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Topic: December 2018 Surgery Support Group

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Nov 9, 2018 06:27PM - edited Dec 29, 2018 12:33AM by Misha13

Misha13 wrote:

This is for all of us having surgery in December!


Nov. 30-Wigging-BMX

December:

4-LynnEGBDF-BMX

4-Gigi71-UMX

5-SkyGirl44-UMX

6-Palsomine-reconstruction

8-Wigging-reconstruction

11-JohnsMom68-UMX

11-HPFULL-lumpectomy

11-ColleenGT-BMX

12-LinnyG-reconstruction

13-PawPatrolMom-BMX

13-Glamazon125-reconstruction

13-BluGene-BMX

13-QueenMargo-BMX

14-SDWoman-BMX

18-Mymomsgirl-lumpectomy

18-Nicnnat3-lumpectomy

18-Gndvll-BMX

20-QueenB44-lumpectomy

21-Mariett-Re-excision

21-CarolZigulich-UMX

26-Misha13-BMX

27-Gramto4-reconstruction

31-Cleokeep70-lumpectomy

31-Nicnnat3-Re-excision




DX at 44 “God’s got this!” Dx 6/26/2018, IDC, Left, 2cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 7/16/2018 AC + T (Taxol) Surgery 12/26/2018 Lymph node removal; Mastectomy: Left, Right Dx 1/7/2019, DCIS/IDC, Left, 2cm, Stage IIIA, Grade 3, 7/9 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy 1/30/2019 Hormonal Therapy 4/8/2019 Aromasin (exemestane), Zoladex (goserelin)
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Posts 361 - 379 (379 total)

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Jan 24, 2019 06:18PM SDWoman wrote:

Misha It has got to be frustrating to know you need more treatment than originally thought but I pray you tolerate it well. Also glad to hear you are feeling well enough to go back to work!

I went back to work last week and honestly felt like I could have gone the week before. However, we long ago committed to take care of our granddaughter while parents were in Florida last week, so the idea of taking care of a toddler by myself (DH had to go out of town) was just too much. She went to daycare during the day and was so great about understanding that I couldn't lift her.

Ever since surgery I felt I was battling anesthesia brain since I couldn't seem to remember the simplest things. Being back to work has helped. I guess I just need to exercise my brain?!?

I will be going in for genetic testing here soon. Mixed feelings on that. Am I supposed to hope they find something that explains all the breast cancer in my family? I am so sad for those in my family that did not beat this dreaded disease! Out of the 8, I and another cousin are the only survivors. I literally attended the funeral of one cousin who lost her breast cancer battle 3 days before my surgery. I am sure witnessing her final days so recently mpacted my BMX decision, but I don't regret it at all. Hopefully with all the advances there will be no more losses.

I came across this which shows a good example of fat grafting. Thought I would share.

Wow... did I get long winded or what!

Diagnosed at 48. Extensive family history of breast cancer (3 aunts, 3 cousins, sister) Dx 11/21/2018, DCIS, Right, 1cm, Stage 0, 0/3 nodes, ER+/PR+ Surgery 12/14/2018 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jan 24, 2019 10:23PM HPFULL wrote:

Misha 💕 I am sorry you have to have more chemo, but I am glad they are being very proactive about getting all the cancer. When do you go back to work?

Today was my 3rd day of RADS. I feel a bit stiff but no skin reaction yet. I actually do have cording like you had mentioned. I didnt know because my ps is an ass and told me my pain was phantom pain. I have nerve pain but I also have that cording so the nurse navigator is going to arrange PT to help with that. Iam off work and concentrating on me which I feel guilty about . I don’t love my job which I plan to do something about out in the near future. I started a half dose of Tamoxifen last week and feel ok as far as SE. I have been super absent minded lately. Not sure if I am midly depressed?

I love our December group! I wish we could have a big meet up

Hugs to you

Dx 10/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 12/10/2018 Reconstruction (right) Hormonal Therapy 1/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jan 25, 2019 04:10PM Misha13 wrote:

OMG I JUST LOST AN ENTIRE LONG POST!!!!

