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Topic: AUGUST 2015 SURGERY SISTERS!!

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Jul 14, 2015 05:08PM - edited Sep 27, 2015 09:17AM by mjh1

mjh1 wrote:

Hello my warrior sisters,

August is already just around the corner so I thought I would start a thread for those of us having surgeries in August.

I'm having my 2nd revision end of August where I will be switching my implants and some FG due to persistent rippling (my nemisis) and a rotated implant.

Whether you're having a BMX, UMX, revision, exchage or just want to share your experience and offer advice and/or thoughts, I hope you'll join. Just tell me your surgery dates and I'll keep a running list of everyone's date.


8/3 - Taloula7615 - BMX
8/3 - katcar0001 - Exchange
8/3 - JO-5 - Skin graft
8/4 - Suzy1067 - BMX
8/4 - Windermeremom - BMX
8/5 - marathongirl - UMX w/direct
8/6 - Justamy - Revision
8/6 - Artista928 - BMX w/TE

8/6 - peebles - MX
8/7 - quiltlibrarian - PMX
8/7 - Nibblersmom - LX

8/10 - Kris_L - BMX w/direct
8/12 - shorfi - Revision
8/12 - Scotland - UMX
8/12 - BDawk - BMX w/TE
8/13 - Ringelle - BMX
8/13 - quiltowl5 - BMX w/DIEP
8/13 - sgabbert - BMX
8/14 - MizMimi - LX
8/14 - HazelFrances - BMX
8/17 - mkinoly - UMX
8/17 - grace1366 - BMX w/TE
8/18 - rleepac - BMX w/TE
8/18 - dimccleland - UMX
8/18 - chocomouse - UMX

8/19 - AudreyB - Exchange
8/19 - Summerfun - LX
8/20 - Carrie37 - BMX w/TE
8/20 - mustlovepoodles - LX
8/20 - Pat307 - BMX w/Lat Flap
8/20 - bjclaywell - LX
8/20 - tessu - UMX
8/21 - AJ71 - BMX w/TE
8/21 - tuckerdan - BMX w/Lat Flap
8/22 - KarolineH - Revision
8/22 - eamazing - MX w/Flap
8/25 - Js5 - BMX w/DIEP
8/25 - radgal - LX

8/25 - mommadigs - BMX
8/27 - hummingbirdlover - Exchange
8/28 - SummerAngel - Exchange
8/28 - georgie61 - BMX w/TE
8/28 - dobbin - MX
8/28 - vogliodipiu - LX
8/28 - sknitter - BMX w/TE
8/31 - mjh1 - Revision w/FG
8/31 - Kimmer33 - UMX
9/1 - 39andhip - UMX w/DIEP
9/4 - Molly50 - UMX w/TE

Dx 1/2014, DCIS, Both breasts, <1cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+ Dx 1/2014, LCIS, Both breasts, 0/1 nodes Surgery 2/26/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 12/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 8/31/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Jul 14, 2015 09:22PM justamy wrote:

Hello everyone! I think I have posted on nearly every surgery board this year with my 4 surgeries and rescheduling etc. I am getting ready for a revision on August 6. I do not feel confident in my PS at all and am about to just throw in the towel. My foobs are basically flat. They are maybe a B cup but the implants are all spread out so they do not look like it. My PS says he can only go up about a cup and that the rippling is just something I have to live with. He hasn't even suggested fat grafting or alloderm. I am kinda stuck with him though since I live in a small town and the city my surgeon is in Only has two PS groups... Only one my insurance accepts. Anyway...I'm praying for the best. I just had my 1 year anniversary of w I found out I had cancer... So much in a year...this is just another step. Welcome to everyone...can't wait to meet you all!

"I can do all things through Christ who strengthens me." Philippians 1:8 Dx 7/18/2014, IDC, Right, 4cm, Stage IIA, Grade 1, 0/6 nodes, ER+/PR+, HER2- Dx 7/18/2014, IDC, <1cm, Stage IIA, Grade 1, 0/6 nodes, ER+/PR+, HER2- Chemotherapy 8/20/2014 AC Chemotherapy 10/19/2014 Taxotere (docetaxel) Surgery 2/2/2015 Mastectomy: Right Surgery 2/2/2015 Prophylactic mastectomy: Left Surgery 2/9/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 2/16/2015 Aromasin (exemestane) Surgery 3/25/2015 Reconstruction (left); Reconstruction (right) Surgery 8/5/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 14, 2015 10:14PM quiltlibrarian wrote:

Hello Ladies, August 7. Preventive mastectomy on the left, DCIS on the right and removed last August. Not ready for reconstruction yet. I will be glad when this is done.

