Join Us

We are 217,587 members in 84 forums discussing 160,642 topics.

Help with Abbreviations

Topic: 8 wks post BMX w/o reconstruction pain/tightness

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: May 29, 2020 01:41PM

carrieabel wrote:

I am 8 weeks post op from having a double mastectomy. I am unable to tolerate the prosthetics or anything pushing on my chest or sternum. Due to COVID I was only able to go to physical therapy one time in which I was given stretches and that was it. I am still experiencing tightness across my chest and very sensative. Any suggestions?

Log in to post a reply

Page 1 of 1 (6 results)

Posts 1 - 6 (6 total)

Log in to post a reply

May 29, 2020 03:02PM buttonsmachine wrote:

In my experience it takes a long time for things to settle down after a mastectomy, even without reconstruction. I received this advice which helped me: "Use your body as normally as possible without causing pain." Also, I found it helpful to wear knitted knockers at first, and only gradually increase the amount of time I wore a silicone prosthetic. It's hard for sure. Hope that helps.

Diagnosed at 32. Local recurrences in skin one year later due to needle seeding at initial biopsy. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2-
Log in to post a reply

May 29, 2020 03:51PM carrieabel wrote:

Thank you, are the knit ones softer then the poly filled ones? My issues is the pressure against my chest and sternum.

Log in to post a reply

May 29, 2020 08:58PM buttonsmachine wrote:

The pressure on the chest aspect can be difficult, even with knitted knockers or softies. The good thing about those though, is that you can unstuff them a bit which helps relieve some of the pressure.

Also, I find it helps to even go up a band size or two from your normal bra size - I did this for several months after recovering from surgery. A camisole, sleep bra, or a bralette can be good options for the months after surgery too.

I still wear knitted knockers more than anything else, even though I did eventually find a good silicone prosthetic. In case you haven't seen them yet, knitted knockers are free of charge but they do take donations if you want to donate. The knitted knocker website is here: https://www.knittedknockers.org/request-a-knocker/

Diagnosed at 32. Local recurrences in skin one year later due to needle seeding at initial biopsy. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2-
Log in to post a reply

May 29, 2020 11:03PM Moderators wrote:

Hi carrieable,

We want to welcome you to our community! We're so sorry you're still experiencing tightness and sensitivity - the recovery after a double mastectomy can take some time. Are you able to do telemed PT with your physical therapist? They may be able to watch you do your stretches and perhaps give you some more exercises and stretches to do to help begin to relieve some of the discomfort you're experiencing. And as buttonsmachine mentioned, the knitted knockers website is a great resource!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

May 30, 2020 07:38AM cyathea wrote:

carrieabel, I’m 10 weeks from my BMX and like you, my chest and underarms are still a little tight and sensitive to pressure. My surgeon’s PA said to expect swelling to continue for two more months.

I have not been fitted for my silicone prosthetics yet. When I’m home I go flat, but when I go out I have found that a stuffed maternity camisole is pretty comfortable compared to a bra. I ordered mine from Target.

Now that the weather is getting warmer, I’ve switched to using a bra stuffed with a light polyfil. As soon as I get home from chemo, the bra comes off. 😃

I have been going to physical therapy twice a week for the last month. The therapist specializes in lymphedema massage and she has been fantastic. I still have swelling, but it is reduced and my nerve damage is much better. Due to PT, I have full range of motion now and I’m working on strengthening. If you are able to go to PT now, you might benefit from this.

I wish you the best on your healing journey.

Dx 6/17/2019, DCIS/ILC, Right, 5cm, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2+ (FISH) Targeted Therapy 8/1/2019 Perjeta (pertuzumab) Chemotherapy 8/1/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 10/8/2019 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 10/10/2019 Herceptin (trastuzumab) Surgery 3/17/2020 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 4/15/2020 Other Radiation Therapy 6/1/2020 3DCRT: Breast, Lymph nodes, Bone Hormonal Therapy 8/20/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
Log in to post a reply

Jun 1, 2020 12:39PM carrieabel wrote:

Thank you all for the wonderful information and support.

Page 1 of 1 (6 results)