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All TopicsForum: Comments, Suggestions, Feature Requests → Topic: Are You Aware of/Concerned about proposed BCO thread changes?

Topic: Are You Aware of/Concerned about proposed BCO thread changes?

Forum: Comments, Suggestions, Feature Requests — Request new or improved features, report bugs, & view upcoming changes.

Posted on: Jan 25, 2018 08:53PM

ceanna wrote:

Are you aware that BCO is working on changes to the discussion threads and content pages? If you would like to see BCO's new goals for this website, please use the following link Provide feedback/advice about our site and campaigns?! and move to page 3 and scroll halfway down to the moderator posting of January 22, 2018.

Many of us are providing our input and expressing concerns about how our personal postings may be used, how BCO will target and track our use, and asking why BCO is spending over $2 million on these changes. After reading the goals, please read the comments we have made so far. The more members who comment, the more we hope BCO listens. Please share this posting on threads you frequent and invite others to join in the discussion.

Please join us by posting your comments on that thread. Provide feedback/advice about our site and campaigns?!

Thank you.

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Posts 1 - 16 (16 total)

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Jan 26, 2018 11:09AM - edited Jan 26, 2018 11:09AM by Spookiesmom

bump.

Dx IDC, Stage IIIA, Grade 3
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Jan 26, 2018 12:27PM M0mmyof2 wrote:

Just commented. I do hope they listen to us.

If you value your freedom, thank a servicemember both serving and retired!
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Jan 26, 2018 02:18PM FelineMum wrote:

Is there a summary of the proposed changes anywhere? By reading, all I can tell is they're considering a "like" button. Is this now Facebook? I loathe that site for many reasons, including the popularity contest on posts.

I echo others when I say: If it ain't broke, don't fix it.

Dx 2/2017, IDC, Left, 6cm+, Stage IIIB, Grade 3, 1/3 nodes, ER-/PR-, HER2- (IHC) Chemotherapy 3/3/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 7/27/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 8/27/2017 Xeloda (capecitabine)
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Jan 26, 2018 04:25PM - edited Feb 16, 2018 01:26PM by BarredOwl

Hi FelineMum:

Per Ceanna's original post, the latest (rather broad and vague) explanation from the Moderators on Jan. 22, 2018 is on the third page of the linked thread and here's a direct link to the post:

https://community.breastcancer.org/forum/135/topics/860125?page=3#post_5132791

Please post any comments or ideas you may have in that thread for consolidation.

BarredOwl

[EDIT (2/26/2018): The above thread has been moved and my link has been rendered inoperable. For an active link to the current location, please see Beesie's post below of Feb 11, 2018 08:24AM]

Stage IA IDC, 9/2013 BMX. Right: IDC (1.5 mm, grade 2) with DCIS (5+ cm), 0/4 nodes, pN0. Left: DCIS (5+ cm), 0/1 node, pN0(i+).
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Jan 26, 2018 09:43PM 53nancy wrote:

I will be sorry to see this site go through such changes; it will have an impact on whether I continue to use it

Surgery 7/18/2017 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 8/16/2017, DCIS, Right, Stage 0, Grade 3, 0/0 nodes Dx 8/16/2017, IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (IHC) Radiation Therapy 11/20/2017 Whole-breast: Breast
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Jan 26, 2018 09:56PM mara51506 wrote:

I do not like the idea of the proposed changes. I do not like the idea of being shown only what the site "thinks" I want to see. Facebook does this and I cannot see all of my friends posts because they don't think I want to see them. It annoys me to no end. I have certain topics I am interested in AND I have been able to help people who are newer with my experience. By taking away MY choice of what I see, I may miss out. If I cannot see what is going on, I would lose the desire to use this site. Please reconsider.

The ads I can understand to pay for the administration of this site BUT I would hate to see ads for drugs etc or have ads all over the forums.


2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/22/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Jan 26, 2018 10:39PM MelissaDallas wrote:

It sounds more and more like everything will be divided up into separate "rooms." I hope not. There is too much overlap and we learn a lot from those who have different diagnoses than our own.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Jan 27, 2018 01:13PM Bluebird-DE wrote:

bump

commented

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/4/2017 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes Surgery Lumpectomy: Right; Lymph node removal: Left
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Jan 27, 2018 02:40PM Moderators wrote:

The changes will not separate anyone. Quite the opposite. We promise. We adore this community as much as you.

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jan 28, 2018 11:15PM ceanna wrote:

Bump

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Jan 29, 2018 08:56PM ceanna wrote:

Bump.

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Jan 30, 2018 06:28PM ceanna wrote:

Bump

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Feb 6, 2018 10:02PM helenlouise wrote:

I was wondering why there is so little traffic in the forums (compared to the activity in previous years). :

2013 DCIS treatment lumpectomy x2 plus radiation. 2018 new IDC treatment Neo adjuvant chemotherapy. Surgery July 18. Dx 1/2013, DCIS, Left, <1cm, Stage 0, Grade 3, ER+/PR+ Surgery 2/3/2013 Lumpectomy: Left Surgery 2/10/2013 Lumpectomy: Left Radiation Therapy 2/28/2013 Whole-breast: Breast Dx 2/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 8/1 nodes, ER-/PR-, HER2- Chemotherapy 2/25/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/23/2018 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 8/27/2018
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Feb 6, 2018 11:43PM Meow13 wrote:

I don't want to be divided. I find it so encouraging that stage 4 BC members are hanging in. I wouldn't want to be separated from any of my friends here.

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Feb 11, 2018 10:45AM Rhyfelwr wrote:

The links to the original mod posts are now broken. Does anyone know where they have been moved?

Rhyfelwr Dx 5/5/2017, IDC, Left, Stage IIA, Grade 2, 1/10 nodes, ER+/PR+, HER2- Chemotherapy 6/14/2017 AC + T (Taxol) Radiation Therapy 11/15/2017 Whole-breast: Breast, Lymph nodes
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Feb 11, 2018 11:24AM Beesie wrote:

The discussion thread was moved. It’s now actually in the same forum as this thread, right below on the list. Here is a link: https://community.breastcancer.org/forum/93/topics/860125?page=6#idx_171

Dx 9/15/05, DCIS-MI, 6cm+ Gr3 DCIS w/IDC microinvasion, Stage IA, 0/3 nodes, ER+/PR- “No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke

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