today, I'll think about that tomorrow. 😊 Love & prayers to you all Hope you all have a beautiful weekend and any worries or fears are soon replaced with relief and peacefulness.
(((( huge hugs to you all ))) and thank you for being there for me and trying to calm me down lol!!!
Mar 17, 2013 08:23PM ToriGirl wrote:
Great news ElleRusin69! Hope you were able to enjoy the rest of your weekend!
So happy for the B9 results for you too RMlulu! Another happy chair dance here!
Temperature dropped 30 degrees from yesterday and the wind was fierce today...yuck! But all in all, a good weekend..no complaining from this lumpie! :)
Hope Monday brings us all great things!
Mar 17, 2013 08:45PM ElleRusin69 wrote:
Thank you so much!!! Yes I was able to chill out & spend some quality time with my girl who ironically enough is Tori also. She's almost 18 already- time goes too fast. And we also had 77 degree weather a forest fire and now there's an ice cold wind coming in from the north, Wyoming why must you give us your damn wind??
So yes let's hope they'll be nothing but good results and relief from anxiety all around this site.
Love & Prayers to you all
Have a happy healthy week ladies