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Topic: Lumpectomy Lounge....let's talk!

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Feb 19, 2013 10:35PM - edited Feb 26, 2013 01:57AM by ToriGirl

ToriGirl wrote:

WELCOME TO THE LUMPECTOMY LOUNGE!

I've searched and searched BC.org and couldn't find a specific post just for those of us who have had lumpectomies (unless there was one and it got buried).  So, I thought that it was about time that we had our own place that we can come to...where we can discuss, ask questions, tell stories, seek advice, give comfort, give high fives and do the happy dance...and just feel free to let out our thoughts about the things that we have all gone through (or all currently going through, or about to go through).

Some of you have just had lumpectomies..some of you lumpectomies plus radiation, others have had lumpectomies, chemo and radiation, and still others who have had the lumpectomy, chemo, radiation and hormonal therapy.  We've all got stories...and with those stories we have questions and concerns and this is the place to put them.....so we can hear from others that have "been there, done that" and can give us a different perspective on all of it.

Let's reach as many folks as we can...I know that there are many out there that are asking, " Is this normal?  Should this be numb?  How am I supposed to sleep after surgery? When does it get better?  Do I need to call the doctor? Should this feel like this?" How is the "new normal" going to feel?  "How am I going to get through the next mammogram or MRI?"

Maybe some of you need some reassurance, maybe some of you need to know that there are others of us out there that can help...and still maybe some of you just need to scream, "My doctor didn't tell me that!"or "This sucks!" or just some nice "choice" words...  

Don't worry...we get it...we understand it...

Weather you are waiting to have your surgery, just got a lumpectomy last week or you got one years ago...share your knowledge and experiences here...

There is no limit to what we can talk about!  :)

Ready?  GO!

"Sorrow carves the opening for joy later..." Dx 6/4/2010, IDC, 1cm, Stage IIA, 1/11 nodes, ER+/PR+, HER2-
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Posts 28141 - 28170 (28,170 total)

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Jan 18, 2021 09:21PM ChiSandy wrote:

Yup--the only wireless pull-on/step-in bras I've been able to stuff my girls into are the Puma 2-pack in 2XL from Costco.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
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Jan 19, 2021 07:57PM CindyNY wrote:

My niece is a jogger, and when she wears a sports bra it's always much smaller than she is. The intent is to smush, and keep movement to a minimum. She used to run marathons and I've seen her sports bra that I couldn't get into (I'm an A, she's a D). She used to have her mom help her. Hers were for true sport, not casual wear.

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
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Jan 19, 2021 10:38PM ChiSandy wrote:

The more "veteran" LX ladies here have heard this before, but when I was getting my LX, I wore a 38 or even 40 I bra. My surgeon's NP warned me not to freak out if I awoke in the recovery room swathed in giant ACE bandages. When I awoke, I was relieved to find that not to have been the case. Instead, "Thelma & Louise" were stuffed into (and flowing over from) a white high-back Royce surgical bra--size XL. (The site says that should accommodate up to a 38D. Hahaha). I was so happy to be able to discard it after 48 hrs. For the first three weeks or so, I just wore Amoena shelf-bra camisoles in size 18 or even 20. Still have them--use them with bikini bottoms for swim.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
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Jan 20, 2021 02:07PM edj3 wrote:

Yeah if I can get a sports bra over my shoulders, it's not going to do anything for my breasts when running. My sports bras have adjustable shoulder straps, and chest strap and my breasts do not move.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 20, 2021 02:21PM Frap wrote:

I'm contemplating a lumpectomy with a reduction reconstruction for balance. I welcome your journey's recovery time, STD and/or LTD, satisfactions, regrets, struggles? Lots of brave women out there I commend you all and pray for all you've had to endure.

