Nov 30, 2012 09:02AM awb wrote:
Shelton-----I was diagnosed with LCIS (also by a biopsy for microcals) over 9 years ago and my risk is further elevated by family history of bc (mom had ILC). I had a lumpectomy (which confirmed the LCIS and fortunately no invasive bc was found), took tamoxifen for 5 years, and now take evista for further prevention; I also continue with high risk surveillance of alternating mammos and MRIs every 6 months with breast exams on the opposite 6 months. (one done by gyn, one done by oncologist). Your doctors are correct---LCIS is stage 0, in-situ non-invasive bc (cancer cells contained in the lobules that have not spread into the surrounding breast tissue); it does have the potential to become invasive, but this is very very low; my breast surgeon quoted < 5%. so since the potential to become invasive is so low, most look at it as more of a marker for high risk rather than a "true" cancer. It is also true that it most often is found to be a bilateral disease, also multicentric and multifocal (if you have it in one breast, most likely you have it in the other one and it can be widespread).
What exactly do the 2 breast surgeons disagree with regarding your radiology report? Mine was classified as BIRADS 5 and they used the wording "malignant" in my pathology report to describe what they saw. Even with my family history, all my docs felt PBMs too drastic, but I think what it basically comes down to is personal choice----you have to decide what is best for your particular situation (hopefully with the help of your medical team)---monitoring closely (with or without preventative meds) or bilat mastectomies. every choice has it's own pros and cons and it's own SEs and consequences for your life. For me, my choice to do surveillance and preventative meds was and continues to be the right choice for me, but I am always open to reconsider PBMs if anything more were to be detected. Fortunately, I have not needed to have any further biopsies or lumpectomies in all these years.
feel free to PM me if you'd like.