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Topic: Augusr 2020 Surgery Group

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Jul 17, 2020 06:50PM - edited Jul 17, 2020 06:51PM by Ekojio

Ekojio wrote:

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Jul 17, 2020 06:52PM - edited Jul 21, 2020 11:27AM by Ekojio

Damn... auto correct messed up my topic lol and idk how to delete or change top. Lol..

Alrighty so I couldn't find a group already made if there is one ill delete this post but I searched with search bar and nothing..

Anyways, I'm brca 2 positive and going with a preventative double mastectomy with immediate diep reconstruction. Was diagnosed two years ago but I chickened out on surgery then but im much more prepared now.

My double mastectomy is scheduled for August 21st and diep reconstruction the 25th of August. Waiting on more info such as pre op appointment and plans as to if they will have me leave after double mastectomy and return for reconstruction or what their plan is since the two are days apart. Dates are tentative but mostly just the double mastectomy day i think because they want to try to get the dates closer together but BS only is in OR on Friday. But anyways, finally have my date.


Edit: Pre op/admission is scheduled for August 11th at 11:15 am. Says will take about 1.5 hours. Physical exam, blood tests, and a chest xray/ekg will be done.

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Jul 18, 2020 11:54PM robinorbit wrote:

Hi Ekojio—

Mind if I join you! My lumpectomy/ies are scheduled August 21–for now anyway. I'm glad you have some dates on the calendar, even if tentative. I know it's made me feel a bit more settled.

My surgeon did say my date could get postponed due to COVID depending on the spread of the virus and whether hospitals again need to limit services to just emergencies. So that uncertainty remains unfortunately.

I've yet to get my genetic testing results (just rec'd the kit yesterday) and still awaiting path report from two recent biopsies. Hoping my surgical plan will remain the same.

Please let me hear how it goes for you. Do you have help at home for after your surgeries?

Best,

R


Dx 6/15/2020, DCIS, Left, 1cm, Stage 0, Grade 2 Dx 6/15/2020, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC)
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Jul 21, 2020 11:29AM Ekojio wrote:

Hey we go same day!


And i kind of have help at home after. My boyfriend will be coming. My brother maybe... my boss from my job offered lol but I have to not feel weird about that still because I know she just wants to help. And hopefully getting visiting nurses to help. I got my pre op date today so that helps me a little. I wish i had more help at home but my family is so distant..

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Jul 21, 2020 03:47PM clarrn wrote:

I am joing the group! I am scheduled for bilateral DIEP/ modified free tram on August 24th!

Complicated reconstruction history: I had BMX with direct to implant on the left side way back in 2014 and tissue expander on the right (skin on that side was intimately associated with the cancer so they had to take too much skin to do direct). In 2015 I had my exchange on the right and I got a bad post op infection and that implant extruded and I had open wound packing for 6 months :( Needless to say I have been nervous about more surgery and also had another baby in 2018 :) But lefty has been having issues with repeated cellulitis and now a heterogeneous lump that looks benign, so with all the concerns about textured implants my remaining implant is coming out and bilateral flap reconstruction it is.

So I am excited but also nervous. My mom will come from 2 provinces over for the first 2 weeks (I will be in hospital for the 1st 5 of those days) and take care of my 9 year old daughter and 28 month old son. I am hoping the drains will be out before she leaves. They won't delay cancer surgeries here, and because they don't know what that lump is they coded me as possibly cancer related so off to the races we go.

Trying to find a power recliner rental but just might by one to keep on wayfair. :)

Great to meet you, will be cheering you on up here in Canada!

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/7/2014 AC + T (Taxol) Radiation Therapy 10/14/2014 Breast, Lymph nodes Surgery 2/26/2015 Reconstruction (right): Silicone implant Surgery 3/22/2015 Reconstruction (right): Silicone implant
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Jul 22, 2020 05:18PM Ekojio wrote:

Canada oh wow! Good luck with everything. I think its exciting we are all having surgeries around the same dates. How is covid in Canada? I dont really hear much about it..

I'm asking because my inpatient pre op appointment was just changed to a phone call lol.. not sure how they do a physical exam over a phone. Doesn't say video just call..


