Posted on: Jun 17, 2020 11:58PM - edited Jul 7, 2020 10:29AM by dysonsphere
I couldn't find a post for this yet. Tomorrow is my last chemo and I'm scheduled to have a lumpectomy with reduction/lift and an ALND on July 17. Please share your July surgeries an dates here!
I'm curious if your hospitals will allow you to have visitors. My cancer care center will only allowed me to be dropped off and picked up for my surgery. :-(
July Surgery List
7/8/2020 PrimaDawna Lumpectomy
7/9/2020 DiveCat Reconstruction
7/14/2020 KamaraKaye BMX
Swishy88 Single Masectomy and full lymph node removal
7/16/2020 BossBabe BMX
7/17/2020 Dysonsphere Lumpectomy with reduction/lift.
7/28/2020 StaceyCW924 BMX
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Posts 1 - 26 (26 total)
Jun 18, 2020 08:10AM Nana2-8 wrote:
Not scheduled for July ~ but this coming Monday ~ and I am allowed to have my husband accompany me.
I hope to be well on the road to recovery by the time you have your surgery, so just want to wish you well.
Jun 18, 2020 09:29PM KamaraKaye wrote:
Dyson, thanks for starting the July group! My BMX is scheduled for July 14th. I finished my Taxol on 5/29...technically I should be having my surgery sooner, but both my breast surgeon and I decided that we would like to enjoy the 4th of July holiday first! I want to get in the lake at least one time this summer.
No one has told me yet if my husband can be with me pre and post surgery. I wil be sure to ask at my next pre-op. My PS did say however that my surgery would be out patient and I would go home the same day. I really question that...shouldn't a double amputation with tissue expander placement warrant at least an overnight hospital stay?! On the June surgery boards some are saying they won't be staying overnight due to Covid. Still seems brutal to me!
Good luck Nana, I will be thinking of you on Monday!
Jun 19, 2020 04:49PM dysonsphere wrote:
Kamarakay, that does seem like a quick turn around. I should probably have a one night stay with a reduction and ANLND but I think that may be because of the ALND. They stated that was usually a procedure they liked to keep you around for at least one night.
Jun 19, 2020 05:22PM hray1993 wrote:
I finish my last chemo July 2nd and have a final MRI two weeks later so around the 17h or so. My oncologist said we’re all afraid of it growing If we wait any longer so surgery should be ASAP after that so I’m hoping surgery will be July 20-27 something around there but we don’t have A n exact date yet. I’ll be having a lumpectomy.
Jun 21, 2020 09:44AM BossBabe wrote:
My BMX is July 16. I have been trying to start preparing but my job and kids have been keeping me extremely busy. It's been a challenge to try to slow down. I know I should be trying to control my stress levels but I feel like they are through the roof right now!
KamaraKaye I haven't been to any pre-op appts yet but I was told I would have an overnight stay at the hospital. I agree that it seems crazy that they are sending you home, but I know everyone is doing things differently with COVID. Not sure yet about visitors. I guess they will let me know. I know my hubby would love to be there if possible.
Thankful to have you all here! We will get through all these surgeries together
Jun 24, 2020 12:05AM DiveCat wrote:
Joining for another reconstruction surgery July 9. Doing fat grafting on both breasts - had my 410s explanted and replaced with smooth rounds in November so this is finishing that process up. Was scheduled for May 27 but thatwas cancelled due to COVID-19 and just got my new date late last week.
I don’t know yet what the protocols will be for my drop off and pick up - in past always had someone with me until they took me back for surgery, who was there once I came out of recovery (husband and my stepdad and late mum first time, husband second, sister third as husband could not be there...). I likely won’t know until day before when I call for my check-in/surgery time.
Jun 24, 2020 12:14AM DiveCat wrote:
“I really question that...shouldn't a double amputation with tissue expander placement warrant at least an overnight hospital stay?!“
I am actually surprised when I hear anyone that does do overnight for these. Where I am they want to minimize risks even outside COVID-19 times and typically once you are ambulatory (ie can get up and use bathroom on your own) they release you. The BMX does not affect joints etc so no physio neededand the less time you spend in hospital around other exposures the better.
So it’s standard here for that to be a day surgery. My PBMX with direct to implant reconstruction - back in 2014 - was a day surgery, as were both my swaps. I believe I went in for surgery at around 7:30 am and was on way home (2 hour car ride!) by 2 or 3 pm. Had two drains. It was actually nice to be at home that same day.
Best wishes on your surgery and recovery.
Jun 29, 2020 08:27AM dysonsphere wrote:
I started a list in the original post to keep us up to date on who is having what type of surgery and when so we can offer support or share info! Hope everyone is doing well.
Jun 29, 2020 11:28PM BossBabe wrote:
I have my first pre-op July 1. It’s really starting to make this all real. I’m having one last vakay with my family via a baseball tournament with my son. The family that we are staying with has a son who beat leukemia. Helps put things in perspective as I cannot even begin to imagine having a child with cancer, but I still know that my journey is unique. I am hopeful yet still scared out of my mind. I hope y’all are here with me.
