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Topic: August 2019 surgery support group

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Jul 6, 2019 06:10PM - edited Jul 29, 2019 05:59PM by ucfknights

ucfknights wrote:

mom will be getting surgery sometime in August. Please drop by if you are scheduled in August or already had surgery and have any tips :)


Edited to add: my mom is getting a BMX on Aug 19. Final chemo is July 23rd


Here’s the list:

August 1 - LMS458412 - bilateral mastectomy w/o reconstruction

August 2 - sagelady - L mastectomy with sentinel node bx

August 5 - tmh0921 - bilateral mastectomy, latissimus dorsi flap reconstruction on my left breast, and tissue expander placement bilaterally

August 5 - Peggy814 - Bilateral Mastectomy

August 6 - okjoan - lumpectomy and axillary node biopsy

August 8 - laurencl - Right mastectomy with tissue expander placement

August 8 - dawns1962 - nipple sparring (hopefully) mastectomy of my right breast and expanders, left breast lifted

August 13 - arizonaboundgal - bilateral mastectomy with no reconstruction

August 19 - ucfknights' mom - bilateral mastectomy

August 19- notdefined - unilateral mastectomy with diep reconstruction

August ? - Nadia_D - right breast mastectomy with tissue expander placement

August ? - Margun - bilateral Goldilocks

Dx 1/23/2019, DCIS/IDC, Left, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/3/2019 Lumpectomy: Left; Lymph node removal Dx 2/28/2019, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR-, HER2- Chemotherapy 3/10/2019 AC + T (Taxol) Surgery 8/18/2019 Prophylactic mastectomy: Right
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Aug 5, 2019 02:28AM Kkmay wrote:

Thank you ladies ❤️

We are at the hospital now. The did a cbc and platelets are at 68. Is it Ok to have surgery at thia level

Dx 1/22/2019, IDC, Left, 6cm+, Stage IIIB, Grade 2, ER-/PR-, HER2- (FISH) Chemotherapy 2/16/2019 AC + T (Taxol)
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Aug 5, 2019 03:29AM sagelady wrote:

Tmh... you’ll be fine... see you on the recovery side.


POD3... feel fine when just sitting or standing. It’s the getting up and down that gets my attention. Trying not to do the pain meds ( constipation) . Using Ducolax. 2 drains putting out about 25cc each a day.

Sleeping in recliner so I stay on my back. Implant on mastectomy side still rather “ deformed”. They say it will straighten itself out after a few weeks. Swelling and sutures and such... hope so.


That’s about it for now... prayers for all the August sisters 🙏


Sage

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Aug 5, 2019 07:08AM LMS458412 wrote:

Thinking positive thoughts today for Peggy814, kkmay's mom and tmh0921. You can get through this!!!

All is well here. Still dealing with a little tightness and soreness here. But, I'm sleeping and eating well. I'm sleeping in the bed with pillows on my side to keep me from moving, and several pillows for my head to keep me propped up at an angle. It seems to be working okay so far.

I'm only on one Tylenol every 4 or 5 hours. Drainage is light pink to light yellowish, but still getting 20-25 ml a day out of 2 drains, and about 40-45 ml a day out of one drain. That one's gonna be my stubborn one that sticks around awhile! But, the amount is getting less and less each day, so everything is moving in the right direction.

I did have to take a stool softener yesterday, but my system seems to be working okay today.

First follow-up is Wednesday, and I hope my drains will come out sometime next week. I'm looking forward to being able to drive my son to school or run to the grocery store in a couple of weeks. Maybe I'll get a week or two of "normalcy" before I start the next stage of treatment.

Dx 7/8/2019, IDC, Right, 1/7 nodes, ER+/PR+, HER2- (FISH) Surgery 8/1/2019 Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 9/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 5, 2019 05:30PM - edited Aug 5, 2019 05:32PM by Tmh0921

Surgery went well , More soreness than actual pain. I'll be here overnight and hopefully go home tomorrow.


I'll post more details then

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/14 nodes, ER+/PR+ Surgery 12/21/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/30/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/31/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/4/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 5, 2019 07:21PM LMS458412 wrote:

Glad surgery went well, Tracy.

Good luck tomorrow, okjoan.

Dx 7/8/2019, IDC, Right, 1/7 nodes, ER+/PR+, HER2- (FISH) Surgery 8/1/2019 Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 9/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 5, 2019 07:55PM - edited Aug 5, 2019 07:55PM by Laurencl

Tmh

Glad surgery went well. Hope you have a good night and get some rest.

