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Jun 22, 2017 03:41PM
I have not, but if the pathologist found ONLY spots of CLASSIC LCIS and/or ALH in your lumpectomy specimens, AND there are no other 'suspicious' spots on your mammogram/MRI/ultrasound, then I don't understand why (s)he wants to re-excise. Why? Because most classic LCIS is multifocal (meaning it occurs in more than 1 spot in a breast) and much is bilateral (meaning it occurs in both breasts). They know this because prior to about 1990, they routinely did bilateral mastectomies on LCIS women, and they could look at the mastectomy specimens. (They didn't discover pleomorphic LCIS until roughly the late 1990s.) Most lumpectomies remove enough tissue to make a good specimen that the pathologist can read more easily.
So, most classic LCIS (and nothing worse - in other words no pleomorphic LCIS, no DCIS and no invasive breast cancer) women have multiple spots of LCIS. The only way you can RELIABLY diagnose LCIS is by looking at a tissue specimen under the microscope. Much/most LCIS is diagnosed as an incidental finding when they find some suspicious finding on mammograms/ultrasound/MRI. Some/most LCIS is found not AT the suspicious spot, but adjacent to it. So you cannot reliably remove 'all the LCIS' in a woman, because you can't tell where the LCIS is without removing the tissue and looking at it under the microscope. Even if you have bilateral mastectomies, there is still some breast tissue left behind.
If an LCIS woman later gets invasive breast cancer, this invasive breast cancer often is found in a place in the breast that looked totally normal under imaging (mammogram/ultrasound/MRI). So you can't reliably tell what tissue is LCIS without removing it.
If you ONLY had a core biopsy, then they often do re-excise the area to be more sure that there is nothing worse than LCIS in the area. Because the sample is much smaller, the friction of the core biopsy needle can distort the tissue, making it more difficult to accurately diagnose the tissue.
When a core biopsy shows classic LCIS (and nothing worse such as pleomorphic LCIS, DCIS or invasive breast cancer), then they often excise the area. They do that because they want to be more sure there is nothing worse going on in the area. Its not to remove the classic LCIS, but to make sure there isn't pleomorphic LCIS, DCIS, or invasive breast cancer in the area nearby. Roughly 20% of the LCIS core biopsies are upgraded to something else such as DCIS or invasive breast cancer.
Best wishes that you have 'nothing worse' than classic LCIS.
Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov
12/8/2005, LCIS, ER+/PR-
1/24/2006 Lumpectomy: Left
7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)