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Dec 9, 2019 08:08AM
Don’t know if this will help but I just logged in to find “expander experience and there’s few of us posting so I’ll share with you. First, I’m sorry you felt pain but my PS saw me last week and I’m reassured that it’s not that unusual for an expander to move but they are completely contained (don’t puncture) so unlikely to leak.
He has now manipulated (with his hand) my right one twice in his office after it flipped. Did not hurt, though felt weird and a bit uncomfortable for a few minutes. The back flipped to the front so the magnet was inaccessible until he flipped it back. The first time was after the radiation oncologist had 300 cc’s removed after full expansion because of the angle of obstruction. Sometime that month the de-expanded right one flipped. Wasn’t urgent in my case and I was relieved he could do it in the office. Added 200 cc’s saline then.
Paused for a couple of months to have a kidney issue treated. Appointment with PS was last week and sure enough, the pesky right one had flipped again in my sleep. It was more full, but he flipped it in half the time during my office exam, then filled it up. He’ll check me in 2 months and schedule surgery for the implants in March.
So, when it flipped again on Friday night I was pretty dismayed. Sunday I slathered on Aquaphor to give my post-radiation skin an extra moisturizing treatment. And this morning I deliberately lay on my side/stomach and gently massaged the right one. Sure enough, gravity worked for me this time - it flipped back! It’s ok, looks like it should and is more comfortable.
“Do not try this at home”. Seriously, I would always recommend calling your plastic surgeon to pop in for a quick flip, as I was about to do, but after two flips I knew what it felt like and I think I knew when to stop. I am shocked it went back so I don’t have to make an appointment. I think he said it happens about 20% of the time, and they’re all trained to fix it.
Go Wednesday. Don’t worry. And if anyone here has suggestions on how to sleep on our backs without rolling over, please post.
Hope this helped, Lucky.
2/12/2019, IDC, Right, 6cm+, Stage IIB, 1/4 nodes, HER2-
5/15/2019 Lymph node removal; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
6/23/2019 Arimidex (anastrozole)
7/17/2019 Breast, Lymph nodes, Chest wall