Laure


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Aug 5, 2019 08:12PM okjoan wrote:

Thank you. I'm a little nervous, but I know it will be fine.

Dx 6/21/2019, DCIS, Right, Stage 0, Grade 3, ER+/PR+
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Aug 5, 2019 08:25PM notdefined wrote:

Good luck tomorrow okjoan!

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Aug 6, 2019 12:59AM Tmh0921 wrote:

we’ll be thinking about you during surgery okjoan

Hope your recovery goes well

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/14 nodes, ER+/PR+ Surgery 12/21/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/30/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/31/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/4/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 6, 2019 04:20AM arizonaboundgal wrote:

Great to hear from you, Tmh! Rest up, now.

Okjoan….Thinking of you. You'll do great.

Enjoy every sandwich--Warren Zevon
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Aug 6, 2019 06:59AM sagelady wrote:

Hope all when well today okjoan. let us know how your feeling !

How's the recovery going Tmh and LMS ? hope you are progressing well.

Sage

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Aug 6, 2019 07:12AM OnTarget wrote:

Good luck to all of you having surgery this month! I had mine in May 2019 and I feel great! The surgery was easy-peasy since I was sleeping through it. It was painful after waking up, but once they got me leveled out and put me on Tramadol I was much better. My back hurt more than anything weirdly enough.

It hurt much less than I expected. I mainly used Tylenol and Ibuprofen with Tramadol a few times. There is was a fast, searing pain, mainly in my sternum, that would come from certain movements, but generally it was fine. I was pretty sleepy and slept a lot for the first few weeks. I also walked 1-3 miles a day.

Some of the fills hurt, so if you get tissue expanders, I'd recommend going easy on the fills after the first one or two. The nurses will tell you that "tissue expanders hurt", and that isn't really accurate for me. They hurt at first and hurt until they fill up a bit and after the skin relaxes from the fill.

For what to buy- these are the things that helped me most:

*Wedge pillow

*Little travel pillows from Walmart (they're $3 or $4)- I got 4 and could have used more

*I did NOT use my body pillows even though I'm a side sleeper. It hurt to sleep on my side- it still does actually.

*Cushion for my chest in the car. I also slept with it to keep the cats off my chest. It was very reassuring. I still drive with it.

*Halls throat drops for after the surgery. Sore throat was awful until I used these.

*I did not like the mastectomy shirts I got. They hold the drains up on your stomach, which is uncomfortable and made me look weirdly shaped with my flat chest. I liked the ones you can put on your waist. I had no issues going out in public with them, they just look like two little pink pockets, and I left them hanging outside my clothes, or sometimes covered a bit with my t-shirt.

*I enjoyed having drain holders for the shower. You can use a landyard, but I liked the holder made for it.

*I really didn't need button downs after the first few days. I went around in stretchy T-shirts, and they were great. Soft, easy to put on, looked pretty normal other than the flat chest.

Unless you are staying in the hospital for more than one night, I don't think you need the plethora of things people suggest. No robes- you aren't going anywhere, you're just sleeping.

I had no problem putting my regular tennis shoes on to go home- I didn't bend over though, just slipped my feet in.

I liked having clean wash cloths, towels, and sheets every day the first week, so DH did a lot of laundry.

It is hard to get out of bed at first. My abs hurt under my breasts, so the abs hurt to use. I ended up grabbing one leg behind the knee, and used a little rocking motion, and used the leg to lift me up. Or just ask someone for help.

I did have a lift chair and it was great. Not necessary, but nice.

The tissue expanders look really weird at first, but look better as they fill up.

Diagnosed at 42, Oncotype score 16, ITC in one node- considered node negative Dx 4/8/2019, ILC, Left, 3cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 4/23/2019, ILC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/15/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/13/2019 Zoladex (goserelin) Chemotherapy 8/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/6/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 6, 2019 09:29AM Laurencl wrote:

Okay, not sure this is appropriate, but I need to vent and I know that thisgroup understands. I just got a call that I need cardiac clearance for surgery Thursday after a flagged ekg yesterday. I see a Dr. In about an hour.

I had an echocardiogram in February to get cleared for chemo, given gallons of blood and been through 4 months of chemo , lost my hair, eyebrows, eye lashes and 20 pounds from being sad, just to get here...AND I HAVE HAD IT. Yeah, my heart is beating out of my chest now after going through all this. Like surgery would not be stressful enough! I am over all this and one of the biggest events is in 48 hours....I just want to scream!

