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Topic: October 2018 Surgery Support Group

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Sep 18, 2018 10:28AM - edited Oct 27, 2018 06:22PM by sillyoldrabbit

sillyoldrabbit wrote:

Looks like no one has started this group yet, so here goes. I'm scheduled for a lumpectomy and sentinel node biopsy on October 2. I've already had neoadjuvant chemo, so my main concern is what the results will show after the surgery. So many things to worry about, I lose track sometimes. Join me?

October 2018 Surgery Calendar

Oct 2 - Sillyoldrabbit, Lump
Oct 3 - Diane500, MX
Oct 4 - kista, BMX
Oct 8 - SLL101984, Exchange
Oct 8 - Munmunmary, BMX
Oct 8 - Lulabell75, Lump
Oct 9 - Proud_Patriot, BMX
Oct 10 - BethM29, BMX
Oct 10 - DWiseley, Lump
Oct 15 - apatient, BMX
Oct 17 - Kanona7795, BMX
Oct 17 - Dominos, BMX
Oct 17 - Raysal, Lump
Oct 18 - Bubblybubbles_1, Lump
Oct 18 - Stherye, PBMX
Oct 18 - PurpleCat, SNB
Oct 19 - GAWarrior, BMX
Oct 22 - Julesm59, Lump
Oct 24 - llup, BMX
Oct 24 - star2017, Exchange, OOPH
Oct 24 - Dovely, BMX
Oct 25 - Dani444, UMX
Oct 25 - Kat22, Lump
Oct 26 - DeeDeeT, Lump
Oct 29 - BluGene, Partial MX
Oct 30 - Trishyla, Revision
Oct 31 - Naesha, BMX

Dx 2/28/2018, IDC, Left, 4cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 3/19/2018 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 10/2/2018 Lumpectomy: Left; Lymph node removal: Sentinel
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Nov 6, 2018 05:17PM Bookworm14 wrote:

star2017,

I know there are some really good reviews for the 3D nipples. I agree with you about not wanting to take away from the other breast to make the other nipple. Hope you are continuing to do well.


Diagnosed @35, BRCA2 + Surgery 10/14/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 10/25/2018, DCIS/IDC, Left, 2cm, Stage IIB, Grade 2, 1/16 nodes, ER+/PR+, HER2-
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Nov 7, 2018 02:33AM - edited Nov 7, 2018 01:54PM by Anxiouslady

This Post was deleted by Anxiouslady.
Dx 9/25/2018, IDC, Left, 2cm, Grade 3, ER+/PR+, HER2- (IHC)
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Nov 7, 2018 12:17PM Bookworm14 wrote:

Received the release from the doctor for exercising! Anyone doing this yet, and if so what exercises are you doing?

Diagnosed @35, BRCA2 + Surgery 10/14/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 10/25/2018, DCIS/IDC, Left, 2cm, Stage IIB, Grade 2, 1/16 nodes, ER+/PR+, HER2-
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Nov 7, 2018 12:20PM star2017 wrote:

great!


I still have lifting restrictions, and haven’t really felt up to doing much beyond walking. I do want to go back to yoga or Pilates or some such thing soon tho

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 7, 2018 01:09PM Bookworm14 wrote:

Star2017,

definitely going to work on core! Hope you get released soon...think I may wait on some of the lifting, but glad I can do squats, bike, and abs for now!

Diagnosed @35, BRCA2 + Surgery 10/14/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 10/25/2018, DCIS/IDC, Left, 2cm, Stage IIB, Grade 2, 1/16 nodes, ER+/PR+, HER2-
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Nov 7, 2018 01:47PM PurpleCat wrote:

Taking walks through the neighborhood. I'd slacked very badly on exercise in the months preceding the diagnosis, so I have a long way to go to get back to good strength and stamina, unfortunately. You don't know what you have until it's gone, as they say.


Dx 10/2018, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/4/2018 Lumpectomy Surgery 10/18/2018 Lymph node removal: Sentinel
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Nov 7, 2018 01:57PM DWiseley wrote:

Star, I'm still just walking 3 weeks out from lumpectomy.

Stage 3 colon cancer treated in 2015/16. Factor 13 bleeding disorder. OncotypeDX 8 Dx 9/12/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 10/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 10/18/2018 Arimidex (anastrozole) Radiation Therapy 11/19/2018
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Nov 8, 2018 08:48AM GAWarrior wrote:

Me, too - I'm just walking. I tried running yesterday (I'm 3 weeks post BMX) but these TEs are a literal pain, so I only got about 3 steps in before I quit. I'm walking on the treadmill, which means I can hold my boobs and minimize the bounce. I'm also on lifting restrictions. Can't wait to get in some running and yoga!

