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Topic: Only able to send one private message a day?

Forum: Comments, Suggestions, Feature Requests —

Request new or improved features, report bugs, & view upcoming changes. Directly share constructive feedback at comments@breastcancer.org.

Posted on: Sep 16, 2020 12:08PM - edited Sep 16, 2020 12:09PM by Bellamom

Bellamom wrote:

just joined and someone friended me and we had a few conversations back and forth. We're both still waiting on results and extremely nervous. I fell terrible as I'm only to respond to her once a day. Is there a way to change that. I'm not looking to see cold and like I'm ignoring her. I figured we could both offer each other support while we are both anxious and extremely worried about our diagnosis.. anynhelp

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Sep 16, 2020 01:16PM MelissaDallas wrote:

No. There is not. Post your issues publicly on a thread. Perhaps experienced members here can allay your anxiety, rather than the two of you encouraging each other to be more anxious

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Sep 16, 2020 01:21PM Bellamom wrote:

there was for me. It says I’ve exceeded the amount allowed. Oh well. And yes I will post publicly as I get more info on my situation. Last night I sat and read 40mpages of posts related to my situation. Sounds crazy I know. But I wish I had some info prior to hearing my news. Now I know more and I’m thankful to this site for being a wealth of information.

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Sep 16, 2020 02:08PM MinusTwo wrote:

Bellamom - As Melissa said, the point of the BCO discussion boards is for everyone to share. If you are comfortable with a particular person, you can always exchange private email addresses outside of BCO and talk that way. I've been on here a LONG time. I have personally met 8 or 10 people and do have some private email contacts. Once in a while I do PM, however I usually just post at large since someone else is sure to have the same problem or issue or fear or diagnosis. Good luck

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 16, 2020 02:19PM Bellamom wrote:

thank you so much. Best of luck to you as well.

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Sep 21, 2020 11:56AM Stacey48 wrote:

Hello. I just found this site while I was trying to figure out my current health issues. I was diagnosed with BC & positive lymph nodes in 2009. Had right side lumpectomy, nodes removed, 6 rounds of chemo, 12 weeks radiation M-F, 1 full year Herceptin, 5 years tamoxifen, 5 more years Anastrozole which I finished several months ago. All I can remember the doctor telling me was that it was the most aggressive type and aggressive therapy was required. I was 36 yrs old at the time, single mother of 2 awesome girls, worked my tail off all my life. I now realize I was exposed to several risky jobs where I was exposed to various chemical & microorganisms I did not have a real support system, no family or real friends. So I just did what I was told My health is declining fast. I have so many questions Can anyone relate & help me find the answers PLEASE THANKYO

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Sep 21, 2020 12:01PM Bellamom wrote:

I just wanted to say I’m sorry to hear this. I hope others can help you. I’m not sure what declining health issues you have and don’t know how much help,I can be but I’m willing to try.im also praying for you and your girls. You’ve gone through a lot and you r strong. 🙏🏻🙏🏻🙏🏻 Positive healing thoughts




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Sep 21, 2020 12:34PM Stacey48 wrote:

Thank you! From this site, I was lead to a site called Citizens Project . Org. Is that legit? I’m desperate & I just send a pic of my drivers license & signed for release of my medical info. Something I would normally be cautious & afraid to do but I’m desperately in need of answers

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Sep 21, 2020 12:38PM Bellamom wrote:

I don’t know what that is. But I would start with a local specialist .

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Sep 21, 2020 01:48PM Beesie wrote:

Stacey, you've raised an issue that is completely different than the topic of this thread. The members here who are in a position to answer your questions won't see your post here. So rather than respond here, I'll suggest that you start a new thread of your own, on your own topic. Since you had an HER2+ cancer, I'd suggest that forum. You can find it here: https://community.breastcancer.org/forum/80

Near the top of the page in the HER2+ forum, you'll see a red box that says "Start a new Topic". Click that box to start your own thread. You can take your post here and copy and paste it right into the new thread, so that you don't have to rewrite it all. You'll get a lot more relevant answers to your questions if you post it in a thread where those with similar diagnoses can see it. I know that a lot of people who read the HER2+ forum can offer important and meaningful advice about your diagnosis and the treatment you had.



“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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Sep 21, 2020 02:21PM Moderators wrote:

Dear Stacey48,

As you can see here there are members who are willing to help you but this is not the best thread to post your questions. We sent you a private message with more information and you can follow the suggestions here on this thread. We are not familiar with Citizens Project nor what its purpose is nor what it has to do with breast cancer. Please pm us with your concerns so we can best direct you.

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...

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