To the warriors who have been through surgery already, Thank you all for sharing your experience and for removing fear from the equation. Please forgive my momentary self indulgence .

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Aug 6, 2019 09:37AM notdefined wrote:

Laurencl-Vent away! I would be frustrated too. What warranted the EKG? I was surprised that I didn't have to do another echo after finishing chemo. Hope it all goes well, and that surgery can go on as planned.

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Aug 6, 2019 10:44AM - edited Aug 6, 2019 01:43PM by Margun

laurenc- I hope all will be good and you go forward as planned.

As it goes for echo before surgery, notdefined, it is requested for me as well and I think is requested for all who received taxol and herceptin,because herceptin May affect heart.

My surgery is scheduled on August 19th, the same day as you. I am anxious but also ready to go over this step as well. Good luck to all of us

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Aug 6, 2019 01:10PM prehistoricmom wrote:

Hi all, grateful to have found this forum & to read others' stories! Put me on the list, too: Lump Lt 8/16 and SNB the day before. Like & trust my BS, not so much my RO who seemed to think I wasn't taking it seriously enough? 3 wks before dx, husband wants a separation, 1 day before biopsy, 16yo son doesn't want me in his life anymore--much worse than BC dx--both have Aspergers. In some ways, easier to do this w/o them as I don't have to explain & reassure constantly.

SIL had BMX this year so got a lot of good info & reassurance from her ❤️

TMH thanks for the list, I had not thought of stool softener!💩


"You just have to take it one 'are you f*cking kidding me' at a time" amanda x. coleman Dx 7/23/2019, IDC, Left, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 8/16/2019 Lumpectomy: Left Radiation Therapy Breast
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Aug 6, 2019 01:14PM prehistoricmom wrote:

Laurencl not self indulgent! Better out than in. An old friend told me I am on the isle of DONE and I think you might be living there, too. In the COMPLETELY THROUGH suburb. xoxo

"You just have to take it one 'are you f*cking kidding me' at a time" amanda x. coleman Dx 7/23/2019, IDC, Left, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 8/16/2019 Lumpectomy: Left Radiation Therapy Breast
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Aug 6, 2019 02:03PM Laurencl wrote:

Had another ekg and the Dr. wanted another echocardiogram (and since he was in a full service medical facility, they could do it there and he asked the tech to do it today and she did). At first the office said they couldn’t (and I started to cry), but the Dr. helped. After the test I was told I would be cleared (by the front desk) and yep, cried again. This last minute ...stuff.. is on my last nerve!

Notdefined

I don’t even remember the last time I had a EKG . I don’t think my Primary has given me one in years(and the cardiologist is in the same hospital system and could find no record of one). I remember my old Primary gave me one around 15 years ago. The Cardiologist said that they probably didn’t give me One because they didn’t think I needed one. My BS ordered the echocardiogram prior to starting chemo (because it’s a REAL test and actually tells you something maybe?) and did not order an EKG then. They called Friday to say I had to have one and it came back funky...Which set in motion today’s circus!

Prehistoric

I hate to say welcome, but welcome. We all understand this struggle. I am so sorry for your family struggles. Teenagers can be “fun”...as can a spouse! You are right about the constant reassuring and also trying to act okay and strong. Liking and trusting your Dr. is key and these boards are super helpful.

Thank you for letting me rant. Keep the faith Warriors!

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Aug 6, 2019 02:06PM Laurencl wrote:

prehistoric

LOVE the Isle of DONE and stealing the phrase for future reference! Yes, we live in the same suburb

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Aug 6, 2019 06:49PM Kkmay wrote:

Hi ladies

Unfortunately mom has not gotten surgery yet. It was delayed because of low WBC and low platelets. Her counts are dropping everyday and she has slight fever. Could it be because of the chemo? Her last chemo was on the 21st.

Dx 1/22/2019, IDC, Left, 6cm+, Stage IIIB, Grade 2, ER-/PR-, HER2- (FISH) Chemotherapy 2/16/2019 AC + T (Taxol)
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Aug 6, 2019 09:32PM Laurencl wrote:

kkmay

I’m learning that the unexpected is the norm! I hope she is stable soon and surgery can take place

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Aug 6, 2019 10:01PM Moderators wrote:

Welcome, prehistoricmom! We're sorry you find yourself here, but we certainly hope you find the support you need within this community!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Aug 7, 2019 08:11AM okjoan wrote:

Good morning ladies. Surgery went well yesterday. I had to have some additional pain meds in recovery, but otherwise my norcon has stayed on top of it since. I want to switch over to Advil, but that 6 hour mark approaches and the pain sneaks in. Eventually...