"Strength does not come from winning. Your struggles develop your strengths. When you go through hardships and decide not to surrender, that is strength."- Arnold Schwarzenegger Dx 3/22/2018, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 4/20/2018 AC Chemotherapy 6/19/2018 Taxol (paclitaxel) Surgery 10/18/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Nov 8, 2018 09:32AM - edited Nov 8, 2018 09:32AM by star2017

GAwarrior, have you tried a sports bra?



Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 8, 2018 11:36AM Dani444 wrote:

Just got a call from my BS, she said they had a very lengthy discussion about my case at tumor board. The radiation oncologists felt that radiation would be recommended and that we would not achieve any additional benefits from a full axillary dissection! She also felt that the medical oncologist was not leaning towards chemo being of benefit to me, but she said I would have to wait to get the answer when I see him. I feel like this is a good treatment plan that I am comfortable with (as comfortable as one can be about radiation:). Thanks to everyone again for listening to my fears as I waited for their recomendation!

DX @ 46, premenopausal, mammaprint low risk Dx 8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2- (IHC) Surgery 10/24/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant
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Nov 8, 2018 01:42PM DWiseley wrote:

Dani44 that is such good news! Smile

Stage 3 colon cancer treated in 2015/16. Factor 13 bleeding disorder. OncotypeDX 8 Dx 9/12/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 10/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 10/18/2018 Arimidex (anastrozole) Radiation Therapy 11/19/2018
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Nov 8, 2018 05:16PM sillyoldrabbit wrote:

That's wonderful, Dani444. Do you think you'll be able to keep working during tx?

Dx 2/28/2018, IDC, Left, 4cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 3/19/2018 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 10/2/2018 Lumpectomy: Left; Lymph node removal: Sentinel
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Nov 8, 2018 05:43PM - edited Nov 8, 2018 05:44PM by Bookworm14

Dani444,

Glad you are starting to get some news of the next steps! Good news on not having to have another surgery just yet. Are you happy with what they are proposing for treatments? I have my meeting on Monday so I am stating to get a bit antsy!

Diagnosed @35, BRCA2 + Surgery 10/14/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 10/25/2018, DCIS/IDC, Left, 2cm, Stage IIB, Grade 2, 1/16 nodes, ER+/PR+, HER2-
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Nov 8, 2018 05:48PM Bookworm14 wrote:

GAWarrior,

Kudos to you on giving running a shot! As star2017 mentioned, did the doctor recommend a sports bra for you?My exercising is going to geared more towards squats, indoor biking, and ab work. I will find out more about what my PS will allow tomorrow. I don’t know if I could even try to run...I hit a bounce in the car and I feel the pain a bit! Seems we are all starting to feel a bit better.

Diagnosed @35, BRCA2 + Surgery 10/14/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 10/25/2018, DCIS/IDC, Left, 2cm, Stage IIB, Grade 2, 1/16 nodes, ER+/PR+, HER2-
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Nov 9, 2018 01:35AM Dani444 wrote:

sillyoldrabbit- I think I will be able to work. I will clear it with the RO maybe? I guess I am not sure! Hopefully, I can but I understand fatigue is a side effect of the radiation. I did talk to the company that handles our FMLA. The 12 weeks total I get can possibly be converted to intermittent FMLA, So I may decide to do that, just in case.

Bookworm - I am happy with the treatment plan, I think they were diligent in deciding the best plan of action to deal with the positive nodes. I know there is still a chance of lymphedema with axillary radiation, but I was really fearful of the full dissection and how it could possibly affect my ability to do my job. Also she had said that doing nothing would leave me with a 26% chance of recurrence in the nodes. (I guess because she had no way of knowing if other nodes were positive?) Best wishes for your meeting on monday! I understand being antsy, all the waiting wears you out!

GAWarrior- Holy cow, so impressed you tried running!!! I sucked at having an exercise routine before my diagnosis, but I am thinking of trying yoga when released. Maybe that will help with the fatigue that is possible with radiation.

DX @ 46, premenopausal, mammaprint low risk Dx 8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2- (IHC) Surgery 10/24/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant
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Nov 9, 2018 02:21AM DeeDeeT wrote:

Dealing with nerve pain from my SNB . It is really bad. I feel like the upper inside of my arm has been burned. It is painful to the lightest touch. Immediately after my surgery, it was numb. Now it is on fire. I finally called my nurse and mentioned it. She said it's not a good side effect, but it happens sometimes and can just be due to swelling, but told me that sometimes this can last longer and to stay in touch.

