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May 3, 2020 10:38AM
Lovetoberestored I’m so glad you are feeling better from the surgery. I can definitely relate to being tired. Who knows what the ultimate cause is when our bodies have been through so much? Hugs and best wishes that your radiation treatments will be successful. I’ll be having them later in the month.
Maryjv and abc54321, I hope your pain has eased even more now that more time has passed. My burning has definitely gotten better but it is still with me on my left side. Thanks for sharing my pain.
OnlyGirlof5, sage and AngieB92, how are you doing with TEs and your reconstruction? sage, thanks for the encouragement that the burning and nerve damage does get better with time. Darlene63, how are you doing now? 2girlz1boy and pjb61, are you back to 100%?
My low grade fever persisted after my Kadcyla treatment so I went to an urgent care last week and found out that I had an infection in my surgery wound. It was just a small opening under my right arm. Several doctors had looked at the wound and thought that it was fine. I had been treating it with Bacitracin ointment. The type of bacteria that was causing the infection was definitely the result of surgery and not something you get at home. An antibiotic should take care of that and I should be healthy again for my second Kadcyla treatment on Thursday.
It has been over 6 weeks since I had my BMX. I had hoped that I would be fully healed in half this time. Others had warned me that it was going to be a long process, but I had hoped that I would not follow in their footsteps. Living with pain is exhausting. I stopped taking Gabapetin due to the SEs. I'm taking a normal dose of Ibuprofen to help with pain and swelling now (down from very high dosage).
I have a wonderful therapist that is treating the cording in my left arm and massaging to reduce the swelling under my arms. Due to feeling so bad after chemo and with the infection, I missed a few appointments but now I’m seeing her twice a week and it is really helping.
My scars are looking pretty good now. I’m starting to use silicon tape to make them look better. I’m able to sleep on my stomach again. (Yay!) I have excellent range of motion and will continue to work on my PT through radiation to try to prevent lymphadema.
My next step is to buy prosthetics. With everything being closed, I have not been out of my home much and I’m fine with being flat at home. Has anyone done this already?
6/17/2019, DCIS/ILC, Right, 5cm, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2+ (FISH)
8/1/2019 Perjeta (pertuzumab)
8/1/2019 Carboplatin (Paraplatin), Taxotere (docetaxel)
10/9/2019 Abraxane (albumin-bound or nab-paclitaxel)
10/10/2019 Herceptin (trastuzumab)
3/18/2020 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
6/1/2020 3DCRT: Breast, Lymph nodes, Bone
8/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)