We are 222,740 members in 81 forums discussing 156,886 topics.

Help with Abbreviations

Topic: Lumpectomy Lounge....let's talk!

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Feb 19, 2013 10:35PM - edited Feb 26, 2013 01:57AM by ToriGirl

ToriGirl wrote:

WELCOME TO THE LUMPECTOMY LOUNGE!

I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried).  So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell stories, seek advice, give comfort, give high fives and do the happy dance...and just feel free to let out our thoughts about the things that we have all gone through (or all currently going through, or about to go through).

Some of you have just had lumpectomies..some of you lumpectomies plus radiation, others have had lumpectomies, chemo and radiation, and still others who have had the lumpectomy, chemo, radiation and hormonal therapy.  We've all got stories...and with those stories we have questions and concerns and this is the place to put them.....so we can hear from others that have "been there, done that" and can give us a different perspective on all of it.

Let's reach as many folks as we can...I know that there are many out there that are asking, " Is this normal?  Should this be numb?  How am I supposed to sleep after surgery? When does it get better?  Do I need to call the doctor? Should this feel like this?" How is the "new normal" going to feel?  "How am I going to get through the next mammogram or MRI?"

Maybe some of you need some reassurance, maybe some of you need to know that there are others of us out there that can help...and still maybe some of you just need to scream, "My doctor didn't tell me that!"or "This sucks!" or just some nice "choice" words...  

Don't worry...we get it...we understand it...

Weather you are waiting to have your surgery, just got a lumpectomy last week or you got one years ago...share your knowledge and experiences here...

There is no limit to what we can talk about!  :)

Ready?  GO!

"Sorrow carves the opening for joy later..." Dx 6/4/2010, IDC, 1cm, Stage IIA, 1/11 nodes, ER+/PR+, HER2-
Log in to post a reply

Page 910 of 919 (27,567 results)

Posts 27271 - 27300 (27,567 total)

Log in to post a reply

Jun 12, 2019 02:44AM AliceBastable wrote:

I just had my one-year mammogram after last Summer's surgery, which is what insurance covers. I have had a CT and PET scan since surgery, but not because of breast cancer - I just look at those as bonus assurance. But I'd prefer less scanning because of the radiation. As far as ultrasounds, don't they need a target area before one can be ordered? I don't know of any place that would do one just because the patient wants one. And healing tissue in the breast might give a false positive anyway.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Jun 12, 2019 05:15AM edj3 wrote:

Hi JB1165

My breast surgeon will see me six months post-op, and my first follow up mammogram will be when I have my normal annual one. I for one am a little on the glad side to wait, mostly because I think that's going to be uncomfortable. I want the scar tissue to be less dense!

Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 5/31/2019 Whole-breast: Breast
Log in to post a reply

Jun 12, 2019 09:35AM - edited Jun 12, 2019 09:48AM by jackie170108

Just looking for feedback I had lumpectomy and reconstruction and biopsy of three lymph glands removed after being diagnosed with grade 3 hormonal breat cancer of HER 2 came back negative, but one lymph gland was diseased so had all lymph glands removed results tommorow, I am still very uncomfortable with feeling of severe sunburn two weeks after and my breast is still giving out sharp pains here and there breast also feels like sunburn wondering if this is normal

Log in to post a reply

Jun 12, 2019 12:09PM Moderators wrote:

jackie170108, we welcome you to our BCO community. Posting this link, in case it could be helpful: Lumpectomy expectations. It could indeed be the healing process, and the nerve regeneration. But if you have any concerns, you may want to get it checked out by your doctor to make sure there isn't any infection.

Medicating The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Jun 12, 2019 01:16PM jackie170108 wrote:

I have got my check up tomorrow and results so I’ll mention it it wasn’t quite as bad as this although it was a biopsy of lymph glands previously than

Log in to post a reply

Jun 12, 2019 05:08PM - edited Jun 12, 2019 05:10PM by molliefish

I'm happy to report that i totally forgot the 4

th anniversary of my lumpectomy. I think that means I have finally reached a place where i don't think about it all the time. June 8th 2015 was my surgery. follow up with my oncologist today, and all is well... don't have to see him until the fall, and will be discharged from treatment the spring of 2020. I'll be 55 years old :-)

Dx 5/24/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 6/8/2015 Lumpectomy: Left Chemotherapy 8/13/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/9/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast
Log in to post a reply

Jun 12, 2019 05:42PM AliceBastable wrote:

If I didn't have an MO appointment on the one-year anniversary of my lumpectomy, I doubt if I'd remember it. If I concentrate really hard, I can remember most of the dates of various surgeries I've had, but I can't figure out any reason to do so unless I'm filling out medical history forms.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Jun 12, 2019 06:49PM PontiacPeggy wrote:

