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Oct 23, 2007 06:00PM
You didn't have chemo or rads b/c they are not effective against LCIS. LCIS is considered a marker for cancer, not an in situ cancer like DCIS. It's interesting that your onc called it Stage 0 cancer, b/c most oncs don't call it that. Even for DCIS, they don't give chemo. I'm not sure about rads for DCIS.
However, I have pleomorphic LCIS and had a 2.7 cm pleomorphic ILC tumor removed as well. The ILC was surrounded by the LCIS, so as far as I can tell, the ILC evolved from the LCIS. Which would blow the "just a marker" theory of LCIS.
There is a small chance of still getting invasive cancer after a double mast b/c there is always some breast tissue left over. However, since you didn't have invasive cancer to begin with, like I said before, chemo/rads at this point would have no effect.
Stage IV Pleomorphic ILC, initially diagnosed at age 38
6/7/2007, ILC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH)
7/19/2007 Lumpectomy: Left; Lymph node removal: Sentinel
12/27/2007 Whole-breast: Breast, Chest wall
3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
4/24/2015, ILC, Left, 1cm, Stage IV, metastasized to other, Grade 2, 0/10 nodes, ER+/PR+
5/15/2015 Mastectomy; Reconstruction (left): Latissimus dorsi flap
2/1/2018, ILC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER+/PR+
2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel)
6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 3, ER+/PR+
7/1/2018 Ibrance (palbociclib)
7/17/2020, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 2, ER+/PR+, HER2- (FISH)
7/17/2020 Xeloda (capecitabine)
Faslodex (fulvestrant), Zoladex (goserelin)