The main reason I called her was because I'm so tired of waiting to find out answers about chemo. I realized that maybe I could get answers sooner than next month. I was right. She said I shouldn't have to wait that long and she would work on pushing my appointments sooner for me. I really am glad I have a nurse advocate. That was the first time I called her, and she was very sweet.

Dani-so happy you have a plan!

GAWarrior- I'm so impressed you're exercising!

Dx 9/20/2018, ILC/IDC, Right, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 10/26/2018 Lumpectomy; Lymph node removal: Sentinel
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Nov 9, 2018 03:14AM Naesha wrote:

Hello everyone,


it is my 9th day post surgery. Surgery went well and luckily my woulds are healing fast. Since mine was metastasis, doctor removed 12 nodes as well from my left side along with both breasts. Unfortunately pathology reports didnot come clear. The cancer cells found to be active. So my OC is recommending Xeloda but that would be after radiation. Hearing about the reports was definitely not the news i was expecting but my OC explained that without Xeloda it has been proven that 70% chances of no recurrence and adding Xeloda will add extra 6% to it. I am sad but i am boosting myself taking Xeloda as a precaution like Radiation. My PS took the two drain out this Wednesday and remaining two drains will be taken out next week.

I do not want to feel sad and ruin my present thinking about the pathology reports. I am trying to be positive that this cancer is set to be end. Workout wise I am still not forcing myself to do any. Doctor is saying that i have to see the symptoms of lymphdema. I live in OH and it starts to snow so I cannot walk outside :-(. Once this would is heal properly i am planning to start the indoor workout slowly.

Take care ladies.

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Nov 9, 2018 03:59AM star2017 wrote:

hi naesha,

I’m sorry to hear the reports weren’t clear. My mom is on xeloda for a different cancer and so far doing well. I hope it goes well for you.



Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 9, 2018 04:13AM GAWarrior wrote:

Thanks, all, for the sports bra suggestion, but I can't wear one yet per the PS. I still have stitches everywhere (3 weeks post-surgery). I see him Monday, so maybe I can use one after that. Holding my boobs didn't help, though, so a sports bra probably wouldn't either. Sigh. Bookworm, I know what you mean about a bounce in the car hurting, lol - sorry for us both!

Dani444, that's good news! Did they do an Oncotype DX test? That score will tell you more about the need for chemo.

DeeDeeT - I can't belive they are making you wait so long to hear about chemo. It seems like they usually push to get treatment started asap. Good luck getting an appointment sooner. Also, good luck with your pain on the inside of your arm. I have a few areas that feel like a bad sunburn and they seem to come and go. Hopefully, yours is swelling and it will settle down soon.

Naesha, I'm sorry you're going to have to do Xeloda, but I think it's a good idea. Because mine was triple negative, I was ready to take it if I needed to. Two ladies in my April 2018 chemo group are starting it this month - you could drop into the group and ask about it if you have questions. There is also a Xeloda group under the chemo forum. The chemo is oral and you take it 3 weeks on/3 weeks off for 6-8 cycles, according to the ladies in my group. Anything to keep it from coming back, right! Take it easy and rest - 9 days out from surgery isn't very long. Hugs!

"Strength does not come from winning. Your struggles develop your strengths. When you go through hardships and decide not to surrender, that is strength."- Arnold Schwarzenegger Dx 3/22/2018, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 4/20/2018 AC Chemotherapy 6/19/2018 Taxol (paclitaxel) Surgery 10/18/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Nov 9, 2018 04:25AM DWiseley wrote:

Naesha, I'm really sorry the pathology wasn't clear. I took xeloda 3 years ago for colon cancer and it wasn't horrible, I just lost my finger prints. I know that isn't much consolation when you're going through something hard, so here's a virtual hug. (((Naesha)))

Stage 3 colon cancer treated in 2015/16. Factor 13 bleeding disorder. OncotypeDX 8 Dx 9/12/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 10/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 10/18/2018 Arimidex (anastrozole) Radiation Therapy 11/19/2018
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Nov 9, 2018 06:26AM JennieKeaton wrote:

Hi All -

I had DMX with lat flap on left and tissue expanders on both sides on 10.24. I had to go back in on 11.2 for a small section to be removed from the biopsy site (my tumor was very close to chest wall).

I am frustrated with my progress and just want to check in with others who are in my same general timeline.

I am still extremely stiff on both sides and in my back under the incision. I am sore. I am weak.

I am off pain meds by a few days during the day, but still taking at night to sleep. I only can sleep in one position, and I'm waking up about 3:00 each morning sore and painful. I can go back to sleep, but it's fitful.