Not gonna type it all again...

SDWoman-Let us know about your test. I’m glad you caught the cancer early and avoided the fate of your relatives.

HPFULL-Depression sucks. Don’t feel badly for feeling badly. Cancer sucks and you deserve to focus on yourself.

Not getting oral chemo drug. Got Xeloda and Zoladex confused! I am also getting aggressive rads that will include the inter mammary glands in the middle of chest.

Ugh. The first one was much better but hopefully you get the point! Have a good weekend all!

DX at 44 “God’s got this!” Dx 6/26/2018, IDC, Left, 2cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 7/16/2018 AC + T (Taxol) Surgery 12/26/2018 Lymph node removal; Mastectomy: Left, Right Dx 1/7/2019, DCIS/IDC, Left, 2cm, Stage IIIA, Grade 3, 7/9 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy 1/30/2019 Hormonal Therapy 4/8/2019 Aromasin (exemestane), Zoladex (goserelin)
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Jan 27, 2019 08:50PM - edited Jan 27, 2019 08:52PM by alto

HPFULL, I have experienced so many brain farts post-surgery. It's frustrating. Dealing with illness and the treatment can be rough. I've thought about getting some antidepressants; just need to call back about a psych consult. But I'm on the fence. I don't know if I'm adding something that will be helpful, or too much.

Thinking of you, Misha - wishing you the best with the new treatment

Diagnosed at 42. Had symptoms of Paget's for years prior to positive biopsy. No Tamox because low% ER. Dx 11/2/2018, Paget's, Right, Stage 0, Grade 3, ER-/PR-, HER2+ (IHC) Surgery 11/10/2018 Lumpectomy: Right Dx 11/29/2018, DCIS/Paget's, Right, 1cm, Stage 0, Grade 3, ER-/PR- Surgery 12/18/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 12/21/2018, DCIS, Right, 2cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR- Surgery 1/16/2019 Mastectomy: Right
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Jan 27, 2019 09:22PM Mymomsgirl wrote:

Well last week I made it through all the verification and start rads last Thursday, two days down, 13 more to go. So far so good, the almost 3 hour round trip drive for treatment is going to suck though. But I said I would do this if I did the intraoperative radiation, in the long run it only means 3 weeks of driving.

Dx 10/29/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Radiation Therapy 12/18/2018 Whole-breast: Breast Surgery 12/18/2018 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/24/2019 Whole-breast: Breast Hormonal Therapy 3/19/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 27, 2019 10:08PM Wigging2000 wrote:

It's good to read everyone's updates. Alto, please call and get that psych consult. This cancer stuff is no joke for so many reasons. My advice is, if you are even thinking that you might need something, you should call.

Misha-I hope your new treatments are successful and that they don’t cause SE’s. What does the Zoladex do?

Mymomsgirl, I hope rads continues to go well and that time passes quickly.

HPFULL would love a group hug. I’ve been on the tamoxifen for almost a week and am doing ok so far. Some little things going on but nothing terrible. I did get slammed with some pretty intense fatigue the past couple days but I’m hoping it’s related to a very active crazy day I had on Saturday.

SDwoman congrats on going back to work!

I have appts with new GYN and follow up with PS this week. I really want to be released to do more exercise. My joints have felt achy and everyone seems to say the more you move the better!

Hugs to all-


Dx 10/31/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 11/30/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/6/2018, LCIS/DCIS, Left, Stage 0, 0/1 nodes Surgery 12/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 27, 2019 11:16PM - edited Jan 28, 2019 01:38AM by HPFULL

Hi Alto. Yes I think I need to talk to dr about depression med. I feel like I can't snap out of it. I still have so much pain down my surgery side arm. It's really wearing me down.

Mymomsgirl that is one long drive. You could listen to Audio books or learn a new language 😂🙂

Good luck with your appointments this week wigging. I need to find a new PS, but so tired of dr appointment arg

SDwoman congrats on being back at work.