Jun 30, 2020 05:52AM dysonsphere wrote:
Bossbabe, good to hear you have something to distract you from the surgery. Mine is a few days after yours so I know that it seems like it is way too real right about now. In fact, I'm up early now because my mind is racing about the surgery and everything else that comes with it. There are so many things to be stressed about. But I have to remind myself that surgery is a good thing. It means we are getting the cancer out of our body and moving on to the next thing we need to do.
Jun 30, 2020 06:09AM - edited Jun 30, 2020 02:56PM by PrimaDawna
This is my first post. I was diagnosed with Stage 1 ++- on June 17 after my regular mammogram showed an abnormality on my right breast. After an ultrasound and a biopsy , I was told my tumor is less than one centimeter.
My current game plan is to have a lumpectomy on July 8th and three weeks of radiation four to six weeks later. Followed by Tamoxifen for 5 years.
I am 41 and have a four year old son. I do noy currently feel "sick" and my husband and I are in the middle.of building our dream home. My diagnosis has taken us by extreme surprise.
I am thankful to have found this group and look forward to learning and sharing with eveyone.
Jun 30, 2020 09:46AM StaceyCW924 wrote:
Hello, all! This is my first post, too! I'm meeting with the surgeon tomorrow to make decisions about surgery which I hope to have as soon as possible. I was diagnosed with triple negative breast cancer in January and have just completed 5 months of chemotherapy. My options range from lumpectomy to double mastectomy. Any thoughts? I'm 60 years old, post-menopausal. I don't have the BRCA genes but I do have an anomaly of unknown significance - so not much info there! Mostly, I'm more concerned with preventing recurrence and extending my life expectancy than breast conservation. I appreciate any info or advice anyone can share. Thanks!
Jun 30, 2020 08:22PM - edited Jun 30, 2020 08:27PM by Swishy888
Hello everyone, I have met with my surgeon last week and she is only doing a single masectomy with full lymph node removal and yet I wanted a bilateral masectomy with no reconstruction. However, I cannot get her to agree yet... any thoughts or comments. It seems many people have a choice, I am waiting to discuss this with her again so I do have a choice.
Single Masectomy and full lymph node removal 7/14/20
Jun 30, 2020 11:20PM dysonsphere wrote:
PrimaDawna, StaceyCW924, and Swishy888 -- Welcome to the group!
Stacey and Swishy, deciding what surgery is best for you is definitely one of the hardest parts of this journey. My reconstruction surgeon mentioned its usually the only time the patient gets to make a decision since everything else is decided for us. From the beginning, all 3 of the surgeons I have seen have recommended breast conservation. They all insisted lumpectomy and radiation is equal to mastectomy in recurrence rate. In my case, I have to have radiation regardless of which I chose, so I am going with lumpectomy and reduction. I figure that I do not want to take the nuclear option until it's necessary. Hugs and good luck in whatever you choose!
Jul 1, 2020 01:47AM Moderators wrote:
We certainly understand where you're coming from! As Dysonsphere mentioned, this is one of the most personal decisions, and often one of the hardest. Has your doctor explained her reasoning behind believing that surgery to be your best option? Depending on your diagnosis and subsequent treatment plan, there could be a greater benefit of following your surgeon's recommendations. But ultimately, this is your choice, and we hope that you're able to talk to your surgeon and weigh the pros and cons of both procedures before deciding on the one that's right for you.
Jul 6, 2020 11:19AM StaceyCW924 wrote:
I have made a decision. I'll be going with a double mastectomy with some lymph node removal on left side. Both my oncologist and surgeon recommended the aggressive surgery given my genetic anomaly. It's not known yet if it's related to cancer, but it may be and I don't want the worry of recurrence. Triple negative has a high rate as it is. I've felt pain in both breasts although nothing has been found in the right. I want to do everything I can to reduce the risk and worry and I don't want to go through chemo again, if I can avoid it. My surgery has been set for July 28. I've decided against reconstruction as well. It just sounded like way too much surgery after all of this and I can always change my mind later, even if they don't leave the extra skin now. I just want to get it done with! I'll still need radiation and may look into immunotherapy to prevent recurrence as well.
Jul 7, 2020 10:31AM dysonsphere wrote:
StaceyCW924, I'm sure you are relieved to finally have that choice behind you. Good luck with your surgery and I have your date updated.
PrimaDawna, good luck with your surgery tomorrow and keep us up to date on your experience!
12 hours ago DiveCat wrote:
I am out of surgery & recovery and just biding my time for an hour until my husband can come get me at main doors (not allowed in).
It was a bit weird hanging out by myself this time (glad it was not for initially surgery) but so far feeling best I have ever had after a surgery. Minimal pain at moment (initially felt like did a lot of crunches focusing on lower abs) Anaesthesia doc did awesome job (I get PONV and have difficulty waking up). Took from tummy - bandages on either side or lower abdomen near hip bones. Plan was to get a larger divot and address rippling on exterior and interior so we will see how it all looks later once bandages come up.