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Jul 24, 2020 05:19PM clarrn wrote:

I wrote a big response and it dissapeared:(

Anyway Canada is doing okay with Covid. Our Prime Minister's wife was one of the first cases back in March after returning from Europe so our leadership took the threat very seriously. Most of our early cases were traced back to US travel and we realize now that we should have closed the border sooner. We love our American neighbors and miss travel, but we simply can't open up yet and implode our public health system. We have reopened almost everything except nightclubs but maintain physical distancing requirements and have seen a small but concerning increase in our caseload in the last 2 weeks. Mandatory masking for indoor public places is starting to become policy in most large cities. Comparatively we are recording about 8% of USA cases when divided per capita. Our hearts are with you all and we are hoping things settle down for your country soon.

I have had virtual pre-OP appointments. They mostly did all my measurements and markings 20 minutes before I got on the table last time I had surgery so I don't think you will miss anything with a phone call.

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/7/2014 AC + T (Taxol) Radiation Therapy 10/14/2014 Breast, Lymph nodes Surgery 2/26/2015 Reconstruction (right): Silicone implant Surgery 3/22/2015 Reconstruction (right): Silicone implant
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Jul 25, 2020 04:39AM Jettie wrote:

hiya ladies,

My surgery is planned for 11th August, have various appointments for next week as surgeon is going to do an ALND at the same time, with radiation to follow then reconstruction in about 6 months or so. Cant say I am looking forward to it, but hey ho it is what it is. The reason for this treatment plan is even though i have responded extremely well to chemo, I presented with possible IBC and they are treating me as if it was.

With regards to appointment so far all of mine have been in person since covid started, and havn't had the joy of a teleone.... for some reason they always want to see me at 9am..... when you finally get to sleep for a few hours at 5am in the morning 9am appointments are sheer evil incarnate :*(

Dx 2/14/2020, IDC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 3/11/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 3/11/2020 Herceptin (trastuzumab) Targeted Therapy 3/11/2020 Perjeta (pertuzumab) Radiation Therapy Whole-breast: Breast Surgery 8/11/2020 Lymph node removal: Right; Mastectomy: Right
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Jul 29, 2020 11:44AM valliegrrl wrote:

Hello!

My preventative (BRCA2) bilateral mastectomy is scheduled for Aug 4th, so I'd also like to join this group. So far, all I have left to do is a little shopping and then covid testing (8/1) and self isolation until my surgery.

Has anyone else's surgeon suggested using Arnica Montana to reduce/relieve swelling and bruising? My PS has been very thorough, including a 2.5 hour seminar for patient and caregiver, which included nutrition, an Excel spreadsheet to keep track of meds and an appreciation for the caregivers.

Good luck everyone - we are in this together! Happy

~Valerie

Dx 12/12/2014, DCIS, Left, Stage 0, Grade 3, 0/2 nodes, ER+/PR+ Radiation Therapy Multi-catheter: Breast Surgery Lumpectomy: Left Surgery 8/4/2020 Prophylactic mastectomy: Left, Right; Reconstruction (left); Reconstruction (right)
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Jul 30, 2020 05:15PM Ekojio wrote:

Hello

I wish i had more info on my surgery stuff. I have a small notebook full of questions. I was thinking my pre op appointment would answer them but it has been switched to a 30 min phone call now lol. I think I'm going to see BS before surgery as they gave me a folder a month or so ago that needs to have a paper filled out by them still... but with covid I'm not sure. Going to call tomorrow to find out. Hopefully I can get more information like your PS gave you. Are you having reconstruction too? Or going flat? You will be our first august surgery goer so definitely keep us posted.

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Jul 31, 2020 10:07AM valliegrrl wrote:

Hi Ekojio,

I decided to reconstruct, so expanders first and implants in about 6 months.

The seminar really stressed getting enough protein to help heal... like, try for 150 grams a day. (I'll use My Fitness Pal to keep track of that.)

Good luck, ask as many questions as you have - we all 'own' our own recovery. We've got this! Smile

Happy Friday and have a great weekend.

