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Topic: LCIS

Forum: LCIS (Lobular Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for LCIS.

Posted on: Feb 13, 2008 03:37PM

holly123 wrote:

Hi I am 41 and a newly LCIS/ADH diagnosis.  To get to this point, (less than 9 months) I have had 1 mamo/sono, 3 MRI's, 1 MRI guided biopsy and the last wire MRI wire guided excision biopsy to get to where I am now.  Oncologist gave me the three standard options.  I have no close family history, so I chose the tamoxifen and will be monitored every 3 months with the MRI's and mamos.  I have been having mamo's for 5 years prior and it always showed a dense area, probably benign.  But finally last year my gyn suggested a MRI.  That's how all of this came about.  Am I looking at years of all this testing and and more biopsy's to come? 

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Feb 13, 2008 06:36PM awb wrote:

holly--yes and no.    I was diagnosed with LCIS about 4.5 years ago, had lumpectomy, take tamoxifen for prevention and am closely monitored by mammos alternating every 6 months with MRIs. But I haven't  had any more biopsies than the initial stereotactic and subsequent wide excisional biopsy (lumpectomy) to confirm  the diagnosis of LCIS. So, yes, you will need close monitoring, but no, you will not necessarily need frequent biopsies.
 Please feel free to PM me if you have any questions or want to talk.

Anne 

"I don't know what the future holds, but I know who holds the future" Dx 9/5/2003, LCIS, Stage 0, 0/0 nodes Surgery 9/15/2003 Lumpectomy: Right Hormonal Therapy 10/29/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/4/2005 Prophylactic ovary removal Hormonal Therapy 2/27/2009 Evista (raloxifene)
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Feb 13, 2008 06:51PM csifinski wrote:

Hi, I am 42 and was diagnosed with LCIS/ADH as well.  

My oncologist hinted to me that I may want to have a bilat mast.  I have had 3 biopsies and 1 lumpectomy already.  I have a follow up appointment with the oncologist in two weeks, he wanted to speak to the pathologist before recommending any drug treatment plan.   I am scheduled for an MRI in april and strongly thinking about genetic testing (not sure insurance will cover).  So basically I feel like I am in limbo just not knowing what is the best course of action.  As close monitoring for me has let to many biopsies and a lumpectomy.

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Feb 14, 2008 06:20AM Peaches70 wrote:

Maybe. I'm nearly one year out from my dx with LCIS (ALH the year before). Started Evista in April. I am on a 6 month schedule for mammo/MRI and had to have a biopsy last August (B9, thank goodness). So, just going on tamoxifen may not end the cycle, but it might.

Anne

Dx 1/25/2007, LCIS, Stage 0

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