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Topic: Ladies who had only 1 or 2 nodes removed...

Forum: Surgery - Before, During, and After — Surgical options and helpful tips for recovery and side effects.

Posted on: Nov 22, 2020 12:31AM

BCat40 wrote:

question—have you had tightness in the armpit after your node removal and for how long? I had a single node removed end of March and my armpit is still tight and I cannot stretch my arm on that side the way I could before. I’ve done some PT stretches and some acupuncture and it’s still not back to normal. I never thought this would be a problem after having only one node out.

Dx at 40 Dx 2/4/2020, LCIS/ILC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/25/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 6/2/2020 Whole-breast: Breast
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Nov 22, 2020 07:01AM - edited Nov 22, 2020 05:10PM by MountainMia

I had 3 nodes removed so don't meet your criteria. I'm not sure what you mean by "some PT stretches." I had PT appointments this spring specifically for tightness and loss of range of motion, which had continued to get worse after surgery April 2019 and radiation ending Sept 2019. The PT made a huge difference for me and my ROM is almost 100% now. But there still is a sense of tightness. I continue to do those stretches several times a week. When I met with the NP with the "survivorship clinic" last week, she said I will need to continue to do them forever to maintain my flexibility.

So if you can do the work on your own, that's probably where you should start. If not, check in with your physical therapist's office to see if you need a new referral for more appointments, or if they can schedule you for more based on your previous referral.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Nov 22, 2020 08:10AM - edited Nov 22, 2020 08:25AM by abigailj

This Post was deleted by abigailj.
Dx 1/2020, ILC/IDC, Both breasts, 2cm, Stage IB, 0/4 nodes, ER+/PR+, HER2- Surgery 6/23/2020 Mastectomy: Left, Right; Reconstruction (left): DIEP flap, SIEA flap; Reconstruction (right): DIEP flap, SIEA flap
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Nov 22, 2020 10:52AM BCat40 wrote:

Thanks for the replies...I saw a PT for one session after my surgery and she gave me a list of stretches to do. I've also been doing yoga. My ROM has recovered pretty well but I'm still obviously tight compared to the normal side and it's just frustrating as I was never told I might have a permanent issue from one lymph node removal. It got worse again after rads but I'd say is back to post-surgery improvement again. I also still have lingering breast pain 5 months out from rads (it had recovered mostly after lumpectomy) and was never told about the chronic pain risk from rads. I just wish the doctors would be more forthcoming with this information. I obviously had to have the treatments to get rid of the cancer but I would have appreciated full informed consent.

I am not currently on any hormone blocking treatments so that's not contributing to the issue.

Dx at 40 Dx 2/4/2020, LCIS/ILC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/25/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 6/2/2020 Whole-breast: Breast
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Nov 22, 2020 11:40AM MountainMia wrote:

BCat40, I agree, there are a lot of surprises about lingering effects.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Nov 22, 2020 11:58AM moth wrote:

I had more than 1-2 removed but I don't think that's the issue. I suspect it's cutting into that area that's the problem
Yup, the tightness persisted. I do all my stretches and exercises and my ROM is *almost* the same but not quite as the other side. And it's never felt exactly the same.

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/10/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole)
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Nov 22, 2020 12:27PM WC3 wrote:

I had a BMX with sentinel node removal immediate expander placement so my situation was different from yours but my range of motion was severely restricted. My skin was very tight and my shoulder on the cancer side froze. It took many months before I could easily reach the top of my head with my non cancer side and two years later I still do not have full range of motion on the cancer side but have made significant improvement.

Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 5/31/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/14/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin) Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 22, 2020 01:13PM LiveLoveLaugh2020 wrote:

I had what was said to be 1 removed turn into 3. I was affected on both sides even the side with no nodes removed. Tightness and ROM were not good. After 2 months I finally started seeing a PT who specializes in BC patients. Saw her for a few months and it made the world of difference. Maybe you can start seeing a PT on a regular schedule? Hope it gets better.

DCIS Dx @ 34 - Bil NSM 09/2019 - Bil implant exchange with FG 01/2020.
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Nov 22, 2020 02:05PM AliceBastable wrote:

Any place you have surgery is never going to feel exactly the same again, it's just the way things are. I get twinges and tightness and "whoops, what the heck is that" all over my body from various surgeries I've had over the years. I had one node removed. If I'm laying in bed and stretch that arm up to put it under my head, I can feel the tightness sometimes. It goes away and it's not a big deal to me. It's life with scar tissue.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Nov 22, 2020 03:23PM Mymomsgirl wrote:

Similar to what others have said. I had 2 nodes removed with radiation and had to do PT to get most of ROM back, but it will never be 100%. I do my stretches and some light weights a few times a week. On top of it my ribs have been sore on and off for the past couple of months. I have an MO appointment and my mammogram this week so we will see what she says. I know my physical therapist said radiation is the gift that keeps on giving.

