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Topic: August 2019 surgery support group

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Jul 6, 2019 06:10PM - edited Jul 29, 2019 05:59PM by ucfknights

ucfknights wrote:

mom will be getting surgery sometime in August. Please drop by if you are scheduled in August or already had surgery and have any tips :)


Edited to add: my mom is getting a BMX on Aug 19. Final chemo is July 23rd


Here’s the list:

August 1 - LMS458412 - bilateral mastectomy w/o reconstruction

August 2 - sagelady - L mastectomy with sentinel node bx

August 5 - tmh0921 - bilateral mastectomy, latissimus dorsi flap reconstruction on my left breast, and tissue expander placement bilaterally

August 5 - Peggy814 - Bilateral Mastectomy

August 6 - okjoan - lumpectomy and axillary node biopsy

August 8 - laurencl - Right mastectomy with tissue expander placement

August 8 - dawns1962 - nipple sparring (hopefully) mastectomy of my right breast and expanders, left breast lifted

August 13 - arizonaboundgal - bilateral mastectomy with no reconstruction

August 19 - ucfknights' mom - bilateral mastectomy

August 19- notdefined - unilateral mastectomy with diep reconstruction

August ? - Nadia_D - right breast mastectomy with tissue expander placement

August ? - Margun - bilateral Goldilocks

Dx 1/23/2019, DCIS/IDC, Left, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/4/2019 Lumpectomy: Left; Lymph node removal Dx 2/28/2019, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR-, HER2- Chemotherapy 3/11/2019 AC + T (Taxol) Surgery 8/19/2019 Prophylactic mastectomy: Right
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Posts 481 - 502 (502 total)

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Jan 13, 2020 10:59AM Brilee76 wrote:

It's been 5 months since my surgery. I occasionally have discomfort with my implants. I've having revision to my reconstruction in March to fix some symmetry and rippling issues. My scars are still pretty "there". The scars from my drains are starting to shrink and/or fade so that's nice. I have my hysterectomy/oophorectomy surgery next Monday. (1/20) I'm in no way as prepared as I was for the BMX. I hope you ladies are doing well. I'm a little late but Happy New Year!

~Bridget (BRCA2, 7/1/19-Lupron, 12/30/19-Zometa) Dx 5/16/2019, ILC, Left, 3cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 7/1/2019 Hormonal Therapy 7/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/6/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 9/18/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/16/2019 Femara (letrozole) Hormonal Therapy 12/30/2019 Surgery 1/20/2020 Prophylactic ovary removal
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Jan 14, 2020 07:58AM Yogatyme wrote:

I had BMX on Aug 13 and am doing well. Scars are healing well and I still have minor rib pain where drains were placed, but getting better. Back to my normal routine and generally feeling good.

Brilee, I had prophylactic oopherectomy last March, and honestly, it was a walk in the park. A little tenderness for a few days but I didn’t have “pain” per say. OTC Tylenol took care of any discomfort and I think I only took that once or twice.

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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Jan 14, 2020 10:13AM Brilee76 wrote:

Thanks for the words of encouragement, Yogatyme! My gynecologist sounded very unconcerned during my post-op appointment with her so I'm glad this surgery won't be as bad as the BMX. I'll also be having the uterus and cervix removed during this procedure. The only concern I have at the moment is prolapse. We're gonna just hope that doesn't happen. ;)

~Bridget (BRCA2, 7/1/19-Lupron, 12/30/19-Zometa) Dx 5/16/2019, ILC, Left, 3cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 7/1/2019 Hormonal Therapy 7/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/6/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 9/18/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/16/2019 Femara (letrozole) Hormonal Therapy 12/30/2019 Surgery 1/20/2020 Prophylactic ovary removal
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Jan 14, 2020 12:06PM Yogatyme wrote:

brilee, fingers crossed for you!

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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Jan 15, 2020 08:54AM Kkmay wrote:

Hi ladies!

I hope everyone is doing well

Mom had left breast mastectomy last August followed by radiation and xeloda. Now she complains from occasional back and shoulder pain, not severe though. Her right rib hurt her when she moves. Is that normal?

Dx 1/22/2019, IDC, Left, 6cm+, Stage IIIB, Grade 2, ER-/PR-, HER2- (FISH) Chemotherapy 2/17/2019 AC + T (Taxol)
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Jan 15, 2020 11:42AM Yogatyme wrote:

Kkmay, I still have rib pain, so I think that may be normal. Shoulder and back pain could be due to body adjusting.

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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Jan 15, 2020 12:19PM Brilee76 wrote:

I also have some rib pain occasionally on my left side. I had it every day for the first few months until I got through physical therapy.

~Bridget (BRCA2, 7/1/19-Lupron, 12/30/19-Zometa) Dx 5/16/2019, ILC, Left, 3cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 7/1/2019 Hormonal Therapy 7/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/6/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 9/18/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/16/2019 Femara (letrozole) Hormonal Therapy 12/30/2019 Surgery 1/20/2020 Prophylactic ovary removal
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Jan 22, 2020 05:54PM Laurencl wrote:

Hi all!

I have a mammogram tomorrow on my remaining breast, my annual. I was diagnosed last January (I found my lump myself) and then my year began. I am finding this “annual” test to be very triggering

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Jan 22, 2020 08:40PM notdefined wrote:

Right there with you Laurencl. I had mine last Tuesday. Similar to you, found my own lump. I thought I would have to get an MRI as well, but haven't heard back from the Dr. Hugs to you.


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Jan 28, 2020 08:58PM Miriandra wrote:

Hello fellow August people! I had a L mastectomy on August 14th, and will not be having any reconstruction. I have been aggressive with my stretches, and really push my tissues hard whenever I feel my L chest tighten up.