Dx 7/5/2019, IDC, Right, <1cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- (IHC) Targeted Therapy Verzenio Hormonal Therapy Arimidex (anastrozole)
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Jan 20, 2021 03:05PM quinnie wrote:

Frap: Sorry you had to join this group but we can be of great hope and help throughout your journey. I had a lumpectomy and reduction/lift due to having BC on both sides. For me the surgery was a breeze. I never even took pain meds. I was sore and stiff and wasn't able to lift for 4-6 weeks over a gallon of milk. I continued to walk, but not do yoga or any lifting. The wounds healed well. I was worried since I had radiation on the R side 13 years ago and that can affect the healing but it healed beauitifully. I did have the best plastic surgeon!! I wore the surgical bra for a week or so then changed over to a sports bra. I can't believe it's been 9 months ago. Good luck with your decision and let us know.

Dx 11/30/2007, DCIS, Right, 1cm, Stage 0, Grade 2, 0/0 nodes, ER-/PR- Dx 2/26/2020, IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Radiation Therapy 5/13/2020 Whole-breast: Breast Hormonal Therapy 5/24/2020 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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Jan 21, 2021 08:32AM Frap wrote:

Quinnie: Thank you for your valuable input and encouragement. Wishing you many blessings on your journey.

Dx 7/5/2019, IDC, Right, <1cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- (IHC) Targeted Therapy Verzenio Hormonal Therapy Arimidex (anastrozole)
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Jan 25, 2021 03:32PM Springdaisy wrote:

Hello, I need some help please. I just started taking Letrozole manufactured by Accord about one month ago. I picked up my new supply today and it has the name Teva on the container. So far with the Accord LT pills I’ve had no problems no hair loss so I hope it stays that way. But is it usual that your pharmacy will change manufacturers? I got a 90 day supply and my insurance pays for it but $744. I think that’s terrible. Other countries take better care of their citizens then what the United States does. It’s all about greed. The manufacturers probably overcharge pharmacies, I have read pharmacies make money on the drugs they sell, and of course then it goes to the insurance companies. I think that’s terrible. Anyway should I be concerned about TEVA and if anybody is taking it did that cause hair loss?

Thank you for your time and I hope everyone is doing well.



Dx 9/2020, ILC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Radiation Therapy Hormonal Therapy
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Jan 25, 2021 03:46PM PontiacPeggy wrote:

I took Anastrozole not Letrozole. And for 4 of my 5 years I took the Teva manufactured generic. Then Teva had manufacturing problems and I was switched to different manufacturers. The manufacturer isn't the problem in hair loss. It is the drug itself. It is doing what it is supposed to - suppress all estrogen. And it does. I'm on Medicare with a separate drug plan and my anastrozole was very affordable for 90 days. Even a year after I last to anastrozole, I am still losing hair but my grandmother also had a receding hairline so part of it is likely genetic. Better to lose hair than have BC come back IMHO.

HUGS!

Peggy. Diagnosed age 68., Oncotype 13. Everything is doable - not easy, but doable. Dx 6/5/2014, IDC, <1cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- Dx 7/23/2014, DCIS, <1cm, Stage I, Grade 1 Surgery 7/23/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 9/2/2014 Breast Hormonal Therapy 10/17/2014 Arimidex (anastrozole)
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Jan 25, 2021 03:52PM Springdaisy wrote:

thank you for your information. And, yes,I don’t mind losing a little hair as long as the cancer stays away.

Dx 9/2020, ILC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Radiation Therapy Hormonal Therapy
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Jan 25, 2021 03:57PM cm2020 wrote:

Last year by the time I started on Letrozole I had met the out of pocket max for the year so Letrozole didn't cost me anything. I have to refill it later this week and am so scared to see what it is going to cost, even with insurance. My insurance has a high deductible so they pay nothing until I have met that. I am desperately hoping they highly discount it, otherwise I am going to have to stop taking it. No way can I afford it on my own. I am already making myself sick over it.