I'm feeling pretty good. Sleep was in 1-2 blocks last night, but I feel rested, sort of.

I have my post-OP next Wednesday so I will find out my pathology then.

Right now I'm focused on rest and getting off the norcon. I want to work a shift at school on Friday for schedule pick-up. Hopefully I will be able to do it.

Thank you for the thoughts and support.


Dx 6/21/2019, DCIS, Right, Stage 0, Grade 3, ER+/PR+
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Aug 7, 2019 09:03AM DawnS1962 wrote:

Thank you ladies for your post surgery information. It really helps calm my nerves. Tomorrow will be here soon and I'm terrified but know it has to be done.

Laurencl, I'm so sorry things aren't going easier for you. I had an EKG the week they did all my scans and I've had 2 echocardiograms because of Herceptin.

I'm still waiting for a call to find out what time I have to be at the hospital tomorrow. The node testing is 730 and they have surgery scheduled for 8.

Dx 1/25/2019, IDC, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/28/2019 AC Chemotherapy 3/1/2019 AC + T (Taxol) Targeted Therapy 4/25/2019 Herceptin (trastuzumab) Surgery 8/8/2019 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 8/16/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+, HER2+ Targeted Therapy Perjeta (pertuzumab)
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Aug 7, 2019 10:12AM - edited Aug 7, 2019 10:16AM by Margun

Dawn-I will be thinking of you tomorrow and I hope you have successful surgery and speedy recovery. I undersatand well that are terrified. Mine is on 19 and I already get anxious but as you said we have to go over this step as well and let's hope everything ends well. Are you coming back the same day or staying overnight. I am staying overnight.

I am 13 days post taxol but I bled today as well as a few days ago a bit more intense than during Taxol and always from right nostril. Is this normal

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Aug 7, 2019 10:44AM Margun wrote:

ladies doing mastectomy - was it suggested to you that mastectomy may eliminate the necessity of the radiation

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Aug 7, 2019 11:19AM DawnS1962 wrote:

Hi Margun, thank you for your kind words. I am staying overnight at the hospital. If I had a lumpectomy it would have been outpatient.

I had bloody noses while on AC and Taxol. I haven't experienced any bleeding post Taxol though everyone is different. I think by halfway through Taxol the bleeding was on a daily basis. Maybe you should call the ON nurse just to make sure it's not an issue.

Dx 1/25/2019, IDC, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/28/2019 AC Chemotherapy 3/1/2019 AC + T (Taxol) Targeted Therapy 4/25/2019 Herceptin (trastuzumab) Surgery 8/8/2019 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 8/16/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+, HER2+ Targeted Therapy Perjeta (pertuzumab)
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Aug 7, 2019 11:39AM ucfknights wrote:

my mom’s surgeon said the BMX will be outpatient. My mom’s is the 19th and i miss already stressed to the max.. i even have chest pains and I’m not the one going through it. We had MRI Monday and tomorrow is for the results. How accurate is the MRI after chemo prior to surgery?

Dx 1/23/2019, DCIS/IDC, Left, Stage IIB, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 2/3/2019 Lumpectomy: Left; Lymph node removal Dx 2/28/2019, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR-, HER2- Chemotherapy 3/10/2019 AC + T (Taxol) Surgery 8/18/2019 Prophylactic mastectomy: Right
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Aug 7, 2019 11:40AM Margun wrote:

hi Dawn- you had no bleeding at all after last treatment? Until the 7 th day of post taxol I did not worry at all because it was within regular 1 week cycle but today after 13 days I got a bit worried . It is stopped now thankfully.

Did you have any herceptin after taxol was finished and when you start it after the surgery,? Mine will be 11 days after the surgery.

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Aug 7, 2019 01:09PM DawnS1962 wrote:

Margun, my nose hairs have grown back and my nose stopped running within a week after I finished Taxol. The nose bleeds stopped then also.

I had Herceptin a week after I finished Taxol. My next one won't be till after I meet MO on 8/28. He's going on vacation and also we don't know if I'll be on Herceptin or Kadcyla till the results of my pathology report next week.

Dx 1/25/2019, IDC, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/28/2019 AC Chemotherapy 3/1/2019 AC + T (Taxol) Targeted Therapy 4/25/2019 Herceptin (trastuzumab) Surgery 8/8/2019 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Dx 8/16/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+, HER2+ Targeted Therapy Perjeta (pertuzumab)

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