Hugs to all

Dx 7/2014, DCIS, Right, 6cm+, Stage 0, Grade 1, 0/3 nodes Surgery 8/20/2014 Lymph node removal: Right, Sentinel; Mastectomy: Right Surgery 8/7/2015 Mastectomy: Left; Prophylactic mastectomy
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Jul 15, 2015 09:59AM dimccleland wrote:

Hi All,

My surgery is scheduled for August - I don't have an exact date yet but probably the third week. I completed 26 weeks of chemo today. The reasoning behind having chemo first was to try and shrink my tumour as much as possible with the aim of having a lumpectomy but I found out yesterday that we are not going to be able to save my breast so a mastectomy it is.

Trying not to think about it too much as I can only see my BS when she gets back from holiday on the 5th of August. Must admit though that I am feeling very emotional and incredibly overwhelmed at the moment - this is such a huge decision!!

Look forward to participating in this thread and supporting you all on your journey.

Take care

Di x

Dx 12/10/2014, IDC, Left, 6cm+, Stage IIIC, Grade 3, 1/6 nodes, ER-/PR-, HER2- (FISH) Targeted Therapy 1/20/2015 Herceptin (trastuzumab) Targeted Therapy 1/21/2015 Perjeta (pertuzumab) Chemotherapy 1/21/2015 Taxol (paclitaxel) Chemotherapy 4/22/2015 AC
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Jul 15, 2015 10:19AM SummerAngel wrote:

Hi all, I'm scheduled for my exchange surgery on August 28th. Super excited for it!

Age at dx: 45. Oncotype, left-side tumor: 9. Right side had multifocal IDC and "extensive" LCIS. Isolated tumor cells in 1 right-side node. Dx 4/3/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 4/27/2015, IDC, Right, 1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 6/1/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right Surgery 6/1/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/27/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/3/2015 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Jul 15, 2015 11:22AM mjh1 wrote:

justamy - I'm right there with you about being in every thread.  what are you having done in your revision??  If he hasn't brought up FG or alloderm, did you ask him about it??  I know how frustrated you feel. Have you thought of maybe going for another opinion in another city and/or state that's within your insurance??  Have you tried looking on realself.com for a PS.  Even if they don't take your insurance, some do offer free consults. 

quiltlibrarian, dimccleland and summerangel - welcome to the thread!!

dimccleland - congrats on completing chemo!!!  It is completely normal for you to feel emotionally drained and completely overwhelmed especially when you find out you need a different surgery than expected.  You've come to the right place.  No one understands more of what you're going through than your fellow warrior sisters.   We are here when you need to lean on us and need to be lifted.

Dx 1/2014, DCIS, Both breasts, <1cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+ Dx 1/2014, LCIS, Both breasts, 0/1 nodes Surgery 2/26/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 12/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 8/31/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Jul 15, 2015 12:56PM AudreyB wrote:

Hi everyone!

Justamy, it is so nice to run into you again, although I truly wish you didn't have to be here.

I had my exchange pre-op with PS today. He is ordering Sientra Smooth Round High Projection implants, 15.1cm width, 4.9cm projection, 655cc, reference # 10521-655HP.

I will be having my exchange surgery August 19. It can't get here fast enough.

Blessings to all.

Surgery 2/5/2015 Lumpectomy: Left, Right Dx 2/16/2015, DCIS, Right, Stage 0, 0/2 nodes Dx 2/16/2015, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 2/16/2015, LCIS, Right Surgery 3/2/2015 Lymph node removal: Left, Sentinel Surgery 5/5/2015 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 5/31/2015 Arimidex (anastrozole) Surgery 8/19/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 3/3/2016 Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery 9/20/2016 Reconstruction (left) Surgery
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Jul 15, 2015 09:17PM mjh1 wrote:

Audrey - Yay, you'll soon be on the squishy side.  It will be such a relief when you get those rocks off your chest.  The exhange is a relatively smooth surgery, and this time shouldn't be quite as challenging trying to wipe after using the lu....lol.  Yes, even I can remember those days way back when but glad I can laugh about it now.