For the ladies experiencing rib pain, do you have a good massage therapist who can confidently work the muscles and tissues between the ribs (intercostal muscles)? I especially recommend myofascial release (MFR) techniques to help guide the internal scar tissue as it matures, so your ribs won't get bound up on each other. It's not always the most comfortable kind of massage, but it makes such an incredible difference afterwards. I had almost full range of motion for my arm just 3 months after my surgery because of fascia work. It's amazing!

Dx 5/31/2019, DCIS/IDC, Left, 1cm, Stage IA, 0/1 nodes, ER+ Surgery 8/14/2019 Lymph node removal: Sentinel; Mastectomy: Left
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Feb 10, 2020 06:28PM Laurencl wrote:

Well I got flagged on my first mammogram of my remaining breast . Had a biopsy and I am ok. Normal breast changes. Yes, this is good news, but I am absolutely exhausted

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Feb 10, 2020 07:44PM Yogatyme wrote:

Lauren, so glad for your news!! Of course you are exhausted.....all the stupid anxiety leading up to and waiting for results takes its toll.

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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Feb 13, 2020 09:04PM Miriandra wrote:

Congrats Lauren! I'm glad you got good news.

Dx 5/31/2019, DCIS/IDC, Left, 1cm, Stage IA, 0/1 nodes, ER+ Surgery 8/14/2019 Lymph node removal: Sentinel; Mastectomy: Left
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Apr 27, 2020 05:04PM Margun wrote:

I hope you are doing well. I was diagnosed in January 2019with triple positive grade 3 cancer. I had my surgery August 19, 2019 after Ac and taxol (Goldilocks bilateral mastectomy where the brests are reconstructed with my one breast fat) and finished herceptin this April 20th. I am more anxious than happy because I was closely followed. But I guess after sometime herceptin does not give additional benefit.

My question Is starting what date we have count 1 year and hopefully 5 years milestone ? After the surgery or when herceptin is stoped?

I am feeling some discomfort around my brests ribs and in upper arm ( mostly in the right affected breast) . Because lymph nodes are removed from only right one, i am guessing ithat is related to the more scans. My April mammogram was postponef until mid June because of covid-19. While I am convincing myself it is cut nerves and muscle around the brest, i am worried. I would like to know if anyone feels such discomfort 1 year after surgery.

Now I am taking letrozole. Some stiffness bone joint pain. What is your experience with this med

Thanks and may we all stay safe and healthy

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May 5, 2020 07:14PM Tmh0921 wrote:

Margun

I’ve always counted survival years from diagnosis date.

I’m on Letrazole now as well, and have stiff/sore joints. My MO has me taking 1000mg of fish oil, which helps. You may want to ask before trying it if you’re on a blood thinner as it can also thin the blood.


My BMX was 8/5/19, which seems forever ago. I’ve since finished chemo, and my tissue expanders are full. My implant exchange surgery was put on hold due to COVID-19, so who knows when I’ll have surgery.

I hope everyone is well

Tracy

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/14 nodes, ER+/PR+ Surgery 12/22/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/31/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/1/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/5/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/2/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Hormonal Therapy 3/24/2020 Femara (letrozole), Zoladex (goserelin)
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May 6, 2020 09:29AM Margun wrote:

hi Tracy,

I hope this virus goes away and you will do your y implant exchange surgery. I thought when implant is placed nothing else should be required.

It seems that in this group no one has fat or skin necrosis. That is great because it is not funny to live with a rock in your breast.

Take care

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May 13, 2020 12:20PM Margun wrote:

did anyone experienced fat necrosis after surgery? Anything can be done to make it go away?

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May 13, 2020 04:29PM Tmh0921 wrote:

No fat necrosis for me this time, but I had it after my lumpectomy in 1999. Apparently it’s not that uncommon.

Tracy

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/14 nodes, ER+/PR+ Surgery 12/22/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/31/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/1/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/5/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/2/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Hormonal Therapy 3/24/2020 Femara (letrozole), Zoladex (goserelin)
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May 13, 2020 04:44PM Margun wrote:

Hi Tracy,

It went away by itself or some things can be done to decrease it? How big it was. Mine is even bigger than a golf ball and gives me some discomfort on and off.I am concerned that it will become bigger because my surgery I think it increased it’s size.

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May 16, 2020 11:00PM - edited May 16, 2020 11:00PM by Tmh0921

I ended up having mine removed because we thought it was close to my tumor size and they wanted to make sure it was only necrosis.

If yours is causing discomfort, I'd ask the doctor about removing it.

Tracy

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/14 nodes, ER+/PR+ Surgery 12/22/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/31/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/1/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/5/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/2/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Hormonal Therapy 3/24/2020 Femara (letrozole), Zoladex (goserelin)
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May 17, 2020 07:17PM - edited May 17, 2020 07:32PM by Margun

The fat necrosis removal is done by local or general anaesthesia?needle biopsy was not sufficient make sure us just necrosis to avoid surgery?

I posted about fat necrosis in several topics and only 2 or 3 people experienced it. According to my internet recherche, this is common after surgery but it is not really true. Let's hope that my surgeon »s hypothesis is correct. But still the removal of it in Covid Environment William not be easy

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May 17, 2020 09:54PM Tmh0921 wrote:

core biopsy could confirm fat necrosis, but if it’s getting larger and causing discomfort you may want to eventually get it removed. Keep in mind my original cancer and lumpectomy was 20 years ago, we didn’t have core biopsy then

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/14 nodes, ER+/PR+ Surgery 12/22/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/31/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/1/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/5/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/2/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Hormonal Therapy 3/24/2020 Femara (letrozole), Zoladex (goserelin)

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