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Sep 13, 2017 01:07PM
Lsunshine- So sorry to hear your first night was so rough!
MrsWinnie- So, no chemo? That's great news!
LisaBS- I'm so sorry about your bad news! I hope your PET scan comes back clear. As I said to MrsWinnie, chemo is very doable and the side effects are well managed. And I love my port! It makes the infusions so much easier. Big hug!
KatjaNL- Glad you found us! Sorry you're in this situation though. That's a tough decision. Do you have young children? How is your support system?
Ruthfromberkshires- Glad to hear your positive news! Take that time you need to recover! One step at a time. If you are wanting to make some changes going forward, I second reading the book Anticancer by Dr. Servan-Schreiber. It's a good read and presents a lot of research on positive dietary changes to make as well as other things to do. As Alice mentioned though, it can be a bit overwhelming, and the book was written before nitrate free processed meats were readily available, for example, so some of the recommendations aren't really up to date. I was also a little annoyed by how much emphasis the book places on our lifestyle being at fault for cancer. I know it plays a role, but I've always been a healthy eater and very active, so I'm sorry, but my BRCA1 gene mutation is responsible. Period. That said, I think reasonable dietary changes can be beneficial to overall health. I've added green tea and turmeric tea to my regular diet, I try to choose foods high in antioxidants, and I limit sugar as I've read enough about the role of blood sugar spikes and insulin in feeding cancer to see that as an important change to make. Everything in moderation ;-)
WellWishes- Great news!
Rljessu- So sorry you're looking at chemo and rads! The Her2+ targeted therapies are amazing though! It's my understanding that PETs are really only done if they're pretty sure the cancer has spread to your lymph nodes. In my case, they knew without a doubt my nodes were positive (biopsy) when I was first diagnosed, so I had one done early on. Some major cancer centers don't really use PETs at all though (MD Anderson) and instead do locally focused MRI and CT scans if they're concerned about metastasis.
Cyclegal- I've gotten second opinions at MD Anderson on EVERYTHING! There, they automatically request the tissue samples to test themselves. I'm not sure how it works elsewhere though.
Beach2beach- I'll help you keep it bumped :-)
3/14/2017, Right, Stage IV, metastasized to liver, ER-/PR+, HER2+
3/21/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
8/9/2017 Mastectomy: Left, Right
9/28/2017 Whole-breast: Breast, Lymph nodes, Chest wall