DX @ 47, the same age as my mother. Surgery was Oncoplastic with IORT and my Oncotype score is a 9. Dx 10/29/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/18/2018 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 12/18/2018 Whole-breast: Breast Radiation Therapy 1/24/2019 Whole-breast: Breast Hormonal Therapy 3/19/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 22, 2020 03:33PM LivinLife wrote:

I had a BMX with one node removed. I was in P.T. for tennis elbow 6 weeks after surgery. They would not do any myofascial release due to my healing issues. They gave me some stretches to work on at home which helped a lot with the tightness and range of motion. I have my range of motion nearly 100% though the tightness, feeling of "wad of dollar bills" and some limits remain. I had cording too and still have some of that in my lower armpits and developed more in my diaphragm area. P.T. ended because my elbow is better.

I looked up myofascial release after mastectomy on YouTube. I did some of this myself, mostly on my right (non-node) side b/c I could tell I had some "misplaced" tissue. My p.t. was aware I was doing this. It helped my tightness tremendously tho some still remains - it feels a lot better though - the area of tightness is reduced for sure. I'm starting with a lymphedema therapist Tuesday due to ongoing cording issues. I'm hoping she may be able to help with some of the remaining tightness.

And.... the other ladies are correct - anytime your body is cut into there will be residuals - some likely will still improve over time. Nerves can regenerate up to a year later - even a little after that though most improvement occurs in the 1st year....

Dx 7/2020, DCIS, Left, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Nov 22, 2020 05:23PM MinusTwo wrote:

My RO directed my PT since she believed the problem was standard radiation issues. She sent me to a great lady who is an expert on breast cancer, but particularly the "gift that keeps on giving" - radiation. If I don't stretch EVERY day, maybe more than once, I'm right back to the tightness.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 22, 2020 05:54PM Colliesalways wrote:

I ended up with three nodes removed but I agree that the tightness and loss of ROM is related to the surgery and especially radiation. I had surgery almost exactly when you did and then radiation in May. After radiation is when the muscle tightness really went into overdrive. I also developed some mild truncal lymphedema and I have also always had the "wad of dollar bills" feeling under my arm. (Such a perfect description!) So, I have now been seeing a certified LEPT who is also working on the tightness issue and I will say that after six weeks the difference is astounding and I am really pleased. She did also say that doing the stretches daily will be a long term, as in years, thing.

Dx 2/4/2020, IDC: Cribriform, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 3/19/2020 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 5/6/2020 Whole-breast: Breast, Lymph nodes Hormonal Therapy 6/10/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 22, 2020 06:31PM edj3 wrote:

One node removed here. I agree w/ what Minus said--I think my issues/pain are from radiation, not from the sentinel node surgery. Yes it hurts, I have a clear line of pain and you can see almost a dent from the bottom right of my breast stretching up diagonally into my arm pit (left breast is the damaged one).

It especially hurts when I bench press or do flys.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 23, 2020 09:36AM Jons_girl wrote:

I had two removed. I went to PT cause I had some lymphadema. But I agree with the posting above. I’d go back to PT and search for a PT who specializes in breast cancer. That makes all the difference! PT with someone who’s pts are mainly if not all breast cancer pts makes a difference

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 7/5/2017 Lumpectomy: Left; Lymph node removal: Sentinel
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Nov 23, 2020 09:47AM - edited Nov 23, 2020 09:48AM by BCat40

My PT was a specialist in BC. She gave me stretches to do and print outs with diagrams and I have been doing them myself. I have most of the ROM back it just feels tight. But based on others' experiences it sounds like that will be permanent, unfortunately. I wanted to collect experiences to see if that was common. I started having this problem after surgery and before radiation, so the lymph node removal definitely did it, the radiation just didn't help. And I still have lingering pain in my actual breast from radiation 5 months out. It feels like I am getting punched when I roll over and get out of bed in the morning. I suppose I should be happy I don't have lymphadema. I just wish there was more info on all of this beforehand--there's tons and tons about lymphadema risks but very little about tightness risks, esp for SLNB as opposed to full ALND.

Thanks to everyone for the input.

Dx at 40 Dx 2/4/2020, LCIS/ILC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/25/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 6/2/2020 Whole-breast: Breast
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Nov 23, 2020 12:51PM edj3 wrote:

Personally I am very grateful only one node was removed. I am very physically active, weight lifting, running, etc. Having just one instead of lots removed lessened my risk of lymphadema.

Tried the tamoxifen, no thanks. Dx 4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 23, 2020 01:02PM Trishyla wrote:

I had a BMX in early 2017, with only sentinel lymph nodes removed on both sides. I did not have any radiation. I have same issues with tightness and loss of ROM, most likely from scar tissue and truncal lymphedema. I find I have to stretch every day to keep the area limber and pain free.

I've tried to incorporate the stretches into my normal daily routine. If I'm at my computer, I do some shoulder rolls. I do wall climbs while waiting for my coffee to finish brewing. I reach behind my back and clasp hands while watching TV.

Hope it works out for you.

