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Topic: April 2020 Surgery group

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Mar 18, 2020 02:33PM

ijl wrote:

They called me and set my lumpectomy for April 8.

I had lumpectomy followed by mastectomy and DIEP reconstruction 12 years ago due to extensive DCIS.

Now the tumor is small. I was thinking of doing mastectomy but since coronavirus problems I decided to play it safe and go with a simple lumpectomy first. My tumor is grade 1 and 1.6 cm. If it were not for being at one of the hot spots of coronavirus : Santa Clara county I might have considered IORT where they do one radiation during lumpectomy and be done with it. But it would require a special OR where this equipment is available and might push out the surgery further.

Hence my options are limited now to a simple lumpectomy. And I am very worried that they might push it out.

Anyone else there worried about surgery being postponed ?

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Mar 18, 2020 04:44PM Lostchick wrote:

I was diagnosed with lobular carcinoma in my right breast on 2/20. Lefty has 3 spots that they wanted to biopsy but I am opting to have a bmx with nipple delay reconstruction. My doctors (surgeon and plastic surgeon) are coordinating times for the surgeries. Their plan is to do nipple delay procedure and sentinel node biopsy and then go back in 2 weeks to do bmx and reconstruction. I called them today because I hadn't heard anything from them in over a week and didn't know if maybe they were postponing it due to Coronavirus. My original thought when I was first diagnosed was that I wanted to do all of this as soon as possible so that I could just move on with my life. Now I'm not so sure. I'm scared of being in the hospital. I'm scared of having a lowered immune system due to surgery. I'm scared that something will happen with doctors and/or hospitals due to the virus and I'll slip through the cracks. Hearing you mention getting lumpectomy until things settle down resonates with me but I don't know. Will things settle down any time soon? Should I just get it done now. Should I just have bmx without reconstruction? Hopefully I'll get my surgery date soon and I'm thinking it will be in April so I'm joining I this group I'd love to hear others thoughts during this trying time

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Mar 18, 2020 05:54PM Badluckbdaygirl wrote:

Hi Lostchick,

I’m sorry that you are having to deal with all this. I also had multiple spots they wanted to biopsy (one was hard to get to and would have needed a different type of biopsy), but since I decide on a double mastectomy, there was no need to biopsy that one since the tissue would be gone. I’m assuming it was a fibroid as the pathology came back with just one tumor being cancerous.

That’s a hard decision to wait. I thought my wait was forever with coordinating my BS with my PS so I cannot imagine doing that right now. I just had my exchange surgery last week when all this was ramping up and I’m sure it would probably be “elective” right now. Scar times.

I wish you a lot of luck. You will get through this!!

Dx 10/28/2019, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 12/10/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 12/13/2019, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 12/13/2019, LCIS/DCIS, Right, Grade 2, 0/3 nodes Hormonal Therapy 2/27/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/6/2020 Reconstruction (left): Nipple reconstruction, Silicone implant; Reconstruction (right): Nipple reconstruction, Silicone implant
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Mar 18, 2020 06:02PM Nana2-8 wrote:

Finally! A thread for those of us scheduling April surgery! Raising my hand. I purposely pushed mine into April (I too was diagnosed on 2/21). In the interim, I have 're-played' our conversation with the surgeon over and over (not recorded) and thru my jumbled mind, played out every scenario ....deciding on mastectomy with no reconstruction. Get me in....get me out. Get IT out! Then....COVID-19 hits the fan! ~ I had the calmest conversation with his navigator this past Monday and she explained that I was still scheduled for a 'lumpectomy'.....not mastectomy. Our plan is for me to connect with them again about a week before the date to determine the census of the hospital (if affected by coronavirus) and IF they needed to push back my date, I was not in danger. I feel very relieved with their approach. (Ask me again as the date nears!)

Reason I push the date out was so that I could travel (within the USA) Naturally, that trip was cancelled. We were to fly back home, and the first question asked by surgeons office was how was I getting back home. They were very glad to hear we were going to drive, and NOT fly.

Let's all stay connected and hold each others hands during this topsy-turvy time....both in our bodies and in our society.

Dx 9/23/2015, DCIS/IDC, Left, 1cm, Stage 0, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 10/14/2015 Lymph node removal: Left, Sentinel Dx 2/21/2020, ILC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2-
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Mar 20, 2020 07:20AM lieserjp wrote:

Good morning . Have you heard heard of lumpectomies and/or lymph node dissections being cancelled due to COVID-19? My wife had her 6th TCHP round on 3/2 and is suppose to have a lumpectomy at Dana Farber in Boston the first week of April, along with the removal of at least one lymph node. We are anxious about it being cancelled - especially since we have to travel. Thank you!