Molliefish, my five year anniversary of my lumpy is July 23rd. I got off my anastrozole on October 17th. I stay on my Fosamax for at least 6 more months after that. I see my MO in 1 year (June 3 2020). Like you, I don't think about BC all the time, even though I drive cancer patients all the time. Isn't it nice? Congratulations!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
Log in to post a reply

Jun 12, 2019 06:50PM PontiacPeggy wrote:

BTW, I had my first mammogram about 9 or 10 months after my Lx.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
Log in to post a reply

Jun 12, 2019 08:34PM Kjchico wrote:

Getting a little anxious about my lumpectomy on Friday, I know it will be okay, I just hate being put under. Hopefully one day this will be a distant memory.

Log in to post a reply

Jun 12, 2019 10:59PM molliefish wrote:

it it will be I'm sure of it

Dx 5/24/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 6/8/2015 Lumpectomy: Left Chemotherapy 8/13/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/9/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast
Log in to post a reply

Jun 13, 2019 09:36AM edj3 wrote:

If you can, reframe anesthesia as a really great nap (because it truly is).

Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 5/31/2019 Whole-breast: Breast
Log in to post a reply

Jun 13, 2019 10:30AM DogMomRunner wrote:

Kjchico - edj is right, lumpectomy surgery is a great nap. Similar to a colonoscopy. :) The worst part of a colonoscopy is the pre part. Worst part of lumpectomy is the after. Take it easy the rest of the day and the next. Don't do what I did, which was too much and resulted in me fainting, falling and chipping a tooth.

You got this!

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/6/2019 Herceptin (trastuzumab) Chemotherapy 6/6/2019 Taxol (paclitaxel)
Log in to post a reply

Jun 13, 2019 10:35AM edj3 wrote:

Shoot I haven't minded the colonoscopy prep and boy, that is the BEST nap. Plus so far, the all clear message just adds to the relaxation.

Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 5/31/2019 Whole-breast: Breast
Log in to post a reply

Jun 13, 2019 11:39PM Shadow63 wrote:

Good luck and clear margins to you. I had mine last week.

Dx 5/3/2019, DCIS, Left, 1cm, Stage 0, Grade 3, ER+ Surgery 6/3/2019 Lumpectomy: Left Radiation Therapy 7/8/2019 Whole-breast
Log in to post a reply

Jun 14, 2019 01:57AM - edited Jun 14, 2019 01:58AM by ChiSandy

First annual bilateral screening mammo (not diagnostic) since I first got on this hamster wheel: "the kids are all right" till June 2020! I've lost 15 lbs. (intentionally) since I met with the oncoplastic surgeon in January (my original breast cancer surgeon was booked into the next decade), and I'll see if I can lose another 10--then we'll make serious plans for a L reduction so I can be a good, honest DDD on both sides (currently, Thelma--the L one--is an H and Louise--the R, surgical one--is a DDD) So for now I'm a 40G (F, FF, or H, or 42, depending on brand). ThirdLove and Elomi seem to work the best for me without breaking the bank.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
Log in to post a reply

Jun 14, 2019 02:22AM CindyNY wrote:

ChiSandy- congrats on the great mammo results and the weight loss too!

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
Log in to post a reply

Jun 14, 2019 10:43AM PontiacPeggy wrote:

Sandy, great news! That's a big step deciding on the breast reduction. I know you were on the fence about it. And congratulations on the weight loss. Good luck with those next 10 pounds! I'm rooting for you!

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
Log in to post a reply

Jun 14, 2019 11:57AM movingsoccermom wrote:

Good day Ladies,

Thank you all for the many good wishes. Have not had time to catch up on all the logs, soon I hope! I have started on Ibrance and Faslodex, and so far so good, just horrible hot flashes and subsequent weakness from fluid loss. The stupid tumor in my incision is super itchy and I am hopeful that in a month or so that will resolve--still wish I had insisted it be cut out early on. Best wishes for all of you on upcoming surgeries!

All the best!

Dx 3/3/2015, IDC, Right, 2cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 4/1/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 5/27/2015 Whole-breast: Breast, Lymph nodes Dx 5/7/2019, IDC, Right, 2cm, Stage IV, metastasized to lungs, Grade 2, ER+/PR+, HER2- (IHC) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jun 19, 2019 01:51PM Catob1969 wrote:

Hi! Michelle recommended I come on over to the lumpectomy lounge and gather the wealth of information you all have, so here I am!