I am cleared to drive but can't even think about how to do that yet.

This morning, I went to renew my driver's license and just that brief excursion has worn me out.

I'm tired of being tired. I'm tired of being weak. I'm tired of being sore. I'm tired. And I know it's just been two weeks and two days. But I'm ready not to be tired.

My PS does not have any exercises or a PT that she recommends, so I have made an appointment on my own to start PT on Monday. I hope it helps.

Sorry for the frustrated tone - I'm trying to be really positive, but right now I'm struggling.

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Nov 9, 2018 06:51AM star2017 wrote:

Jennie, be easy on yourself. I had an exchange and laparascopic OOPH on 10/24, so smaller surgeries than a MX and no further surgery and I still find myself getting tired pretty quickly. Your body is working extra hard to heal. I think we need additional rest/sleep because of that. Plus there's a lot we're processing emotionally and mentally and spiritually, etc, that wears us out.

I remember after my MX I slept in a chair (a comfy one that cradles you) and sometimes on an incline pillow that I was gifted. Actually the chair was the most comfortable for me. Lying flat in bed whether on my back or on my side, was too difficult because it was hard to get up. Even now, after my most recent surgery, I still prefer the incline pillow.


Rest as much as you can, eat and drink well, and hopefully you'll feel better soon. But don't hesitate to let your doctors know how you're feeling.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 9, 2018 11:41AM - edited Nov 9, 2018 11:42AM by PurpleCat

DeeDee, I could have written every word you said about the arm pain. It is very slowly improving, kind of a two-steps-forward-one-step-back process, but week by week there is definite improvement. I found a YouTube where a physical therapist demonstrated lightly stroking area in turn with a cotton ball, plastic fork, washcloth .. basically a few different textures to kind of reprogram the nerves by giving them some true/familiar signals to send to the brain rather than just screaming at each other in confusion. I can't say for sure if it's helped, but things do seem to feel a bit better afterwards. Doing my stretching exercises also helps.

Jennie, my surgery was less extensive, but I know what you mean about being tired. Working more or less my normal schedule, but coming home and crash napping most evenings. I'm trying to just take walks, and now I'm having foot pain, probably from switching to my winter footwear recently, including a pair of boots with poor support, evidently. It's like I can't win. Sometimes I just want to curl up and sleep until I can wake up feeling like myself again.

Star, you are wise: we are processing so much, emotionally, mentally , physically, spiritually. I feel like such a scatterbrain. I've been determined to stick to my normal work schedule as much as possible, but am starting to think I might be better off just taking time off, because my scatterbrainedness surely isn't going to advance my career.

Dx 10/2018, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/4/2018 Lumpectomy Surgery 10/18/2018 Lymph node removal: Sentinel
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Nov 9, 2018 12:39PM star2017 wrote:

purple cat, if you can afford to take the time off, or at least go parttime etc I think it’s worth it. It’s been a long year, so I guess I’ve had time to gather my thoughts. Plus I’ve seen my mother deal with and recover from two cancers. She is very strong and has a lot of faith. There’s more to this disease than the physical toll it takes.Best wishes to you.

Dx@37, pregnant, BRCA2+ Dx 9/2017, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 4/8 nodes, ER+/PR+, HER2- Surgery 10/16/2017 Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 11/28/2017 AC + T (Taxol) Surgery 4/17/2018 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Silicone implant Radiation Therapy 5/21/2018 Whole-breast: Breast, Lymph nodes Surgery 10/24/2018 Prophylactic ovary removal; Reconstruction (left): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 9, 2018 04:35PM - edited Nov 10, 2018 01:39AM by PurpleCat

Thanks, Star. I am a part-timer at the moment, so that does help. As much as possible I have been getting appoinments at times I'm not scheduled to work, and have missed very little. I had hoped to just adjust my shifts so as to get all my hours in once radiation started, but am starting to realize there's no special prize for getting through cancer treatment with a minimum of missed workdays.

The radiologist said that most of his full time patients continue to work full time through treatment. I think he said it to reassure me that side effects were mild, and it was reassuring to hear that, but it also added some pressure.

Dx 10/2018, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/4/2018 Lumpectomy Surgery 10/18/2018 Lymph node removal: Sentinel
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Nov 9, 2018 09:04PM - edited Nov 9, 2018 09:15PM by LillianGish

DeeDee, i am where you are with the arm pain. Thank you for telling me what is is! And thank you Purple Cat for the tips on retraining my nerves.