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Mar 20, 2020 08:37AM Nana2-8 wrote:

Good morning! I think you might be told the same thing I was.....it's "wait and see" as to the demands this virus puts on the hospital. I was told to check back as we got closer to the date. How far will you have to travel? Will you drive or fly? (Flying might become an issue) As I was told, my circumstances presented no danger if they needed to push me out for a bit. By "for a bit", I am thinking another month or more wouldn't change the outcome. That has put my mind at ease. My advice to you is to stay in touch with the surgeon/Dana Farber. Good luck and God speed.

Dx 9/23/2015, DCIS/IDC, Left, 1cm, Stage 0, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 10/14/2015 Lymph node removal: Left, Sentinel Dx 2/21/2020, ILC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2-
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Mar 20, 2020 11:52AM ijl wrote:

Stanford just called and scheduled all my pre-op appointments. So I am crossing my fingers.

Americans have been asked to cancel elective surgeries and this is not one of them So I am hopeful that they will keep this date.

I actually wonder that once they put a savi scout inside theyhave to do the surgery :)


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Mar 21, 2020 03:58PM CallMeTenacious wrote:

I am waiting for a surgery date. I am not encouraged that it is going to happen any time soon. I spoke with the scheduling nurse yesterday and learned that the hospital administration is limiting the surgeries that can be scheduled; I'm dealing with Emory University Hospital in Atlanta. I have two Savi Scouts in place and that does not appear to matter. I requested that the surgeon contact me to re-affirm that I am not endangering my health by waiting more than if I were to have the surgery. I'm to have a double lumpectomy, sentinel node biopsy and oncoplasty.

I was diagnosed and met with the breast surgeon in January. She was adamant that she wanted me to wait for surgery as I was still recovering from two robotic surgeries for hysterectomy and ovarian cancer staging (10/19 and 12/19). The ovarian cancer is a rare form and is treated with surgery only (whew!). I took her advice and physically feel better that I have in a long time. My husband and I have committed to a self-quarantine until this is resolved. Grateful that we have a home in a wonderful small neighborhood where we can walk a lot.

Best to all!

Dx 1/10/2020, IDC, Left, <1cm, ER+/PR+ Surgery Lumpectomy: Left; Lymph node removal: Sentinel
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Mar 21, 2020 08:33PM ijl wrote:

Hi CallMeTenacious,

Do I understand correctly that they scheduled your Savi Scout procedure without scheduling your surgery date ?

Did they schedule your senteiniel node tracking placement ?

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Mar 22, 2020 12:14AM KatieKan wrote:

I was just diagnosed Wednesday. Recovering from excisional biopsy last week. And I've HATED my doctor, so I'm going through transferring to a new doctor and trying to decide between mastectomy or further lumpectomy and radiation, all during this covid craziness. I'm super worried about surgeries being cancelled eventually. I just couldn't stay with my current doctor though...not only for the purpose of rushing. But I'm really hoping I won't have to just live with this knowledge until the pandemic gets better. My oldest daughter graduates high school this year too. She's getting acceptance letters and the last thing I want is to take attention away from her. She's already missing the end of senior year. So much to handle at once!

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Mar 22, 2020 10:58AM Nana2-8 wrote:

KatieKen - You have a lot going on right now, the most important of which is your health. You haven't filled out your profile (results of biopsy, etc) so am unaware what you are facing. The fact that you need to find a new doctor might be first on your list.....and now is not a good time to be "shopping" whatwith the medical field being over whelmed. I so clearly remember being in an emotional spin, frayed nerves, difficultly sleeping etc., the first time I was told I had breast cancer. Overwhelmed! I am surprising myself with the amount of calm I find myself in dealing with my latest diagnosis. Maybe it's a 'been there/done that' attitude. I have no idea. All I can go on is what I have been told as the result of the biopsies and that it is 'slow growing'. My head is having a hard time turning off which makes sleeping difficult, but my spiritual strength seems to increase to balance things out.

You have a very good distraction within your household....your high school senior and all the distractions that comes with it. Use those to your advantage. Trust me, it helps. Trust in the fact that whatever Dr you find, you won't just have to linger around waiting for the pandemic to pass if, in fact, you need care sooner. In the meantime, share in your daughters joy of preparing for her college days come this fall! You, and your daughter, will both feel better if your diagnosis isn't your primary focus. It will send a good and strong message to her, as well.

