Join Us

We are 225,737 members in 83 forums discussing 164,196 topics.

Help with Abbreviations

Topic: Suggestions for 2nd opinion on LCIS pathology?

Forum: LCIS (Lobular Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for LCIS.

Posted on: Oct 15, 2015 06:41PM

Zero7 wrote:

Been lurking for a few weeks, just got pathology report from excisional bx. Basically says "extensive LCIS". I would like to get more detail, such as histology, and 2nd opinion from large cancer center (U.S.) I've seen Johns Hopkins, Vanderbilt and Cleveland Clinic mentioned in some posts..anyone have any further input for me on this? Thank you to all who post on this site, I have learned SO much in a very short period of time. Very grateful I found this site.

Log in to post a reply

Page 1 of 1 (6 results)

Posts 1 - 6 (6 total)

Log in to post a reply

Oct 15, 2015 07:20PM MelissaDallas wrote:

Memorial Sloane Kettering. Any NCI designated cancer center, which are frequently university hospitals

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
Log in to post a reply

Oct 16, 2015 11:07AM leaf wrote:

I think it would be very valuable to know if you have some sort of classic LCIS or if you have a 'variant' form like PLCIS. Yes, I know the terminology can be awful, and at least when I was diagnosed with LCIS 10 years ago, different websites (from major universities) defined LCIS differently.

Here's a more recent (2012) description of LCIS types from UCSF. http://www.ucsfcme.com/2012/slides/MAP1201A/18YiCh...

I hope that as time has gone by that more pathologists agree on a definition of LCIS and its types, but I can't guarantee it. My 2nd opinion on pathology at an NCI-designated center was about 10 words long; my original pathology report was much more descriptive. The only change that my NCI-designated center did was change 'LCIS with features of ALH' to 'LCIS with ALH'.

Best wishes, Leaf

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Oct 16, 2015 11:50AM sandcastle wrote:

Dana Farber and MD Anderson.....Liz

Surgery 12/8/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx DCIS, Stage 0, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Log in to post a reply

Oct 16, 2015 05:30PM Zero7 wrote:

Leaf, that's what I was trying to avoid, a second opinion that just says "lcis". Would really like to know type...

Liz, did you get an opinion from Dana Farber or MD Anderson and if so, did it have detail on type?

Log in to post a reply

Oct 17, 2015 04:23AM sandcastle wrote:

No....I did not....but have a friend that traveled from the Jersey Shore to Dana Farber.......in fact she got the same answer as down here....she thought it would take her a different route...but not.......or should I say she wanted to hear different.....Liz

Surgery 12/8/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx DCIS, Stage 0, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Log in to post a reply

Oct 17, 2015 05:48AM dtad wrote:

Zero7 I would get to a university based teaching hospital for a second opinion. Good luck. Keep us posted.....

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant

Page 1 of 1 (6 results)