~Valerie

Dx 12/12/2014, DCIS, Left, Stage 0, Grade 3, 0/2 nodes, ER+/PR+ Radiation Therapy Multi-catheter: Breast Surgery Lumpectomy: Left Surgery 8/4/2020 Prophylactic mastectomy: Left, Right; Reconstruction (left); Reconstruction (right)
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Jul 31, 2020 03:20PM etnasgrl wrote:

Hey all!
I have my double mastectomy with immediate DIEP flap reconstruction scheduled for Tuesday, August 4th! Yikes!! Shocked
I completed all my Pre-Op appointments, including a COVID test, yesterday. (Negative, thank God!) My BS gave me Impact shakes to drink.....3 a day for 5 days before the surgery. Blah....they are horrid, lol! Sick......but they are supposed to help in recovery and prevent infection. If they do their job, it's worth the disgusting taste!

I've had plenty of surgeries in the past, so I'm okay with that.....but I am so apprehensive about how I will look afterwards. I keep staring at my breasts and body in the mirror, thinking I will NEVER look like this again. *sigh*
And thanks to COVID, I am not allowed to have anyone with me, the entire stay. (I am scheduled to be discharged Friday, August 7th) My husband can come with me into the Pre-Op area, where I will get ready for surgery, but that is it. After that, I won't see him again until the day I am discharged, at the curb, when he drives in to pick me up. Honestly, this is the worst part! I have been alone this entire cancer "journey".....chemo and Herceptin.....and now this surgery. It's hard. I am TIRED of fighting alone. Yes, I know I am not alone.....I do have the support of family and friends.....but when you are alone for every appointment and procedure.....you sure feel alone.

Anyway.....I'm looking forward to getting to know you ladies. (((((Hugs)))) I pray that all of our surgeries are a great success and recovery is smooth!

Diagnosed at 41. Diagnosed 2nd time at 45. Dx 11/5/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/12/2016 Whole-breast: Breast Hormonal Therapy 2/17/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/13/2020, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ (IHC) Surgery 2/23/2020 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 3/18/2020 Taxol (paclitaxel) Targeted Therapy 3/18/2020 Herceptin (trastuzumab) Surgery 8/20/2020 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jul 31, 2020 03:36PM clarrn wrote:

welcome etnasgirl- I am wondering what the impact drink is? A protein shake? My doctor hasn't said anything about diet, but I have been upping my protein anyway so it sounds like a good idea :) Thanks for the tip!

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/7/2014 AC + T (Taxol) Radiation Therapy 10/14/2014 Breast, Lymph nodes Surgery 2/26/2015 Reconstruction (right): Silicone implant Surgery 3/22/2015 Reconstruction (right): Silicone implant
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Jul 31, 2020 04:29PM etnasgrl wrote:

clarn.....It's a immunonutrition drink called "Impact Advanced Recovery" made by Nestle.
I hear that they are a bit pricey, but I don't know. My BS gave me a carton of them when I came in for my Pre-Op appointment. I'm sure she billed my insurance for them, so we'll see if it's covered.
They are small, 6oz containers and I am supposed to drink one three times per day, for 5 days before surgery, and 5 days after. According to the labeling, it is "a unique blend of nutrients to support recovery after major surgery - protein, omega-3 fatty acids and nucleotides,"

All I know is that the taste is awful.....think of very thick fish oil....UGH!.....but....it it does what it says it will do, it's worth it! Happy

Diagnosed at 41. Diagnosed 2nd time at 45. Dx 11/5/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/12/2016 Whole-breast: Breast Hormonal Therapy 2/17/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/13/2020, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ (IHC) Surgery 2/23/2020 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 3/18/2020 Taxol (paclitaxel) Targeted Therapy 3/18/2020 Herceptin (trastuzumab) Surgery 8/20/2020 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jul 31, 2020 08:18PM clarrn wrote:

Thanks! I have never heard of it :)

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/7/2014 AC + T (Taxol) Radiation Therapy 10/14/2014 Breast, Lymph nodes Surgery 2/26/2015 Reconstruction (right): Silicone implant Surgery 3/22/2015 Reconstruction (right): Silicone implant
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Aug 2, 2020 10:29PM arabiansrock wrote:

I guess I am now a part of the August Surgery Group. I have a bi-lateral lumpectomy scheduled for Aug 19. Per biopsy I have idc grade 2 and DCIS on left side, and a Radial Scar/Sclerosing lesion on the Right. I was ready to go nuclear on this and do a double mast, but surgeon talked me off the ledge. She said give the small tumor size (< 1cm on u/s) and great markers (E + 100%, P + 90%, HER2 -), that lumpectomy + rads and AI after would give me just as good a recurrance potential as going big. She also basically intimated that with COVID 19, if you can avoid the hospital that would be much preferable. She implied the additional risk of being in hospital now just is not worth the risk unless you have no choice.