Dx 1/2014, DCIS, Both breasts, <1cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+ Dx 1/2014, LCIS, Both breasts, 0/1 nodes Surgery 2/26/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 12/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 8/31/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Jul 16, 2015 07:52AM - edited Jul 16, 2015 07:55AM by shorfi

This Post was deleted by shorfi.
Dx 8/31/2004, IDC, Left, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 6/19/2013, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Dx 8/1/2013, IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- (IHC)
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Jul 16, 2015 08:17AM hummingbirdlover wrote:

Hi ladies,

I would love to climb on board!  I am scheduled for my exchange surgery on August 27th and I can't wait to get rid of this coconut bra!!

Happy thoughts to all of you!

Oncotype score 17. God never gives us more than we can handle! Dx 9/23/2014, IDC, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 10/22/2014 Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 11/17/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/19/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/27/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 16, 2015 03:25PM mjh1 wrote:

shorfin and humingbirdlover - welcome to the thread!!  I was drinking coconut water just as I was reading your post and burst out laughing.  I've heard many terms for the appendages we wear after MX, but coconut bra is the first.  Good thing I wasn't drinking coconut milk....lol. 

Dx 1/2014, DCIS, Both breasts, <1cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+ Dx 1/2014, LCIS, Both breasts, 0/1 nodes Surgery 2/26/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 12/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 8/31/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Jul 16, 2015 06:01PM AudreyB wrote:

lol. Now that was funny.

Surgery 2/5/2015 Lumpectomy: Left, Right Dx 2/16/2015, DCIS, Right, Stage 0, 0/2 nodes Dx 2/16/2015, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 2/16/2015, LCIS, Right Surgery 3/2/2015 Lymph node removal: Left, Sentinel Surgery 5/5/2015 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 5/31/2015 Arimidex (anastrozole) Surgery 8/19/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 3/3/2016 Reconstruction (left): Nipple tattoo; Reconstruction (right): Nipple tattoo Surgery 9/20/2016 Reconstruction (left) Surgery
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Jul 17, 2015 06:08AM shorfi wrote:

Thanks for the welcome. Yes, that was too funnyLoopy

Dx 8/31/2004, IDC, Left, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 6/19/2013, DCIS, Right, 1cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Dx 8/1/2013, IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- (IHC)
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Jul 17, 2015 09:51PM Js5 wrote:

hi Everyone!

I would like to join this board. I was following the July board as my original date was July 1 for lumpectomy but I decided to have BMX with immediate DIEP reconstruction. My surgery date is now August 25. Had my consult with ps today and it went well. Waiting to hear if CT scan confirms that they can do this surgery. A little nervous that ps said new breasts may be smaller as I don't feel like I am that big to begin with and wanted to stay same size. I guess it is a small price to pay to get rid of cancer, right?

Dx 5/28/2015, DCIS, Left, Stage 0, Grade 3, ER+/PR+ Surgery 8/25/2015 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jul 17, 2015 10:04PM justamy wrote:

Js5, it is a small price to pay to get rid of cancer but be sure you are OK with everything before you go under. I would tell the PS that it is important to you to keep the size about what you are now. I only say that because my PS said I would be the same size and I ended up being a B cup (a cup smaller). Now I am going in for revision. I thought it wouldn't matter to me but I don't feel right. I'm sure your PS will do great and I have implants which is way different. I just wish I would have stressed the importance of size so I could save myself a surgery

"I can do all things through Christ who strengthens me." Philippians 1:8 Dx 7/18/2014, IDC, Right, 4cm, Stage IIA, Grade 1, 0/6 nodes, ER+/PR+, HER2- Dx 7/18/2014, IDC, <1cm, Stage IIA, Grade 1, 0/6 nodes, ER+/PR+, HER2- Chemotherapy 8/20/2014 AC Chemotherapy 10/19/2014 Taxotere (docetaxel) Surgery 2/2/2015 Mastectomy: Right Surgery 2/2/2015 Prophylactic mastectomy: Left Surgery 2/9/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 2/16/2015 Aromasin (exemestane) Surgery 3/25/2015 Reconstruction (left); Reconstruction (right) Surgery 8/5/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 18, 2015 04:52PM mjh1 wrote:

Js5 - Welcome to the thread!!!  I agree with Justamy that you should stress to your PS what your expectations are for your final result and if he can meet them.  When he says "smaller", ask him to show you by using sample implants he has in office so you can get a visual (even if you're not having implants put in) or maybe bring in some pictures from magazines.  A,B, and C cup mean different things to different people so it's better to try to get a visual.  Do not be afraid to ask questions.  This is a result you will have to live with, not him.  I do not know much about DIEP, but there is a DIEP 2014 thread that may have better answers for you in regard to specific questions.  I posted the link below and you can also search for DIEP to see what other threads are out there.  Hope the CT scan clears you for surgery.

https://community.breastcancer.org/forum/44/topic/816167?page=226#post_4442902

Dx 1/2014, DCIS, Both breasts, <1cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+ Dx 1/2014, LCIS, Both breasts, 0/1 nodes Surgery 2/26/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 12/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 8/31/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Jul 22, 2015 08:53AM quiltlibrarian wrote:

hi ladies. I am trying to get stuff ready for after surgery. Does anyone know a good list to have? I know about the alcohol wipes. button up shirts.

Suggestion or on this site list.

Thank you.

This week preadmission for me

Dx 7/2014, DCIS, Right, 6cm+, Stage 0, Grade 1, 0/3 nodes Surgery 8/20/2014 Lymph node removal: Right, Sentinel; Mastectomy: Right Surgery 8/7/2015 Mastectomy: Left; Prophylactic mastectomy
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Jul 22, 2015 10:02PM mjh1 wrote:

quiltlibrarian - since you're not having immediate recon, you're recovery should b much quicker than if u had TE put in at time of MX. This only thing you should have on hand is a stool softener like miralax which u will need if you're going to b taking a lot of script pain meds n something to hold that drains. I used a lanyard that I had around my neck that I attached the drains to or a lot of women use Velcro drain pockets that they attach to their clothing. U may also want to have some baby wipes on hand because u may not b able to shower until the drains come out. That is all dependent on your BS.

Dx 1/2014, DCIS, Both breasts, <1cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+ Dx 1/2014, LCIS, Both breasts, 0/1 nodes Surgery 2/26/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 12/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 8/31/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Jul 23, 2015 10:58PM Artista928 wrote:

Checking in although there is another thread https://community.breastcancer.org/forum/91/topic/... titled August surgeries.

8/6 is my date, bilat mxs with TE implants in the same time. It's 2 weeks from today. Am getting quite prepared, many thanks to this board. Some things I'd never think of! Good luck everyone!

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Jul 26, 2015 11:14AM mjh1 wrote:

artista928 - welcome to the thread. There r a lot of things that will b handy as you're recovering but probably the most useful in the beginning is a recliner. If u don't have one see if u can get a script from your BS or PS with the DME code. Your insurance may cover it as durable medical equipment. Each plan is different but its worth a try. If a recliner is not an option, then make sure to have lots of pillows of all different sizes. It will b difficult to sleep lying down in the beginning plus sleeping elevated helps with the swelling.

Didn't know someone started another thread. Will reach out to our other August sisters to c if they went to join us. Thanks for the FYI.

Dx 1/2014, DCIS, Both breasts, <1cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+ Dx 1/2014, LCIS, Both breasts, 0/1 nodes Surgery 2/26/2014 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 12/29/2014 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 8/31/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Jul 26, 2015 11:18AM Artista928 wrote:

Thanks mjh1. Yeah, tiny jammed with crap apt so no recliner option. Going to get a wedge and build a throne with pillows. Make myself feel like a queen. lol.

And yeah, having 2 Aug sx threads kind of stinks because you are now checking in both because some folks are here and not there and vice versa. :)

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Jul 26, 2015 05:07PM 39andhip wrote:

Hi everyone! I am having a UMX on 8/26, hopefully with stacked DIEP reconstruction. If not, I am not sure what I will do. There are still some things up in the air but I think either way the breast is coming off... I am going to miss her. :(

Despite my name, I am actually 40 years old. I started blogging my way through severe hip pain about a year ago, and apparently the only way to get me to stop whining about my hips was to give me cancer. So here I am. :) Dx 5/1/2015, IDC, Left, 1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR+, HER2- (FISH) Surgery 5/18/2015 Lumpectomy: Left; Lymph node removal: Sentinel Dx 5/22/2015, DCIS, Left, 6cm+, Stage 0, Grade 2 Surgery 6/17/2015 Lumpectomy: Left Surgery 9/1/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 9/8/2015 Reconstruction (left): Stacked DIEP flap Hormonal Therapy 10/12/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 26, 2015 09:51PM mkinoly wrote:

My left mastectomy is scheduled for August 17. I should get the BRCA results back sometime this week, and if necessary the right one will also have to go. It seems odd it takes so long to get surgery... just sitting around with this tumor in my boob that would like to kill me... no big deal...