As per last couple times my restrictions are essentially “you are smart, don’t do/stop doing things that hurt”. Now just hoping he got enough (I am thin) and it takes well.
They always treat me very nicely here so I appreciate all the work they do, from porters to surgeons and so on.
11 hours ago dysonsphere wrote:
DiveCat, so glad everything went smoothly! I do not look forward to going through this process alone but I know we all have to!
10 hours ago - edited 10 hours ago by DiveCat
I will be honest, if it was my very first surgery I would have probably wanted someone there too but it was my first time under GA, was a more intense surgery (BMX with direct to implant) and was first time I learned I had PONV and was a slow waker. That was a day surgery to but I did get the one little room in the unit that could be closed off with sliding doors - was really nice as I was there a while and it was quiet.
This time (my fourth BMX/reconstruction related surgery but fifth overal) I appreciated the quiet and efficiency! And the nurses really were great, seemed more able to focus on the patients they had with less distraction or trying to speak above the other noises. I was able to walk out unassisted and my husband was standing there to open my car door.
Best wishes for yours and your recovery.
7 hours ago - edited 7 hours ago by KARW41
Hello, I am wishing you really good luck on your surgery. I had a lumpectomy in April and a bilateral mastectomy on July 1.
I am in southern California where the pandemic appears to be raging again.
I did not have anyone to visit me, but I did see that the hospital I was in allowed a visitor to be in the initial reception area.
There was a very young teen and she really needed her mother, it appeared, but the mother had to leave after she got registered and checked in for surgery, in the main waiting room for that process.
When I got the lumpectomy, the surgery was maybe 1.5 hours and I went right home with a medical service driver (done in northern California).
I was not there long enough to have visitors.
For the bilateral mastectomy, I did not see visitors on the hospital floor where I stayed overnight (done in southern California).
I will say that my personal opinion, just based on my own experience, is that if anyone is staying overnight, if you are allowed anyone there, it would be a good thing, from the patient perspective.
The hospital I was in had apparently laid off and/or furloughed nurses to save money with the pandemic.
There was ONE nurse running around with her hair on fire on the floor that I spent the night on.
I had to set my bed alarm off by going to the bathroom myself since no one responded for so long to the call button.
At one point, the surgeon bound me up in an ace bandage and it was too tight and I swelled up a bit and could not breathe almost, and an orderly showed up but no nurse, until I started yelling really loudly.
From this experience, if you are allowed to have anyone check in, or visit, it would truly be a helpful and good thing for overnight hospital stays at least.
7 hours ago - edited 7 hours ago by KARW41
Hello, if anyone knows anything about swelling and drains after bilateral mastectomy, I am interested to know.
I pushed the doctor and nurses to get the drains out, and one side was definitely ready, and the other was iffy.
Well, that "iffy" side has now swollen up a bit.
The doctor said call to get it drained if that happens.
I have got zero sick leave hours left on my job.
I used 8 hours of vacation time just to travel (about 55 miles away) to get the drains out.
I have a whole other thing going on with the job situation right now, but I'm wondering if anyone just left the fluid in there and if it eventually went away??
The doctor said it would not go away if it swells up, for a long time, and come in to get it drained.
I was just there today and don't really want to go right back.
Other than the drains, I had minimal pain from the bilateral mastectomy itself, without having any reconstruction.
It has been a true relief to get the surgery done, despite the pandemic.
Lastly, I wonder if this is the right place for this question, or if it goes somewhere else:
I had 12 cm (just read pathology today) total of DCIS, high grade (size keeps going up; it was 4 cm at lumpectomy, 9 cm after lumpectomy, and now they say, based on mastectomy, it was 12 cm total, and in two disparate areas only detected from the mastectomy. Nothing in the lymph nodes, they say, from sentinel node biopsy.
Question: I noticed in the last year, my energy steadily declined apparently as this DCIS (cancer inside ducts) grew.
Do you think that the cancer cells detract from our energy levels (just by their proliferating growth), so that after the surgery (or chemo or radiation or other therapy) fatigue passes, that energy may eventually return??
I am totally beat, and don't know if I will be able to continue at the job I just started after surgery, and I did not even get chemo or radiation (as my mother did a couple of times).
Not sure if that is normal, or what.
4 hours ago PrimaDawna wrote:
I had my right breast lumpectomy and sentinel lymphnode removal this past Wed and my surgeon said it went well. We should have the pathology results back next week to be sure it did not spread to the lymphnodes.
I am sore and have stinging from the two incision sites. I am keeping a sports bra on to mitigate some of the pain.
Thankfully I was able to have my husband with me during preop and postop for the surgery. It helped me calm down a lot. I got to the hospital at 7:30am and was on the way home by 1:00pm.
3 hours ago DiveCat wrote:
KARW41 - My sister got a seroma after her drains came out. One of her surgeons nurses just drained it with a needle in his office - no time off required and she just took some Tylenol after. It can cause issues with the pocket if you leave it and it gets bigger; can also get infected and become an abscess
Can your surgeon refer you somewhere closer just for that procedure?
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