I was diagnosed in February with IDC grade 2, HER2 - , PR + oncotype 2(very low risk) . The MRI showed the little bugger to be quite diverse in how it was spread through the tissue of the breast. I was told: "Think fingers spreading out, not a lump."

The MO I saw and the SO conferred and decided to put me on Anastrozolex daily for 6 months, with 6 week checks to try to get the little bugger to shrink some so the surgeon would have to take less breast tissue for the lumpectomy to get clean margins. Easy peasy lemon squeezy. No big deal, very curable.

Well, I just saw the MO and the little bugger (per Ultrasound 2 days ago) has grown not shrunk. Pretty scary considering I am on Anastrozole AND it is a slow growing type tumor. The MO is consulting today with the SO for a final decision, but he is leaning toward lumpectomy sooner rather than later.

My head is swirling. From the start I was concerned, confused by and eventually convinced by my expert team that my outcome was the same if I waited and tried to shrink the little bugger or did the lumpectomy/node biopsy immediately. That I couldn't not have the cancer staged, because they were doing the lumpectomy AFTER trying Anastrozole to shrink it was frightening but I trust my MO. Now the little bugger is growing and what was so far off, in October, is suddenly right here: surgery and node biopsy.

I am scared the way it is shaped. Will it be hard getting clean margins. The MO and SO had originally agreed that hey wanted me to wait so the tumor was smaller , to allow the surgeon to take less tissue. So now what am I thinking? "Oh sh*t, its bigger, now how much is coming out during surgery??"

And of course, as our heads do, we worry and wait and worry some more. I am thinking about the node biopsy. All of my care team was happy to wait to do the biopsy until October, but if the little bugger is growing not shrinking, my brain is yelling "Oh crap, the nodes!! What if?".

I am not sure I actually have a question; more of a lump of fear in my throat that is larger than the little bugger in my boob.

If you are still here, thanks for reading my ramble, and thanks for being here :)

Catherine


Dx 2/20/2019, IDC, Right, 5cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 4/2/2019 Surgery Lumpectomy: Right; Lymph node removal
Log in to post a reply

Jun 19, 2019 02:29PM PontiacPeggy wrote:

Catob1969, how interesting that you were put on anastrozole to shrink your BC. I've never heard of it being used in that role (not that I'm an expert). It is used for suppression of hormones to prevent BC from recurring. Chemo is usually used to shrink BC prior to surgery or afterwards. I find this baffling. I'm sure ladies with more knowledge will pipe in with more information.

If you are having a lumpectomy, then normally a SLNB is done at the same time. It seems to me (again, no expert) that your team has done things in reverse order from what I'm familiar with. My oncotype was done on the BC that was removed during surgery although the original biopsy was tested for ER/PR as I recall.

Where do you live? Sometimes different regions/countries do things differently than in the US. Sometimes big cancer centers do things differently.

Wishing you loads of luck and many HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
Log in to post a reply

Jun 19, 2019 05:29PM IamNancy wrote:

Ladies - how long were you on arimidex? and what was your doctors reasoning for the length of time you took it?I have been on it almost 6 yrs... doctor said take it for 10 yrs... I am losing my hair and blaming the pill (dr doesn't think its the pill but I do) - at 68 I really wonder if I need to take this for 10 yrs - I don't relish the idea of being bald ... but am scared to stop taking it if its still doing me any good..

oncotype 25 Dx 11/2012, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+ Surgery 12/10/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 2/4/2013 Lumpectomy: Right Chemotherapy 2/12/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/13/2013 Breast Hormonal Therapy 7/7/2013 Arimidex (anastrozole)
Log in to post a reply

Jun 19, 2019 07:10PM PontiacPeggy wrote:

IamNancy, I've been on Arimidex for nearly 5 years. My MO says 5 years is enough (and even the one in Pontiac whom I didn't like nearly as much or trust quite as much said 5) with my diagnosis. I'll be 74 in 3 weeks. He thinks that the possible harm to my bones is greater than the return of my BC. So in October I'll be ending it. I will stay on Fosamax for another 6 months or so and see him again next June.

Now as for hair, I was losing my hair when I started this mess. My paternal grandmother had thinning hair with a receding hairline. I think maybe Arimidex has made it somewhat worse but I can't say for sure. Other than that not much to complain about.

Good luck deciding what to do. It certainly isn't black and white, is it?

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
Log in to post a reply

Jun 20, 2019 12:43AM Scorpiox2 wrote:

My doctor has indicated I may be a candidate for focused radiation which is twice a day for 5 days. Has anyone had this type of radiation? If so, what, if any were the side effects?