I won't be doing any reconstruction. I just want to have this surgery done and to carry on healing myself and living life. I also don't want to use prosthetics, but I'm not sure how I'll feel if I have a unilateral and being unsymmetrical.

I've never had major surgery or a hospital stay before. I also don't like being taken care of. A bunch of new experiences I never wanted to have. You're all in my thoughts.

Dx 7/2/2015, IDC, Left, 2cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Surgery 8/17/2015 Mastectomy: Left Surgery Prophylactic ovary removal
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Jul 26, 2015 10:39PM quiltlibrarian wrote:

Hello sisters. Busy weekend for me. Did so much baking this weekend so I could have homemade treats for the next couple of months. Large pots of beef stew and Chicken noodle soup. For the first couple of days after surgery.

Preadmission done. Only day surgery this time. Got questions answered about pain control. Crossed fingers that it will happen.

Bought some 3x men's shirts so that underarms will not touch surgery area. That is the one thing that really bugged me. Going the bed of pillows route. No recliner in the house.

mkinoly I have worn sports bras and nothing on the other side. I also wore vests. One thing I wish I had done before the surgery was get fitted for a mastectomy bra. It was really weird to try bras on with nothing on the right side. Nothing really fit right.

Hugs all.

Dx 7/2014, DCIS, Right, 6cm+, Stage 0, Grade 1, 0/3 nodes Surgery 8/20/2014 Lymph node removal: Right, Sentinel; Mastectomy: Right Surgery 8/7/2015 Mastectomy: Left; Prophylactic mastectomy
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Jul 27, 2015 09:36AM dimccleland wrote:

Hi all

Just stopping by to say hi and see how you are all doing ... I am still just biding my time until my surgeon gets back from holiday to find out the results of my BRCA test and my surgery date.

mkinoly - think you are in a similar boat too me ... I am also going to have a mastectomy on my left side (BRCA results depending) and I have also decided not to have a reconstruction. Must admit that I am also a little concerned being unbalanced so I think I may have a prosthesis ... can always not use it if I don't need it!! Hang in there ... my tumour and I have been co-habiting since my diagnosis in December last year ... I had to have chemo first and only started that about seven weeks after my diagnosis ... there were times that I wanted to just dig it out with a spoon but resisted the urge :-)

quiltlibrarian - what kind of sports bras did you wear post mastectomy? The only ones that I have been able to find here have a zip up front but the cups are very moulded - do you think those would work? Thanks for the tip re getting fitted for a mastectomy bra before surgery - think I will definitely get that done.

Take care all xx


Dx 12/10/2014, IDC, Left, 6cm+, Stage IIIC, Grade 3, 1/6 nodes, ER-/PR-, HER2- (FISH) Targeted Therapy 1/20/2015 Herceptin (trastuzumab) Targeted Therapy 1/21/2015 Perjeta (pertuzumab) Chemotherapy 1/21/2015 Taxol (paclitaxel) Chemotherapy 4/22/2015 AC
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Jul 27, 2015 09:43AM aviva5675 wrote:

this list is on the before during and after surgery boards-- there is a ton of good info over there. Its long and you can pick and choose what things might work best for you.


******NOTE: MODS TOOK ORIGINAL LIST FROM Panchoandlefty AND COMBINED WITH OTHER MEMBER SUGGESTIONS UP THROUGH END OF MARCH 2015*********** We are happy to keep adding, and please let us know if we missed anything !

Combined list from what others have said in this topic !

Community member tips for Surgery

Tips for the hospital:

Hand sanitizer, antiviral Kleenex, Anti-bacterial adult wipes (in a pretty dispenser), adult "baby wipes" to give yourself sponge baths.

'skin prep wipes'. These help prep the skin for tape and other adhesives

Roll on or Spray Deodorant, NOT a solid stick.

Lozenges or hard candy of your choice.

A lip balm of choice

Face and hand moisturizer

A stool softener, dried prunes, bran cereal and "smooth move" tea, laxatives.