I am not sorry that I get to keep the girls, but it would be kind of nice if she could take a little extra out of lefty and reshape it so they both match! Lefty is much closer to a D than a C but righty is a C.

Do many women find they need a reconstruction after lumpectomy? Do they end up looking funny or should they heal so they look fairly normai again?

I hope all goes well for everyone this month.

biopsy Jul13, 2020, dx lt idc grade 2 and DCIS. RT Radial Scar/sclerosing lesion. Aug 19, 2020 bilateral lumpectomy
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Aug 4, 2020 01:51AM Ekojio wrote:

I just wanted to say good luck and prayers to everyone who has had or is going to have surgery tomorrow. (Err today the 4th)

Really wish I could update the group title to say August lol but I'm glad we all know what I meant haha..

I really need to look into more info about cancer i feel like because a lot of posts have info on their cancer and I have no idea what they are talking about but I'm glad everyone is doing well.

Lastly, next Tuesday I will be talking to my 3 boys about my surgery. 10, 6, 3. The 3 year old won't know or understand much but the two oldest are super smart and I have decided to read the children's book about mommy getting a double mastectomy i borrowed from the library. As well as go into a little detail about cancer, my breasts, and the reason I am having surgery. As I don't have cancer but strong family history as well as brca 2 pos I want them to understand mommy is doing this to prevent cancer from causing mommy any problems shall I have got diagnosed with it.. any tips would be nice as well..

My BS office is slacking on surgery.. I called today for a note for court and shes like.. is there a date? Oh there is, ok.. have we discussed xyz with you? No? Oh my gosh I'm so sorry... but we will schedule to see you next Tuesday to go over everything it will be ok.. lol.. ok.. im already paranoid doing this alone basically and now feel like BS office is slacking.. but yea.. hope everyone is doing well and anyone who has had a surgery already please keep us updated.


Courtney

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21 hours ago - edited 21 hours ago by Dani444

Hey there August group! All the good vibes to those having their procedure done today 💙. I am scheduled for a prophylactic mastectomy of my left breast on August 20th. I am hoping to be able to go direct to implant. The date is actually the day before the 2 year anniversary of my diagnosis. I was supposed to have the surgery in May, but covid☹️. I am almost more nervous for this surgery than the mastectomy for my cancer. I just hope my skin is in good shape for the implant. Just trying to get things done around the house before then!

DX @ 46, premenopausal, mammaprint low risk Dx 8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2- (IHC) Surgery 10/25/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant Radiation Therapy 12/6/2018 Lymph nodes, Chest wall Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/20/2020 Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant
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19 hours ago etnasgrl wrote:

Well, my surgery has been rescheduled for August 20th.
Apparently, the ICU has reached 50% of it's patients as COVID patients. Once it reaches 50%, they do not want non-COVID, surgery patients in the ICU. Since I have to spend my first night in the ICU, my surgery had to be rescheduled.
UGH!! Scared
I just gotten my mind to a good place about this surgery and now I have to wait. It's caused quite an emotional toll and I just want to be DONE. This all seems so never ending.
First, the unexpected blow of a second diagnosis, then having to go through chemo alone thanks to COVID, and now this. Not to mention, Herceptin for another 7 months. What a year.

Diagnosed at 41. Diagnosed 2nd time at 45. Dx 11/5/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/12/2016 Whole-breast: Breast Hormonal Therapy 2/17/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/13/2020, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ (IHC) Surgery 2/23/2020 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 3/18/2020 Taxol (paclitaxel) Targeted Therapy 3/18/2020 Herceptin (trastuzumab) Surgery 8/20/2020 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap

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