Trish



Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)
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Nov 23, 2020 05:07PM MinusTwo wrote:

Trishla - great idea. I've been trying to stretch every day while I walk.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 24, 2020 06:14PM cake8icing wrote:

I had a single MX and one sentinel node removed; no radiation; did my at home PT religiously 5x a day starting day 2; and still had major stiffness and tightness all down my armpit and side. Got 4 weeks of Graston Technique to release scar tissue that made all the difference. Like other ladies here, I will say, it is never back to “normal”, it feels weird, and you have to keep up stretching at home, but I have no restrictions and am able to do everything I did before(yoga, running, chores etc).

Dx 2/14/2020, DCIS, Left, 3cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 3/19/2020 Lymph node removal: Sentinel; Mastectomy: Left
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Nov 25, 2020 10:13AM BCat40 wrote:

Its pretty obvious from the responses that removing even only 1 or 2 nodes is still creating a high chance of permanent after effects. I feel like the literature for patients on this procedure really needs to be updated, as all I have seen is in comparison to ALND and how it is much less likely to cause lymphedema and numbness. So yes, It's better than ALND but it still causes problems.

It's just depressing that I now have this reminder every single day.

Dx at 40 Dx 2/4/2020, LCIS/ILC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/25/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 6/2/2020 Whole-breast: Breast
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Nov 27, 2020 09:33AM Beclyn20 wrote:

I agree. I am a little over 2 years out from radiation and had 9 LNs removed. For some reason it really just starting bothering me about a month ago. Really tight with hard scar in breast. Good luck everyone. Going to look into lymphatic massage. Happy Friday!

Dx 6/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/9 nodes, ER+/PR+, HER2- (FISH) Surgery 7/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy Balloon-catheter: Breast
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Nov 27, 2020 09:08PM AMLmom51 wrote:

Hi, BCat40,

I had one node removed. I am two years post surgery and my armpit is still sore. Still struggling with edema on my breast on the opposite side from my surgeries. I had a biozorb put in and it still has not dissolved, so I am thinking it is from that. Who knows though. I think like Beclyn20 I should look into lymphatic massage.

Your pain, discomfort, twitches...will change, but this is normal.

Take care!

Dx 8/2/2018, DCIS/IDC, Left, 1cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 8/29/2018 Lumpectomy: Left Chemotherapy 10/10/2018 Radiation Therapy 1/7/2019 Breast Surgery Surgery Lumpectomy: Left
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Nov 27, 2020 10:22PM MinusTwo wrote:

The link below is truly a great site for info about Lymphadema. I don't believe anyone has posted it on this thread yet so I wanted to share. It has recommends by area to find someone who is certified & trained as an LEPT. Lots of good tips & answers.

https://www.stepup-speakout.org/


2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 28, 2020 07:16AM DogMomRunner wrote:

I had more than a couple removed but not (thankfully) as many as other here. It's been a year and a half since lumpectomy and SNB. I still have numbness in that armpit - definitely the wad of paper money feeling. I will say that I made a mistake of compensating for my BC arm by overdoing it with the other arm and ended up with a frozen shoulder (on the good arm) possibly due to mild rotator cuff tear. Still don't have a good ROM with that arm.

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Nov 30, 2020 10:00PM LillyIsHere wrote:

I had BMX and 5 nodes removed from the cancer side. The first 5-6 months after BMX I had shoulder pain. I was told that during the surgery, the surgeon rotates the shoulder and that may have caused the pain. The left-arm where nodes are removed seems healthier and stronger than the right arm. I use it to open the jars even though I am not a lefty :)

Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/30/2019 Femara (letrozole)
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Nov 30, 2020 11:26PM buttonsmachine wrote:

Totally agree with many others experiences here. For my first BC surgery I had a lumpectomy and two sentinel nodes removed. I got cording and breast lymphedema, and my body was never really quite the same. Although a SNLB might be better than an ALND, I think the impact of a SLNB is still underestimated by many people in the medical community.

I really hope that one day it will be feasible to leave all healthy lymph nodes alone. I remember seeing at least one clinical trial where lymph nodes were looked at with an MRI or other imaging, rather than a biopsy. Radiation can clean up micrometastasis in many instances, and has a lower risk of lymphedema than removing entire nodes. Anyway, I do not know the outcomes of those trials, but I definitely think this is an area that needs improvement.

Diagnosed at 32. Local recurrences one year later. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 4/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 12/1/2017 AC Surgery 4/1/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 5/1/2018 External: Lymph nodes, Chest wall Chemotherapy 7/1/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib)
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Dec 1, 2020 10:32PM - edited Dec 1, 2020 10:33PM by Askmissa

I had BMX and two nodes removed. I had no issues because my surgeon got the nodes from the incision under my breasts. No extra incision was made.

If anyone reading this hasn't had surgery yet, please ask about this.

Also my implants were Prepectoral so my muscles weren't affected, and went immediately to implants.

Dx 6/17/2019, IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- (FISH) Surgery 8/19/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant

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