Clipboard, notebook and pen (for documenting when you had pain meds and drain amounts)

Zip up track suits or button up pajamas and shirts.

Slippers, cotton front snap bras

Silky bottoms/PJs to make getting in/out of bed easier

Zip up hoodies/ warm ups, soft flannel shirt is just right for after surgery.

Camisoles/tanks which can be stepped into (as opposed to pulling over-head)

Jog Bras (Natori is recommended) or whatever support is suggested by your surgeon

Pull on, easy pants or shorts, or shirt

Reading glasses

iPod, Mp3 / Music player

Cell phone/ have friends' numbers handy!

Book, magazine

Hair tie if your hair is long.

Lanyard (like for ID cards) for holding drains

Fanny pack for drains

Nurses can make a necklace from IV tubing to hold drains in shower

Luck trinkets or photos from friends and/or family.

A good eye mask and ear plugs in the hospital.

Take clothes to hospital that can be washed/sanitized at home

If you are going to sleep in bed and not a recliner at home, ask the nursing staff to show you the proper way to get in and out of bed with the least strain on your back and upper body.

If you feel you may not be up for visitors at the hospital, just let the nurses and staff know that you prefer no visitors except DH or immediate family. I knew that I was having a rough time emotionally as it was beforehand. I didn't want to put on a happy face for a friend, cousin or whomever wanted to stop by. I know the visitors mean well, but for me I just wanted peace & quiet.

Tips for the ride home:

Have a pillow and lap blanket for the car-ride home.

Fill scripts before coming home so you won't have to stop on the way

What to organize at home:

Get a manicure and pedicure before your surgery, and a hair cut.

Before surgery, practice washing your hair, with or without help, with your elbows not moved away from your chest---either over the kitchen sink, using the spray or if your doc will allow, in the shower.

Or, arrange with your hair dresser to do your hair after you get home and cannot stand it any longer -- get someone to drive you.

Move commonly used items, kitchen tools, etc to low shelves before surgery

Find NON child-proof caps for meds.

Neosporin.

Arrange all post surgery robes, pj's, button down shirts and hoodies on a rack in one easy to reach place so you can dress myself easily the first couple of weeks without rummaging through my closet.

Bendy straws

Paper cups and light weight coffee cups for at home

Extra sheets to keep in rotation

Lots of pillows or a wedge or two!

A travel neck pillow - 'C' shaped - for keeping neck from getting a crick after sleeping in a recliner.

Tiny travel buckwheat pillows, or other small pillows.

Put an egg crate mattress on top of mattress and use a long body pillow.

Medical gloves (latex free or powder free)

Small kitchen garbage bags for dressing disposals

A little plastic waste can for at home

Find NON child-proof caps for meds

Lanyard (like for ID cards) for holding drains, Fanny pack for drains, or a camisole, or nurses can make a necklace from IV tubing to hold drains in shower. An old neck tie to use as a lanyard to hang my drains on while I shower. Works like a charm

A shower chair and a hand held shower nozzle. 3M Nexcare tagaderm transparent bandage over the port where it exited my skin when I showered. Also, have a lanyard to use for your drains in the shower. I just clip the safety pins on the lanyard clip for while I shower. It seems a little heavy on my neck while I shower, but I take it off right after I shower.

Get a humidifier for home if your air is dry.

Grabbers! These are about 23 inches long, have a handle that you sqeeze, and the end clamps on stuff on the floor. GREAT for pulling up your pants when you can't bend over, or picking up stuff that you drop, (like the toilet paper, etc!) I needed two of these, as I dropped the grabber! Great for pulling the wash basket along, too!

Make sure to get safety pins, makes it easier to pin your drain tube to your pjs.

Size 1 baby diapers, sanitary napkins or nursing pads for open breast incisions.

A small step stool has been a great tool to help me get in and out of bed

Make sure there's food premade that you don't need to fuss with (sandwiches/salads in individual servings), and also keep those drinks handy.

Cook some of my favorite foods and even ordered a couple takeouts from my fav restaurants to be on hand when I got hungry.

Purchase smaller sizes of soda/juice/milk.

Stock up on heavy items (laundry soap, dry dog food, bottled water, sodas) for 2-3 months! Remember to fill up smaller containers that are easier to pick up.

Put your shampoo, conditioner, and body soap in trial size bottles so they are easier to manage and lighter.