Dx 9/23/2015, DCIS/IDC, Left, 1cm, Stage 0, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 10/14/2015 Lymph node removal: Left, Sentinel Dx 2/21/2020, ILC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2-
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Mar 22, 2020 06:54PM CallMeTenacious wrote:

ill - Yes, they scheduled and did my Savi Scouts without a surgery date and before my plastic surgeon consult. The breast surgeon would have put one in for the malignant one at the time of my initial consult if she had been able to do it via ultrasound (the second mass showed only on MRI). No one has said anything about sentinel tracking placement and I don't know anything about it.

The Savi Scout placement was a miserable experience done with mammogram. The tech was awesome but the radiologist was clueless and required a lot of guidance from the technician from Savi Scout who was in the room with us.

This whole thing is really crazy!

Dx 1/10/2020, IDC, Left, <1cm, ER+/PR+ Surgery Lumpectomy: Left; Lymph node removal: Sentinel
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Mar 22, 2020 08:05PM ijl wrote:

KatiaKan,

Just like you I was thinking about lumpectomy and mastectomy, leaning toward the latter one. But like you said with all the craziness we need to be more strategic. So I decided to go for a simple lumpectomy first just to get it out and find out node status. This way I don't need to stay in the hospital and have more chances for the surgery to take place (fingers crossed)

Then I will have 6 weeks or so to decide whether I wan radiation or mastectomy.

TO me a lumpectomy route does not prevent me from doing mastectomy in the end. Hopefully by end of May this virus craziness will subside and if I do want mastectomy I could get in in more 'normal' environment.


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Mar 22, 2020 08:13PM ijl wrote:

CallMeTenacious - I was disappointed to hear about your Savi Scout experience. I was initially glad to hear I don't have to have wires put all over my breast like they did last time when it hurt a lot. But after your post my enthusiasm is slightly dampened :)

My doctor ordered MRI first and after it cleared set up all the procedures.

I heard that sometime they put tracking for senteniel node on the day of the surgery. At Stanford they do it at Nuclear medicine department the day before. I guess each hospital has its protocol.

Good luck to you! I hope you can get your surgery scheduled soon. I am sure they have to do it soon since even though Savi Scout is not harmful it probably stops working after a while.



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Mar 23, 2020 06:25PM Nana2-8 wrote:

I just received a call today that my surgery is being pushed into May. I'm thrilled. What a relief!

Dx 9/23/2015, DCIS/IDC, Left, 1cm, Stage 0, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 10/14/2015 Lymph node removal: Left, Sentinel Dx 2/21/2020, ILC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2-
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Mar 23, 2020 06:32PM rosecal954 wrote:

Hello everyone, I am so glad to see this thread started for April surgeries. Great idea! I have previously posted on the COVID-19 thread with my concerns about my upcoming mastectomy on April 7th. I just got a phone call reminding me of my pre-op appointments coming up March 25th, so at least right now it's still a go. I had my biopsy on 2/7/20 and it came back high grade DCIS. So in some respects my surgery could be postponed but this is also a recurrence from IDC in 2013. I contemplated bilateral mastectomy, reconstruction or no reconstruction. After a nearly a month I decided on the unilateral with no reconstruction however I could have recon. 6 months later. So of course I'm quite nervous walking into the hospital for pre-ops and the surgery. I feel they could postpone it at any moment. Really I'd like to get over with since this started last Dec. with mammograms showing calcifications. We will all ride through this and look forward to hearing from any of you with similar situations. These are trying times indeed. Stay well.

Carol in California

First Dx age 58, recurrence 2/2020 Dx 8/21/2013, IDC, Right, 1cm, Stage IB, Grade 1, 1/5 nodes, ER+/PR+, HER2- (IHC) Surgery 9/15/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 12/10/2013 Whole-breast: Breast, Lymph nodes Dx 2/10/2020, DCIS, Right, 2cm, Stage 0, Grade 3, ER+ Surgery 4/7/2020 Lymph node removal: Sentinel; Mastectomy: Right
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Mar 23, 2020 06:48PM ijl wrote:

Hi rosecal954,

My lumpectomy is scheduled for Apr 8 and just like you I am hoping that it will happen. Like you I am located in California and my surgery will take place in Stanford. So far they scheduled all the pre-op procedures but warned it could all change.

Let's cross our fingers and hope the cancer will be out of bodies soon and we can move on.


