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Topic: Third surgery recommended!!! What to do?

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Jan 10, 2019 08:45PM

viewfinder wrote:

My sister had a lumpectomy on November 7th. They did a second surgery this past Tuesday, January 8th. Her pathology report came back today and now they are recommending a third surgery....or possible mastectomy.

So confusing and upsetting.

Any thoughts or suggestions would be appreciated.

"I felt sorry for myself because I had no shoes, until I met a person who had no feet." - Source unknown Dx 4/2018, IDC, Left, <1cm, Grade 1, 0/2 nodes Surgery 7/10/2018 Lumpectomy: Left Radiation Therapy 9/13/2018 Hormonal Therapy 10/13/2018 Arimidex (anastrozole) Surgery
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Jan 10, 2019 09:07PM Jenkins00 wrote:

I’m assuming more surgery because they isn’t clear clean margins. How does she feel about a mastectomy? I had a BMX and the two more revisions after. I admit it was frustrating, emotionally and physically draining. I knew it had to done in order to proceed with treatment and future reconstruction

Dx 8/2/2018, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/27/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/14/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 10, 2019 09:20PM - edited Jan 11, 2019 06:08AM by viewfinder

Thanks for your response, Jenkins00!

I, too, am assuming more surgery is being recommend because the margins still aren't clear. She sent me a copy of her pathology report but it's way over my head and contains no written recommendations.

I don't know yet about how she feels about a mastectomy. I'm sure her head is swirling right now, as is mine. She is triple negative.

You mean even with a bilateral mastectomy, there is the possibility of revisions after the surgery?

Why did you decide not to have a lumpectomy?

Thanks again.

"I felt sorry for myself because I had no shoes, until I met a person who had no feet." - Source unknown Dx 4/2018, IDC, Left, <1cm, Grade 1, 0/2 nodes Surgery 7/10/2018 Lumpectomy: Left Radiation Therapy 9/13/2018 Hormonal Therapy 10/13/2018 Arimidex (anastrozole) Surgery
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Jan 10, 2019 09:42PM Leatherette wrote:

I had a mastectomy because my lump was big and I was afraid about the possibility of not getting clean margins and docs having to go back in to get them. I’m in Seattle, and got great care through Kaiser Permanente.



Age 45 at diagnosis Dx 5/2017, DCIS, Left, 6cm+, Stage 0, Grade 3, ER+/PR+ Surgery 6/18/2017 Mastectomy: Left Dx 6/23/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2+ (IHC) Chemotherapy 7/24/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/25/2017 Herceptin (trastuzumab) Surgery 7/1/2018 Reconstruction (left): DIEP flap
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Jan 10, 2019 09:47PM - edited Jan 10, 2019 09:49PM by viewfinder

Leatherette my sister is also in Seattle. She's going to Virginia Mason. I've read pros and cons, but you can find mixed reviews for most any place. Wonder if she should change? I think you have to be a member of Kaiser Permanente; have your insurance through them. My sister is on Medicare.

"I felt sorry for myself because I had no shoes, until I met a person who had no feet." - Source unknown Dx 4/2018, IDC, Left, <1cm, Grade 1, 0/2 nodes Surgery 7/10/2018 Lumpectomy: Left Radiation Therapy 9/13/2018 Hormonal Therapy 10/13/2018 Arimidex (anastrozole) Surgery
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Jan 10, 2019 10:12PM edwards750 wrote:

I had a lumpectomy and had to have a second surgery because the margins weren’t clear. My BS said it’s very common.

Diane

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Jan 11, 2019 07:51PM Denise-G wrote:

I had a UMX, but mom and sister had lumpectomies. At our large University hospital, they had the technology to check the margins

while the patient is in surgery. It eliminates the need for repeat surgeries. For both my sister and mom, they had to take more than they had initially, but as I said, it was all done at the same time.

I would recommend your sister consult an NCI Designated Cancer Center for a second opinion at this point.

https://www.cancer.gov/research/nci-role/cancer-centers/find



www.denise4health.wordpress.com my BC Blog with over 200 informative posts about all aspects of BC - stop by! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2+ (FISH) Surgery 11/22/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/26/2011 AC + T (Taxol) Targeted Therapy 2/27/2012 Herceptin (trastuzumab) Hormonal Therapy 10/10/2012 Arimidex (anastrozole)
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Jan 12, 2019 07:24AM viewfinder wrote:

Thank you Denise-G for the information. It's a shame that the techology you mention isn't available for every cancer patient.

I will tell my sister about the designated NCI Designated Cancer Centers. There happens to be one in the city where my sister lives: Fred Hutchinson/University of Washington Cancer Consortium. I will tell her about it. Thanks again!

"I felt sorry for myself because I had no shoes, until I met a person who had no feet." - Source unknown Dx 4/2018, IDC, Left, <1cm, Grade 1, 0/2 nodes Surgery 7/10/2018 Lumpectomy: Left Radiation Therapy 9/13/2018 Hormonal Therapy 10/13/2018 Arimidex (anastrozole) Surgery
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Jan 15, 2019 08:24AM viewfinder wrote:

Denise-G, Before I even had a chance to tell my sister, she changed her cancer team based on many recommendations from others. She has her first appointments next Wednesday at the Seattle Cancer Care Alliance, associated with Fred Hutch and the National Cancer Institute.

"I felt sorry for myself because I had no shoes, until I met a person who had no feet." - Source unknown Dx 4/2018, IDC, Left, <1cm, Grade 1, 0/2 nodes Surgery 7/10/2018 Lumpectomy: Left Radiation Therapy 9/13/2018 Hormonal Therapy 10/13/2018 Arimidex (anastrozole) Surgery

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