Stock up on stuff near bed - tissues, water, magazines, lots of pillows of all sizes, medicine, remote control.

Recliner or hospital bed- can be ordered from medical supply companies.

Drain solving problem: Zip-up hoodies or robes with pockets, I cut a slit on the inside material and popped the drains in from the inside. No one even knows they are there. It looks a little bulky, but much better than the drains hanging on my neck from a lanyard.

If you have someone a the house helping you out, when you need them call from your cell phone to the house phone or vice versa. It was so much easier than trying to yell from upstairs.

Get Netflix or rent movies.

Have an insulated cup for drinking and book and lamp by the bed.

Have someone pour milk, juice, etc from big gallon jugs into smaller containers and leave on an easy-to-reach shelf.

If a can of something needed opening, have someone do it before they leave.

******************

This thread started me thinking about what my husband/partner will need. So I am starting a basket of "surprises" for him. A friend is bringing it to the hospital to give to him after I am in surgery.

iTunes gift card - so he can dowload a book on tape, music, movie, whatever

roll of quarters - for the pop machine

deck of cards - surgery is supposed to be 8 - 10 hours. He can play cards with whoever shows up

remote control car -pure silliness but he will think it is fun!

box of Special K meal bars - at least he will have something semi-healthy to snack on

chapstick - hospital environments can be very drying

bottle of special single malt scotch - something he would never buy for himself, but will appreciate very much when he gets home

travel blanket - hospital can get cold

framed picture of the two of us

tissues

Run Towards Not From --we can all do it...on FB and www.runtowardsnotfrom.com Dx 7/2013, DCIS, Stage 0, Grade 3, ER+/PR+, HER2+ Surgery 8/12/2013 Lumpectomy: Right; Reconstruction (left) Dx 8/16/2013, 1cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Dx 8/16/2013, ILC, 2cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Surgery 8/22/2013 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/17/2013 Arimidex (anastrozole) Surgery 1/9/2014 Reconstruction (left); Reconstruction (right) Surgery 5/22/2014 Reconstruction (left); Reconstruction (right) Surgery 11/20/2014 Reconstruction (right) Surgery 10/29/2015 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting
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Jul 27, 2015 09:45AM aviva5675 wrote:

I must say that in my 2 days in hospital at bmx I didnt use really anything I thought I would. I lay there like a lump pressing the pain med button. I was up and sitting/walking after 24 hours- the nurses make you, which is good. I dont think I had the tv on once even. My one thing Im glad about tho, is I had no room mate-- push for a single room!

Run Towards Not From --we can all do it...on FB and www.runtowardsnotfrom.com Dx 7/2013, DCIS, Stage 0, Grade 3, ER+/PR+, HER2+ Surgery 8/12/2013 Lumpectomy: Right; Reconstruction (left) Dx 8/16/2013, 1cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Dx 8/16/2013, ILC, 2cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Surgery 8/22/2013 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/17/2013 Arimidex (anastrozole) Surgery 1/9/2014 Reconstruction (left); Reconstruction (right) Surgery 5/22/2014 Reconstruction (left); Reconstruction (right) Surgery 11/20/2014 Reconstruction (right) Surgery 10/29/2015 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting
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Jul 27, 2015 09:49AM mkinoly wrote:

dimccleland, we sure do sound similar, but I can't imagine having to wait as long as you have! I hope you have all your answers soon.

That's a great idea to get fitted for a bra before surgery, but I'm losing weight (8 lbs already, yay!) and will be losing weight for awhile to get down to a normal BMI (currently 32 BMI). Gotta get rid of the fat to get rid of some estrogen. So I don't really want to invest money into much clothing along the way. I'll probably just go bra-less mostly. I don't care one bit if someone gets offended by my bra-less breast or by the empty space next to it.

Hang in there, ladies

ThumbsUp


Dx 7/2/2015, IDC, Left, 2cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Surgery 8/17/2015 Mastectomy: Left Surgery Prophylactic ovary removal
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Jul 27, 2015 10:06AM justamy wrote:

I barely remember the hospital from my BMX in February. I was only in there for 20 hours and I was heavily medicated. The worst part post surgery was the drains. I had mine for 3 weeks because something weird happened w my expanders and they had to go back in so they moved them. The drains were not painful....just annoyingly in the way. My pain was controlled well by oral pain meds. I was giving myself a shower after a day at home. I did get a recliner but could have easily used pillows in my bed. The surgery wasn't nearly as bad as I had feared it would be ahead of time.