Kept calling to get a copy of the pathology report and surgeon didn't return my calls. Went Thursday to have stitches removed and asked for a copy. It was written a week beforehand. Gee...thanks! I then at last learned that the second lesion they removed was ADH (precancerous and benign). Whew! But the size of the bad tumor was actually 3 cm instead of 2.8. Size is 3, grade is 3. No bueno

Then I wondered...Lillian, do you suppose the oncologist has this path report? So I walked down to his floor and asked. Guess what? Nope! So...like Dee Dee I am waiting on chemo decision too and the oncotype score hasn't even been ordered yet. Sigh.

Seeing oncologist Monday and well...so many questions to ask I better write them down when I find my calm.

Tom Petty was right...the waiting is the hardest part!

Hang tough ladies. Every day means one more yard

Dx 9/18/2018, IDC, Right, 3cm, Stage IB, Grade 3, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/29/2018 Lumpectomy: Right; Lymph node removal: Sentinel
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Nov 10, 2018 02:28AM GAWarrior wrote:

Jennie, don't be too hard on yourself. Surgery takes time to heal and yours was pretty radical due to the flaps. Plus you had 2 surgeries very close together. As Star said, this whole thing is emotionally, physically, and spiritually draining.

I had a BMX on 10/19 and still take afternoon naps. I am a side sleeper, so sleeping on my back means I don't sleep well and wake frequently.

Exercise helps! Try to walk every day - just getting out in the sunshine and moving can make a big difference physically and to your frame of mind. I walked/ran through most of my 20 weeks of chemo and I've been walking since about a week after surgery. Some days I have to drag myself out the door, but once you start, you can keep going for 20-30 minutes. I know it sounds counter-intuitive, but sitting on the couch doesn't help and moving does. Must be the endorphins... Good luck - feel better. Hugs!

Lillian, how frustrating! I'm glad you know about the second lesion at least. Good luck with your MO visit on Monday.

"Strength does not come from winning. Your struggles develop your strengths. When you go through hardships and decide not to surrender, that is strength."- Arnold Schwarzenegger Dx 3/22/2018, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 4/20/2018 AC Chemotherapy 6/19/2018 Taxol (paclitaxel) Surgery 10/18/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Nov 10, 2018 09:57AM Bookworm14 wrote:

lilliangish,

Completely understand your frustration on the wait. I even called and asked the Oncologist to order the Onco test so it could be performed at the time the paths were being completed that way everything came in together. Told me no and that we needed to wait on path reports. I started this whole process mid To end July and so far I have only had surgery. Hopefully, for us both the time frame will speed up a bit! I also meet with my Oncologist on Monday so good luck to us both

Diagnosed @35, BRCA2 + Surgery 10/14/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 10/25/2018, DCIS/IDC, Left, 2cm, Stage IIB, Grade 2, 1/16 nodes, ER+/PR+, HER2-
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Nov 10, 2018 10:03AM Bookworm14 wrote:

GAWarrior,

Moving after surgery, instead of sitting,definitely seems to make everything move quicker. While I did not walk too much after surgery ( still warm in southeast Louisiana) I did make sure I got up and moved through the house, did my stretches, and calf raises. I do feel this helped me recover quicker and get back to work. I had my surgery on the 15th and started back to work full time this past Monday.

Diagnosed @35, BRCA2 + Surgery 10/14/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 10/25/2018, DCIS/IDC, Left, 2cm, Stage IIB, Grade 2, 1/16 nodes, ER+/PR+, HER2-
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Nov 10, 2018 05:25PM Salamandra wrote:

My lumpectomy was October 18. I got back do work just under a week. I have a short bike commute and I've been doing that. My mind has been a mess. I had a seroma at the lymph node biopsy scar drained. Twice. 60cc and then 85cc. I think it's coming back. I've had a fair amount of pain and discomfort in that upper arm. The nurse said it's nerve pain and pretty normal after the procedure. I think it's the seroma pushing on the nerves though, because it's so much better the day or two after they drained it. Now, after 5 days, it's getting more uncomfortable again. They gave me a 'veronique' to wrap around and compress and encourage my body to reabsorb it. I don't know... I think I may need to go on Monday to get it looked at/drained again.

I really wanted to take some more leave but the surgeon's nurse said they can't give me the note because the surgery recovery is basically over. Ii will meet my MO next Friday, basically a full month from surgery. Waiting on the oncotype results. So much damn waiting.

Now I'm trying to think through the relative risks and benefits of radiation and tamoxifen, and what questions I want to ask when I finally get to meet my doctor.

Dx 9/19/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2018 Lumpectomy; Lymph node removal: Sentinel Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 12/3/2018 Whole-breast: Breast

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