Dx 5/23/2019, IDC, Left, 2cm, Stage IA, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Jun 20, 2019 01:53PM IamNancy wrote:

thanks PontiacPatty - your answer gave me something to think about.... its a hard decision but I will mention the bone damage to my doctor (I do have that) and she might be more interested in that than she was about the hair loss...

oncotype 25 Dx 11/2012, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+ Surgery 12/10/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 2/4/2013 Lumpectomy: Right Chemotherapy 2/12/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/13/2013 Breast Hormonal Therapy 7/7/2013 Arimidex (anastrozole)
Log in to post a reply

Jun 20, 2019 04:29PM Catob1969 wrote:

hi @PontiacPeggy


I am on the East Coast in Rhode Island. My doctors are in Boston.


I thought it sounded backwards too! Now that it didnt shrink, (they told me they were starving the tumor) I am more than a little concerned,

I do have an appointment with the surgeon next Wednesday. How do you ask a Doctor : How sure you can get clear margins on a spiculated mass? :(

Dx 2/20/2019, IDC, Right, 5cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 4/2/2019 Surgery Lumpectomy: Right; Lymph node removal
Log in to post a reply

Jun 20, 2019 05:13PM PontiacPeggy wrote:

Catob1969, How to make sure you get clear margins in your case? I really don't know. But ask. It's your body and you deserve an answer. And don't let them pat you on the head and say don't worry your pretty little head over it. Demand answers. Be sure you are writing down all your questions or you'll never remember them (voice of experience). Good luck and let us know what you find out.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
Log in to post a reply

Jun 20, 2019 05:26PM Mymomsgirl wrote:

Catob does your BS work with a PS? I find if they do they often recommend a consult with them too. I was probably going to have a divot in my chest so I did reconstruction at the same time. I told my BS to go big, take what you need and then take a little more. I think sometimes they don't want to leave you with a deformity if they have to take a large amount of tissue, but if a PS is involved they might be a little more aggressive. As Peggy said ask the questions and if you are not getting answers you might want to get a second opinion.

DX @ 47, the same age as my mother. Surgery was Oncoplastic with IORT and my Oncotype score is a 9. Dx 10/29/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Radiation Therapy 12/17/2018 Whole-breast: Breast Surgery 12/17/2018 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/23/2019 Whole-breast: Breast Hormonal Therapy 3/18/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 22, 2019 09:14PM ChiSandy wrote:

Catob, where in Boston are your doctors? I can’t believe MGH or Dana Farber would suggest such a bass-ackwards plan. AIs are to starve residual estrogen-dependent cells that may be hiding out after surgery, radiation, and perhaps chemo. Neoadjuvant (pre-surgical) treatment is usually for a solid tumor too big to remove, as well as to gauge response to a particular chemo regimen. Tumors get “shrunk” by either radiating them away or more commonly, KILLING enough of their cells with chemo—literally, cytotoxic aka “cell-poisoning” drugs—until they’re small enough to surgically remove cleanly. AIs “starve” cells of estrogen to keep them from replicating. Only chemo or radiation can actually KILL the cells in a tumor. Get a second opinion, IMHO

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
Log in to post a reply

Jun 22, 2019 11:21PM - edited Jun 22, 2019 11:23PM by ChiSandy

As to the “spiculated" mass, know that a plurality, if not a majority, of invasive ductal carcinomas have spiculations —even the small ones. (Mine showed up on the mammo I took just before my radioactive seed placement—I hadn't seen it on prior imaging; and the surgeon got clean margins). An early-stage, slow-growing (did you say your Oncotype was only 2?) IDC doesn't go snaking through the ducts. There's something they're not telling you, or insufficiently explaining. Chemo likely wouldn't work on such an “indolent" ER+ tumor, so that's not why they're giving it to you neoadjuvantly. Either the tumor is of a different type, or at its present size would not leave you much breast tissue if removed completely. Again, tumor cells get “killed" by the oxidative destructive stresses that chemo or radiation inflict. “Starving" a whole tumor of estrogen doesn't kill it, and is unlikely to shrink it. You “starve" cells that might have been left behind or hiding out elsewhere after surgery & radiation and would not be vulnerable to chemo (or further post-op chemo). That's why AI therapy is 5-10 years.

Have you considered mastectomy? Maybe your doctors think you are so set on breast conservation (lumpectomy) surgery that they are hesitant to suggest the obvious alternative. (I'm a “less is more" kinda gal, but in this case, if it were me I'd have reluctantly opted for either mastectomy or extensive removal with immediate oncoplastic reconstruction).

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)

Page 910 of 919 (27,567 results)