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Topic: newly diagnosed

Forum: LCIS (Lobular Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for LCIS.

Posted on: Jan 29, 2008 07:20PM

weeksend wrote:

Hi, I'm writing this for a friend whose daughter just had surgery for LCIS. They just got the report back that there were a few small cells inside the tumor that were invasive. The Dr. said he had never seen this before. Is anyone familiar with this? They want to do a series of radiation treatments.

Thank you for any information, My friends wife just passed away recently from Her2 breast cancer and you can imagine how he is handling this.

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Jan 29, 2008 07:43PM awb wrote:

 I'm so sorry to hear about the death of your friend's wife.  This has got to be especially difficult for him now.

LCIS is often found  along with an invasive bc; it is very unusual to find it by itself (I was very fortunate, no invasive bc with my LCIS). The radiation that they are recommending is targeted at the invasive bc, not the LCIS. (LCIS is non-invasive and does not require chemo or rads).  They may recommend a hormonal therapy afterwards as well.

"I don't know what the future holds, but I know who holds the future" Dx 9/5/2003, LCIS, Stage 0, 0/0 nodes Surgery 9/15/2003 Lumpectomy: Right Hormonal Therapy 10/29/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/4/2005 Prophylactic ovary removal Hormonal Therapy 2/27/2009 Evista (raloxifene)
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Jan 29, 2008 08:54PM weeksend wrote:

Thanks, awb

So you are saying that it is unusual to find LCIS alone? It usually comes with some invasive cells?? They have recommended hormonal therapy also. It was a very small tumor they just happen to find when she had an emergency appendectomy. I think they found it when they did a scan.

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Jan 30, 2008 05:19PM Peaches70 wrote:

LCIS is not usually detected as a tumor. It is not felt by exam or seen on mammograms or MRIs. It is found serendipitously when a biopsy is performed for some reason. In many cases, the biopsy is called for after a pattern of microcalcifications is spotted. So, not finding LCIS alone is more because when they go looking for what caused the microcalcifications (or perhaps an actual lump that has been detected) they find LCIS as well. In my case, as in awb's, when they did the biopsy, they did not find any invasive cancer. I suspect that your friend's daughter's lump was the invasive cancer. That would make more sense.

Anne

Dx 1/25/2007, LCIS, Stage 0
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Jan 30, 2008 06:01PM - edited Jan 30, 2008 06:42PM by weeksend

It is very confusing reading about this cancer. One website said LCIS isn't always breast cancer. She has Lobular In Situ. The biopsy was cancer. She had a lumpectomy 3 weeks ago. When the biopsy of the lump came back they found a few invasive cells inside. So can this be both or that means hers was invasive??? Her Dr. said he had not seen this before. They want her to do radiation and hormone therapy.

Whe she first had it done they told her she would not have any treatments at all. Now this.....

Thanks for any help...

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Jan 30, 2008 07:33PM awb wrote:

She has both--LCIS (non-invasive) and invasive cancer (either ILC or IDC)--this is not uncommon.  The treatment of radiation and hormonal therapy is targeted at the invasive bc.   Did they do a sentinel node biopsy?

"I don't know what the future holds, but I know who holds the future" Dx 9/5/2003, LCIS, Stage 0, 0/0 nodes Surgery 9/15/2003 Lumpectomy: Right Hormonal Therapy 10/29/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/4/2005 Prophylactic ovary removal Hormonal Therapy 2/27/2009 Evista (raloxifene)
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Jan 30, 2008 07:44PM weeksend wrote:

I was told that everything was clear. I have been reading through the postings and this is a very confusing condition. I'm copying some of it and giving it to her sister. From what I'm reading she has a lot to consider.

Thanks

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Feb 6, 2008 07:33PM msphil wrote:

He is inmy  prayers, but tell her to stay POSITIVE and always have HOPE, it got me through all my treatments, and I,m now 14 yrs cancer free, PRAY, It got me through.msphil 

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