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Mar 24, 2020 02:55PM rosecal954 wrote:

Hello ijl and others, My surgeon's office called me this morning and they will do telephone pre-op appointments instead of coming into the hospital due to the COVID-19 health safety concerns. So I'm set for those appointments tomorrow afternoon. The nurse also informed me my husband will not be allowed in the hospital before for after my surgery. I will be dropped out at the hospital entrance. Not very happy about that but I certainly do understand and not want my husband exposed to the virus. He was just diagnosed with thyroid cancer in December and has had two surgeries. We will all hope for the best.

Carol


First Dx age 58, recurrence 2/2020 Dx 8/21/2013, IDC, Right, 1cm, Stage IB, Grade 1, 1/5 nodes, ER+/PR+, HER2- (IHC) Surgery 9/15/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 12/10/2013 Whole-breast: Breast, Lymph nodes Dx 2/10/2020, DCIS, Right, 2cm, Stage 0, Grade 3, ER+ Surgery 4/7/2020 Lymph node removal: Sentinel; Mastectomy: Right
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Mar 25, 2020 08:28PM ijl wrote:

rosecal954, just a few hours after I read your post Stanford called and switched my preop to the telephone appointment as well.

My husband will also have to drop me off for the surgery. But as long as I get to have the surgery I am ok. :)

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Mar 30, 2020 07:13PM rosecal954 wrote:

ijl, Hope you will be able to have your lumpectomy on April 8th as scheduled. My mastectomy is still a go for April 7 with one week to go. I am getting nervous about it but at the same time would like to get the surgery over with. I really do not want to lose a breast but know it is for my health. Take care.

First Dx age 58, recurrence 2/2020 Dx 8/21/2013, IDC, Right, 1cm, Stage IB, Grade 1, 1/5 nodes, ER+/PR+, HER2- (IHC) Surgery 9/15/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 12/10/2013 Whole-breast: Breast, Lymph nodes Dx 2/10/2020, DCIS, Right, 2cm, Stage 0, Grade 3, ER+ Surgery 4/7/2020 Lymph node removal: Sentinel; Mastectomy: Right
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Mar 31, 2020 02:13PM CallMeTenacious wrote:

I was just confirmed for surgery tomorrow! It feels surreal! I had heard nothing from my surgeon since my call to the office on 3/20 and then received an email yesterday asking if I was available for tomorrow - I replied and called to verify. Then I had a call with the nurse about an hour ago confirming that they had just received hospital approval. I'm to arrive at 5:30 am with surgery scheduled at 7:30. Pre-op is supposed to call sometime today.

I'm doing laundry and reorganizing my closet so I can reach clothes. Then my husband and I have to finish a few projects-in-process that require lifting. Want to pre-cook some of the planned meals for the week -- much less stressful than directing him what to do!

Will keep y'all posted!


Dx 1/10/2020, IDC, Left, <1cm, ER+/PR+ Surgery Lumpectomy: Left; Lymph node removal: Sentinel
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Mar 31, 2020 02:29PM ijl wrote:

CallMeTenacious,

Good luck tomorrow! I am one week behind you

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Apr 2, 2020 09:48PM KYChristianLady wrote:

I have surgery tomorrow morning. I was doing ok with nerves until about an hour ago. I am having a lumpectomy of my left breast. I am super scared of being exposed to the virus. I think I would have opted for a more aggressive approach if we weren’t in the middle of this pandemic

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21 hours ago CallMeTenacious wrote:

My surgery on 4/1 went very well. I had a double lumpectomy followed by reduction/lift. It was a very strange experience. While the hospital would have allowed my husband to wait in the building, we opted for curbside dropoff and pickup. In pre-op, very few staff members were wearing masks and there were only 3 other patients. As soon as I was beginning to wake up in recovery, the nurse was asking if I was ready to go home. I woke up wearing a mask and I ended up leaving after less than two hours in recovery. I didn't want to spend any more time there that was necessary.

I was given Percoset for pain and I needed it! Wednesday night and most of yesterday were very uncomfortable. I woke up this morning with a migraine and took my normal migraine cocktail of 2 Excedrin Migraine tablets and a sudafed and then put an ice pack on my neck and forehead. It worked even though it was probably medically inadvisable. The breast pain has subsided to discomfort so I'm going to skip the Percoset and just take Tylenol.

I am allowed to take a shower today and expect that will be an adventure. I have huge pads stuffed in my surgical bra that I am to remove when I shower. I'm a little scared to look at what's underneath them. The plastic surgeon called my husband when surgery was over and told him it was a bit of a jigsaw puzzle and he's pleased with the results.

Still groggy from Percoset. Going to take a nap before the shower adventure.


Dx 1/10/2020, IDC, Left, <1cm, ER+/PR+ Surgery Lumpectomy: Left; Lymph node removal: Sentinel

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