Dx 3/20/2020, IDC, Right, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC) Dx 4/2/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 4/5/2020 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 4/25/2020 Femara (letrozole) Radiation Therapy 6/10/2020 Whole-breast: Breast, Lymph nodes
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Jan 25, 2021 03:59PM Springdaisy wrote:

I am retired and my insurance is covering it but I think it’s just terrible. Norway and Sweden have high tax rates and after that everything is paid for and their citizens claim they do not have a problem paying high taxes because they are so well taken care of. And here in the US it’s nothing but greed. Anyway, I looked at the GoodRx app but I’m wondering how they can have such a steep discounts. If my insurance stop paying for it for some reason I will have to try other avenues I guess.

Dx 9/2020, ILC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Radiation Therapy Hormonal Therapy
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Jan 25, 2021 04:06PM cm2020 wrote:

I would gladly pay higher taxes to not hold my breath with every medical procedure. I am having carpal tunnel surgery on both hands in 3 weeks and am worried about what my portion will be. They won't even do the surgery until both the surgery center and surgeon are paid in full. I don't know I will do. Plus there are the surprise medical bills like the anesthesia group that isn't on my insurance plan but I have no control over. Oh I had forgotten about GoodRx and paying for Letrozole. Thanks for the reminder. Dealing with cancer should be all we have to deal with, not the expense of it too.

Dx 3/20/2020, IDC, Right, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC) Dx 4/2/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 4/5/2020 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 4/25/2020 Femara (letrozole) Radiation Therapy 6/10/2020 Whole-breast: Breast, Lymph nodes
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Jan 25, 2021 04:57PM ChiSandy wrote:

Holy crap! My Accord letrozole is <$9/mo co-pay on Medicare Part D.

I chose the little independent pharmacy (which has a kosher-style deli up front) where I buy it because it could get Teva at first . Then their distributor switched to Roxane. Of all mfrs. of letrozole (including Novartis' original Femara), Roxane has the fewest "excipients" (inert ingredients) that could cause sensivities & intolerances. Teva --made in Israel, not China or India--is a close second. Unfortunately, Roxane was bought by WestWard, which stopped making letrozole. So that's why I'm taking Accord. My thinning hair had already begun before diagnosis, as I was a decade post-menopausal at the time. The slight acceleration is not caused directly by anything in the drug, but instead its intended purpose: preventing manufacture of estrogen via inhibiting the action of the enzyme aromatase (which is the catalyst for converting an androgen made by the adrenals & fat cells into a form of estrogen). So that tells me the stuff is working as intended.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
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Jan 25, 2021 05:01PM Springdaisy wrote:

The $744 was for a 90 day supply but wow.


Dx 9/2020, ILC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Radiation Therapy Hormonal Therapy
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Jan 25, 2021 05:03PM Springdaisy wrote:

Do you guys think I should check around at different pharmacies? Even though my insurance is paying for it, should I still check around?


Dx 9/2020, ILC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Radiation Therapy Hormonal Therapy
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Jan 25, 2021 05:06PM ChiSandy wrote:

Look at your plan's list of "preferred" pharmacies. A year ago I would have said to consider mail-order if your plan offers it (before Medicare, my plan required it), but until DeJoy is in DeJail I wouldn't trust the USPS to deliver anything safely & timely.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
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Jan 25, 2021 05:07PM Springdaisy wrote:

OK good I will take your advice. I am new at this stuff. And yes I agree about deJoy

Dx 9/2020, ILC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Radiation Therapy Hormonal Therapy
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Jan 25, 2021 05:14PM Springdaisy wrote:

well that was interesting. I went to my insurance website and looked at my prescription coverage and the bottle that had 30 pills for January was only $18. The $744 was on the sheet that I got from the pharmacy. Isn’t that interesting. So that makes me wonder who do they charge the $744 to? Weird

Dx 9/2020, ILC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Radiation Therapy Hormonal Therapy
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Jan 25, 2021 05:20PM cm2020 wrote:

Springdaisy...you are giving me hope. The pharmacy sheet that comes with mine says it is 940 for 3 months. I desperately hope my insurance is going to reduce that down a whole heck of a lot.