Someone asked about bras. I would not get the molded cup ones. I found one at Walmart that has hook and eye closure up the front. I also woke up from surgery with one on and it's my favorite. I wear a 42 so I can shop at Romans/Layne Bryant. All of their bras are wire free and they have several kinds of sports bras. They have a web site. They start at 36 or 38 depending on the bra.

My third reconstruction surgery is coming up and I'm not nervous about the surgery but am almost certain it will not give me the results I'm looking for. I will at least be bigger. They look like an A cup right now which would be OK if that's what I asked for. It was supposed to be a C cup. I won't bore you with the details but my plastic surgeon seems to not be too concerned with how I feel telling me last time I was unhappy that he's done a lot of these and my result is about as good as it gets. Reconstruction is a good thing if you have a good doctor. As it stands, I almost regret doing it at all ...I guess that's my whine for the day... Lol...

"I can do all things through Christ who strengthens me." Philippians 1:8 Dx 7/18/2014, IDC, Right, 4cm, Stage IIA, Grade 1, 0/6 nodes, ER+/PR+, HER2- Dx 7/18/2014, IDC, <1cm, Stage IIA, Grade 1, 0/6 nodes, ER+/PR+, HER2- Chemotherapy 8/20/2014 AC Chemotherapy 10/19/2014 Taxotere (docetaxel) Surgery 2/2/2015 Mastectomy: Right Surgery 2/2/2015 Prophylactic mastectomy: Left Surgery 2/9/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 2/16/2015 Aromasin (exemestane) Surgery 3/25/2015 Reconstruction (left); Reconstruction (right) Surgery 8/5/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 27, 2015 11:12AM hummingbirdlover wrote:

Hi August sisters! 

I have to say that for my BMX surgery (which was my first major surgery ever) I packed this huge bag of stuff for the hosptial and didn't use any of it.  Seriously, the only things I took for the second surgery were a pack of clorox wipes, my cell phone, and charger and some chap stick.  I had my BMX in the winter so this might not work now but I bought a zip up hoodie for like $10 at Walmart that had pockets on the inside, like where you would put a cell phone and I wore that home from the hospital both times.  I just stuffed the drains in those inside pockets.  The best advice I can give is to keep a chart of your meds so you know when to take them.  It all gets fuzzy when you're taking them at different times and having a chart where you can just check them off, helps.  Also, if you are a person, like me, who has problems with pain meds, ask your Doctor to prescribe you some Zofran.  It is an anti-nausea med and I never got sick one time and historically, all pain meds make me super sick to my stomach.  I was so afraid of waking up from surgery and puking for days and days.  Also, have miralax or colace on hand because those pain meds stop you up...big time.

One last tip, have a pillow handy for the ride home from the hospital so you can put it between your chest and the seatbelt.

I'll be thinking of all of you this month!

Oncotype score 17. God never gives us more than we can handle! Dx 9/23/2014, IDC, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 10/22/2014 Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 11/17/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/19/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/27/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 27, 2015 11:13AM SummerAngel wrote:

I found that I didn't need much while I was in the hospital, either. I was glad I had a robe, so I could walk the halls. I wasted my time packing a bag like I was going on a trip, I didn't bother with makeup while there or on my way out, and I could have worn the same clothes home that I wore to the hospital (button-front shirt, loose-fitting pants or shorts, slide-on shoes). The hospital gave me a little pillow to cushion my chest on the ride home, and they gave me lanyards to hold the drains. They also gave me two large plastic cups with straws that I used while there and once at home. I never needed the bendy straws I bought.

Justamy, about your PS and reconstruction worries: I've read that some women change doctors pre-exchange surgery when they're very unhappy with their PS and the doc doesn't seem to want to listen. Is that an option for you? I'm very happy with mine, right now my chest looks like a large B, which is what I was pre-surgery, and he says he'll go bigger during the exchange surgery to get me to a small C, which is what I would like. A PS should definitely listen to your desires!

Age at dx: 45. Oncotype, left-side tumor: 9. Right side had multifocal IDC and "extensive" LCIS. Isolated tumor cells in 1 right-side node. Dx 4/3/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 4/27/2015, IDC, Right, 1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 6/1/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right Surgery 6/1/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/27/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/3/2015 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction

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