Misha when do you start rads?

And is it just me or do you guys have problems when you're posting from your cell phone or iPad? Sometimes when I'm writing froma device it will change what I'm writing or it will type super super slow the only time it works correctly is when I am typing from my laptop


Dx 10/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 12/10/2018 Reconstruction (right) Hormonal Therapy 1/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jan 28, 2019 10:18AM - edited Jan 28, 2019 10:20AM by alto

Yes, HPFULL, weird typing things happen when I use my iPad. Sometimes it gets better when I click the 'use plain text editor' link below.

My doc called to say my January surgery got clear margins. Possible Tamoxifen for contralateral breast. Will meet with a MO.

I think I'd almost rather do prophy mastectomy than take meds for 5 yrs, but will go learn about my options and risks.

Diagnosed at 42. Had symptoms of Paget's for years prior to positive biopsy. No Tamox because low% ER. Dx 11/2/2018, Paget's, Right, Stage 0, Grade 3, ER-/PR-, HER2+ (IHC) Surgery 11/10/2018 Lumpectomy: Right Dx 11/29/2018, DCIS/Paget's, Right, 1cm, Stage 0, Grade 3, ER-/PR- Surgery 12/18/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 12/21/2018, DCIS, Right, 2cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR- Surgery 1/16/2019 Mastectomy: Right
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Jan 28, 2019 12:10PM HPFULL wrote:

Congrats on clean margins alto
Dx 10/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 12/10/2018 Reconstruction (right) Hormonal Therapy 1/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jan 28, 2019 05:34PM Misha13 wrote:

Wigging-Zoladex is an ovarian suppression shot I will take every three months. It works with the aromatase inhibitor I will be taking.

Alto-Yay clean margins!!!

HPFULL-Yes! I use my phone and all sorts of nonsense happens!! My first day for rads is Wednesday!!

Today was my first day back to work since June!!!!! Omg I am so tired. I got a Fitbit for Christmas and by 11:00 this morning, I had already gotten as many steps as I do ALL DAY at home. There are way too many exclamation points in my post and I don’t care! 😂🤣😂🤣

DX at 44 “God’s got this!” Dx 6/26/2018, IDC, Left, 2cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 7/16/2018 AC + T (Taxol) Surgery 12/26/2018 Lymph node removal; Mastectomy: Left, Right Dx 1/7/2019, DCIS/IDC, Left, 2cm, Stage IIIA, Grade 3, 7/9 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy 1/30/2019 Hormonal Therapy 4/8/2019 Aromasin (exemestane), Zoladex (goserelin)
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Jan 28, 2019 07:02PM - edited Jan 28, 2019 07:03PM by Wigging2000

rest up, Misha! Congrats on clear margins, Alto!

HPFULL-yes, weird things go on when I’m on my phone too. It’s acting ok at the moment though!


Dx 10/31/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 11/30/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/6/2018, LCIS/DCIS, Left, Stage 0, 0/1 nodes Surgery 12/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 28, 2019 07:54PM Mymomsgirl wrote:

Hpfull I like the foreign language idea, not sure I'm up for that...lol. I have been using some of the time for phone calls for work so some of it can be productive. Most of the drive is light traffic so I might as well use the technology in my car for something. It is only day 3, 20% down, so far so good.

I received a piece of good news today, my Oncotype score 9...so officially there will be no chemo!

Dx 10/29/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Radiation Therapy 12/18/2018 Whole-breast: Breast Surgery 12/18/2018 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/24/2019 Whole-breast: Breast Hormonal Therapy 3/19/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 29, 2019 10:24AM Wigging2000 wrote:

mymomsgirl happy to hear about your low oncotype and escaping chemo!


Dx 10/31/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 11/30/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/6/2018, LCIS/DCIS, Left, Stage 0, 0/1 nodes Surgery 12/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 29, 2019 05:18PM Freebee wrote:

hola,

Saw my RO today. On the course for 20 sessions - extra crispy. I don’t want to do this and dred the SE. My hematoma is now almost certain to be permanent. This sucks

Dx 10/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery Lumpectomy: Left; Lymph node removal: Sentinel
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Feb 10, 2019 08:14AM Gndvll wrote:

Misha, I don't post often, but I'm praying for you. I wish we could get together with this group. Everyone here has been awesome!

