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Topic: August 2019 surgery support group

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Jul 6, 2019 08:10PM - edited Jul 29, 2019 07:59PM by ucfknights

ucfknights wrote:

mom will be getting surgery sometime in August. Please drop by if you are scheduled in August or already had surgery and have any tips :)


Edited to add: my mom is getting a BMX on Aug 19. Final chemo is July 23rd


Here’s the list:

August 1 - LMS458412 - bilateral mastectomy w/o reconstruction

August 2 - sagelady - L mastectomy with sentinel node bx

August 5 - tmh0921 - bilateral mastectomy, latissimus dorsi flap reconstruction on my left breast, and tissue expander placement bilaterally

August 5 - Peggy814 - Bilateral Mastectomy

August 6 - okjoan - lumpectomy and axillary node biopsy

August 8 - laurencl - Right mastectomy with tissue expander placement

August 8 - dawns1962 - nipple sparring (hopefully) mastectomy of my right breast and expanders, left breast lifted

August 13 - arizonaboundgal - bilateral mastectomy with no reconstruction

August 19 - ucfknights' mom - bilateral mastectomy

August 19- notdefined - unilateral mastectomy with diep reconstruction

August ? - Nadia_D - right breast mastectomy with tissue expander placement

August ? - Margun - bilateral Goldilocks

Dx 1/23/2019, DCIS/IDC, Left, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/3/2019 Lumpectomy: Left; Lymph node removal Dx 2/28/2019, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR-, HER2- Chemotherapy 3/10/2019 AC + T (Taxol) Surgery 8/18/2019 Prophylactic mastectomy: Right
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Jan 13, 2020 12:59PM Brilee76 wrote:

It's been 5 months since my surgery. I occasionally have discomfort with my implants. I've having revision to my reconstruction in March to fix some symmetry and rippling issues. My scars are still pretty "there". The scars from my drains are starting to shrink and/or fade so that's nice. I have my hysterectomy/oophorectomy surgery next Monday. (1/20) I'm in no way as prepared as I was for the BMX. I hope you ladies are doing well. I'm a little late but Happy New Year!

~Bridget (BRCA2, 7/1/19-Lupron, 12/30/19-Zometa) Dx 5/16/2019, ILC, Left, 3cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 6/30/2019 Hormonal Therapy 6/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/5/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 9/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/15/2019 Femara (letrozole) Hormonal Therapy 12/29/2019 Surgery 1/19/2020 Prophylactic ovary removal
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Jan 14, 2020 09:58AM Yogatyme wrote:

I had BMX on Aug 13 and am doing well. Scars are healing well and I still have minor rib pain where drains were placed, but getting better. Back to my normal routine and generally feeling good.

Brilee, I had prophylactic oopherectomy last March, and honestly, it was a walk in the park. A little tenderness for a few days but I didn’t have “pain” per say. OTC Tylenol took care of any discomfort and I think I only took that once or twice.

Yogatyme Surgery 3/3/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right
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Jan 14, 2020 12:13PM Brilee76 wrote:

Thanks for the words of encouragement, Yogatyme! My gynecologist sounded very unconcerned during my post-op appointment with her so I'm glad this surgery won't be as bad as the BMX. I'll also be having the uterus and cervix removed during this procedure. The only concern I have at the moment is prolapse. We're gonna just hope that doesn't happen. ;)

~Bridget (BRCA2, 7/1/19-Lupron, 12/30/19-Zometa) Dx 5/16/2019, ILC, Left, 3cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 6/30/2019 Hormonal Therapy 6/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/5/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 9/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/15/2019 Femara (letrozole) Hormonal Therapy 12/29/2019 Surgery 1/19/2020 Prophylactic ovary removal
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Jan 14, 2020 02:06PM Yogatyme wrote:

brilee, fingers crossed for you!

Yogatyme Surgery 3/3/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right
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Jan 15, 2020 10:54AM Kkmay wrote:

Hi ladies!

I hope everyone is doing well

Mom had left breast mastectomy last August followed by radiation and xeloda. Now she complains from occasional back and shoulder pain, not severe though. Her right rib hurt her when she moves. Is that normal?

Dx 1/22/2019, IDC, Left, 6cm+, Stage IIIB, Grade 2, ER-/PR-, HER2- (FISH) Chemotherapy 2/16/2019 AC + T (Taxol)
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Jan 15, 2020 01:42PM Yogatyme wrote:

Kkmay, I still have rib pain, so I think that may be normal. Shoulder and back pain could be due to body adjusting.

Yogatyme Surgery 3/3/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right
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Jan 15, 2020 02:19PM Brilee76 wrote:

I also have some rib pain occasionally on my left side. I had it every day for the first few months until I got through physical therapy.

~Bridget (BRCA2, 7/1/19-Lupron, 12/30/19-Zometa) Dx 5/16/2019, ILC, Left, 3cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 6/30/2019 Hormonal Therapy 6/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/5/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 9/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/15/2019 Femara (letrozole) Hormonal Therapy 12/29/2019 Surgery 1/19/2020 Prophylactic ovary removal
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Jan 22, 2020 07:54PM Laurencl wrote:

Hi all!

I have a mammogram tomorrow on my remaining breast, my annual. I was diagnosed last January (I found my lump myself) and then my year began. I am finding this “annual” test to be very triggering

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Jan 22, 2020 10:40PM notdefined wrote:

Right there with you Laurencl. I had mine last Tuesday. Similar to you, found my own lump. I thought I would have to get an MRI as well, but haven't heard back from the Dr. Hugs to you.


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16 hours ago Miriandra wrote:

Hello fellow August people! I had a L mastectomy on August 14th, and will not be having any reconstruction. I have been aggressive with my stretches, and really push my tissues hard whenever I feel my L chest tighten up.

For the ladies experiencing rib pain, do you have a good massage therapist who can confidently work the muscles and tissues between the ribs (intercostal muscles)? I especially recommend myofascial release (MFR) techniques to help guide the internal scar tissue as it matures, so your ribs won't get bound up on each other. It's not always the most comfortable kind of massage, but it makes such an incredible difference afterwards. I had almost full range of motion for my arm just 3 months after my surgery because of fascia work. It's amazing!

Dx 5/31/2019, DCIS/IDC, Left, 1cm, Stage IA, 0/1 nodes, ER+ Surgery 8/14/2019 Lymph node removal: Sentinel; Mastectomy: Left

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