Dx 3/20/2020, IDC, Right, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC) Dx 4/2/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 4/5/2020 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 4/25/2020 Femara (letrozole) Radiation Therapy 6/10/2020 Whole-breast: Breast, Lymph nodes
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Jan 25, 2021 05:21PM Springdaisy wrote:

yes, good luck to us all! We don’t need more things to think about.



Dx 9/2020, ILC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Radiation Therapy Hormonal Therapy
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Jan 25, 2021 07:22PM quinnie wrote:

cm2020. I just lost my COBRA and have the wonderful Affordable Health Care insurance (not affordable and covers nothing). I am on letrozole and with GoodRx only pay 6.05 a month. Look into Good Rx and I am sure you will have the same result as I have. Good Luck

Dx 11/30/2007, DCIS, Right, 1cm, Stage 0, Grade 2, 0/0 nodes, ER-/PR- Dx 2/26/2020, IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Radiation Therapy 5/13/2020 Whole-breast: Breast Hormonal Therapy 5/24/2020 Femara (letrozole) Radiation Therapy Whole-breast: Breast
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Jan 25, 2021 07:53PM cm2020 wrote:

quinnie...Thank you very much! I just took a quick look and the prices vary widely depending on the store you use. The pharmacy I currently use is the most expensive, by far (over 300 for 90 days)! So if I have to go the GoodRx route I will move the script to another pharmacy (cheapest for 90 days supply is around 30...perfectly doable thank heavens).

Dx 3/20/2020, IDC, Right, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC) Dx 4/2/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 4/5/2020 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 4/25/2020 Femara (letrozole) Radiation Therapy 6/10/2020 Whole-breast: Breast, Lymph nodes
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Jan 26, 2021 02:14AM ChiSandy wrote:

I take Dexilant, which though it's come off patent, thanks to Takeda is still available only by prescription in the U.S. GoodRx did the math and told me my Part D co-pay would be less than the coupon price. So I buy it online from a pharmacy in a suburb of Vancouver (Surrey--where we used to ride around in circles so Bob could finish smoking his Cuban cigar before crossing back to the US). Bob faxed a prescription, and a local FP reissues it. $900 for 90 days on GoodRx, $600 co-pay through (in)Humana Part D...and $380 from Canada. Duh.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
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Feb 13, 2021 09:02AM Martaj wrote:

My one year anniversary since partial mastectomy, reconstruction with lymph node removal. Stage 3 TNBC. No evidence of disease

Dx 7/8/2019, IDC, Right, 2cm, Stage IIIB, Grade 3, ER-/PR-, HER2- (IHC) Chemotherapy 8/9/2019 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Chemotherapy 8/9/2019 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 2/13/2020 Lymph node removal: Right, Sentinel; Mastectomy: Right; Reconstruction (left); Reconstruction (right) Surgery 2/13/2020 Lumpectomy; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 3/9/2020 Breast, Lymph nodes, Chest wall
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Feb 13, 2021 10:11AM edj3 wrote:

WoooHOO!

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 13, 2021 10:57AM Rain88 wrote:

Fantastic, Martaj! 🤗

Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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Feb 13, 2021 11:38AM cm2020 wrote:

Martaj...Yay!!! I hope you are doing something special to celebrate today.

Dx 3/20/2020, IDC, Right, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC) Dx 4/2/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 4/5/2020 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 4/25/2020 Femara (letrozole) Radiation Therapy 6/10/2020 Whole-breast: Breast, Lymph nodes
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Feb 13, 2021 07:04PM CeliaC wrote:

Great news, Martaj! Treat yourself to something nice in celebration!

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/21/2017 Whole-breast: Breast Hormonal Therapy 4/5/2017 Arimidex (anastrozole)
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Feb 13, 2021 08:39PM ChiSandy wrote:

Mazel tov, Martaj!

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)

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