Update. I had a BMX on Dec 18. Reconstruction will be later this year.

I'm thankful to report that I had zero nodal involvement and there was no sign of any living cancer. No rads necessary, and I'm starting Aromasin this week. Praise the Lord!

Of course, I'm still healing. My left breast dehisced but it's improving daily. I have phantom pain. My nipples feel like I'm being stabbed! (This is happening just above my bellybutton. Lol)

But I'm getting better and y'all have helped me more than you know. Thank you.

Are we going to keep meeting here? Love y'all. Gentle hugs and healing for all of us!





Gina Dx 6/19/2018, IDC, Left, 3cm, Stage IIA, Grade 3, ER-/PR+, HER2- (DUAL)
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Feb 10, 2019 01:02PM HPFULL wrote:

great news gndvll ! So glad you are healing well and no node involvement 🙌🙏

Dx 10/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 12/10/2018 Reconstruction (right) Hormonal Therapy 1/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Feb 10, 2019 08:44PM Wigging2000 wrote:

glad to hear your good news, gndvll!

I am also thinking of and praying for Misha. She’s had a tougher road than many of us so far.

I’m doing well. Still seeing my PS every month to keep an eye on some weird spots in my incision but doing ok. I’ve been on tamoxifen for about a month with some minor annoyances but nothing terrible...very thankful! I’ll have an MRI in June when I see my BS again...and an ultrasound next week to check my uterus for issues. Doctors doctors doctors! I’ve started going to all my appointments by myself and telling them “I’m not going to get any more bad news so I don’t need anyone with me”.

Hugs to all

Dx 10/31/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 11/30/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/6/2018, LCIS/DCIS, Left, Stage 0, 0/1 nodes Surgery 12/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 10, 2019 08:56PM Mymomsgirl wrote:

Good to see some good news. I met with my PS for a post op this past week, she thinks I'm making great progress even while going through radiation. She said to keep moisturizing and that unless something takes a turn with my radiation then she will see me in 3 months. I might need a small adjustment to the girls but it is hard to say until I fully heal, which will be at least 6 months after radiation. My RO is getting me in to a MO who only deals with breast cancer, which is exactly what I'm looking for.

Dx 10/29/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Radiation Therapy 12/18/2018 Whole-breast: Breast Surgery 12/18/2018 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/24/2019 Whole-breast: Breast Hormonal Therapy 3/19/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 10, 2019 09:31PM - edited Feb 10, 2019 09:32PM by Misha13

Good to see you all!!

Gina-Thanks, but I'm doing great! I really am. I am so grateful to be back at work and grateful that rads so far has been a piece of cake! Mentally, I'm in the best place I've been in since June! Congrats on the clean margins and no nodes!! The board will remain if we want to visit it, but I post in February Rads, and others post in the hormone therapy boards. I don't start hormones until April. Lots of people seem to keep in touch on their old boards, and if not, you can always message me. Actually, if anyone wants to share Facebook info, I'm open to that. BUT, let's do it in a private message!

Wigging, HPFULL, Mymomsgirl, SDWoman, alto, FreeBee and anyone else who's been on here-that goes for you too! I don't post right now on FB much-it's not public knowledge that I had cancer, but I would love to share with you all and keep in touch with actual names and pictures!


DX at 44 “God’s got this!” Dx 6/26/2018, IDC, Left, 2cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 7/16/2018 AC + T (Taxol) Surgery 12/26/2018 Lymph node removal; Mastectomy: Left, Right Dx 1/7/2019, DCIS/IDC, Left, 2cm, Stage IIIA, Grade 3, 7/9 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy 1/30/2019 Hormonal Therapy 4/8/2019 Aromasin (exemestane), Zoladex (goserelin)

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