We are 194,983 members in 81 forums discussing 144,109 topics.

Help with Abbreviations

All TopicsForum: LCIS (Lobular Carcinoma In Situ) → Topic: I won a breast MRI biopsy!

Topic: I won a breast MRI biopsy!

Forum: LCIS (Lobular Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for LCIS.

Posted on: Aug 12, 2017 02:26PM - edited Aug 12, 2017 02:43PM by leaf

leaf wrote:

About 7 years after ending my 5 year tamoxifen course, and a routine (now) annual breast MRI, I won a breast MRI biopsy for a

"BI-RADS Category 4: Suspicious. There is a 0.8 cm mass in the central to 6: 00 position of the right breast 4 cm from the nipple. This lesion demonstrates plateau kinetics....for which MRI guided biopsy is recommended. "

This is my first breast biopsy since 2007. Curiously, this is the opposite breast from all my other breast issues. I am curious why they call it a 'mass' since I can't feel any lumps, and nobody has given me a breast exam except me in the last year. A little surprising since more contralateral breast cancers in LCIS women are lobular, and this is described as a mass, which would be more characteristic of IDC ( or DCIS?) . Well, I'm glad its not a BIRADS 5. I sure hope this doesn't take 3 months to diagnose like my LCIS.

I'm definitely calmer than I was in 2005 when I was diagnosed with classic LCIS.

I sure don't like how Dr. Halls says "The tissue sampling or biopsy itself does not hurt, most are performed with local anesthesia so the biopsy shouldn't be at all painful."http://breast-cancer.ca/2d-biopsy/

I had a pain score of 9/10 (for bracketing, immediate pre-excision), and on my next breast biopsy, I pulled out of the clamped mammo machine due to fear and cried the whole way through it. I know this is NOT common; when I did a survey here, the average pain score (in 2006) was 5/10. I will be SURE to lather up with lidocaine jelly; if I can't get anything else, it will be Orajel.

Knowledge is power. I'll post how this turns out.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Page 1 of 1 (20 results)

Posts 1 - 20 (20 total)

Log in to post a reply

Aug 12, 2017 04:54PM Moderators wrote:

HI Leaf,

We're sorry to hear you're going through this scare. Please keep us posted on how everything goes!

Thinking of you,

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Aug 12, 2017 05:21PM MelissaDallas wrote:

I'm sorry. I know how anxious you must be. Will they be able to get you in soon to get the biopsy over with

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
Log in to post a reply

Aug 13, 2017 11:37AM - edited Aug 13, 2017 11:37AM by leaf

I don't know. It has to get an insurance OK first. I had my breast MRI last Fri am, the radiologist's report was written at about 3:30pm, and my provider's order was written before the end of the day, when they notified me, by logging into the secure site. I thought that was really fast. (Its sort of strange because my regular OB is on maternity leave, so she has a fill-in MD or NP who I haven't seen before writing the orders. I have my regular yearly appt with her (the fill-in MD) on Aug 23. So its rather strange to have all this stuff written by someone or multiple people (MD/NP) I haven't met.

Thank you for your kind wishes. I will keep people posted.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Aug 13, 2017 11:56AM MelissaDallas wrote:

Anne, one of the things I've learned from being here is that a diagnosis of cancer (or whatever) does not preclude future benign crappy BS findings. Maybe the antihormonal damped down the proliferative changes before. I hope that is the case for you. No experience of an MRI biopsy, so I'm no help there.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
Log in to post a reply

Aug 13, 2017 12:07PM leaf wrote:

Thank you for your kind wishes and thoughts, Melissa. I, too, am glad tamoxifen held it back for some 10+ years. (Anne is awb, and I'm glad she's not going through this.) While I have my employer's health insurance, I don't like going through this with all the national health insurance uncertainty currently. Glad I have decent health insurance right now.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Aug 13, 2017 06:41PM MelissaDallas wrote:

Sorry about mixing you up with AWB! My insurance is so bad right now I might as well not have any, and I am paying a fortune for it

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
Log in to post a reply

Aug 13, 2017 11:01PM - edited Aug 13, 2017 11:03PM by farmerlucy

leaf - Crossing my fingers and toes that it is benign. I hope you're doing ok. Ugh. Thanks for keeping us updated.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
Log in to post a reply

Aug 14, 2017 08:13AM leaf wrote:

Thanks so much, Melissa and Lucy! No worries, Melissa about the mixup. I hope none of you has to use their health insurance, and feel so awful for the entire current health insurance situation. I think health insurance is a very complex situation that needs a lot of thought and planning, and affects all of us. Its so sad that so many people want benefits, but don't want to pay for it. The whole idea of insurance is to even out the financial risk, and if you group the sicker (higher risk) people together without the balance of the healthier, the sicker people will have to pay more, either through higher premiums or reduced benefits. I will keep you posted.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Aug 15, 2017 02:00AM cyclegal wrote:

I don't know you, leaf, but I have appreciated the great information you have posted on the LCIS boards. I'm sending positive thoughts your way that this is just a blip. Best wishes :

Dx 2/2017, LCIS, Right Surgery 5/9/2017 Lumpectomy: Right Surgery 8/24/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Log in to post a reply

Aug 19, 2017 12:28PM beach2beach wrote:

I hope it turns out to be nothing Leaf.

As a note, I had a neg mammo/ and sono showed some tiny masses. Ones on one breast were benign. One on other was 7mm. Radiologist thought it was just my tissue, since she could smush it down with the sono handle. Very dense breasts. Winds up I had a biopsy and it was ILC. I had a mastectomy(my choice since I've had so many neg biopsies and I was tiny boobed that taking out tissue would leave me at an A- in a bra :) ) Pathology after showed LCIS , ILC with some tiny DCIS. Go figure since they say ILC runs flat and usually not papable and not seen until bigger. Maybe the tiny bit of DCIS made it lumpy. Who knows. Radiologist did say had I still been getting MRI's(my ins denied me after 3yrs of getting them for dense breasts and my sis having had bc at 48), they may have caught it even earlier.

You provide so much valuable information and insight, thank you, and I wish you the best on this outcome.

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Aug 19, 2017 02:27PM leaf wrote:

Thanks so much, cyclegal and beach2beach. Apparently it will take 2-3 weeks to get an answer about insurance approval, then, if approved, waiting for the appointment and sample processing and reading. So it hopefully will not take 3 months.

Thanks for sharing your experience, beach2beach. I've heard that 'breast cancer doesn't read the books we write about it'; in other words, breast cancer doesn't always follow the generalizations we make about it.

Thanks again, all of you, for your support. I'll post the results.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Sep 19, 2017 05:12PM leaf wrote:

Woohoo! Good news! Just more ALH bordering on LCIS, radial scar, etc. No invasive or in situ. (I already have known LCIS and ALH in the other breast.)

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Sep 19, 2017 05:17PM MTwoman wrote:

That is great news Leaf! Am so glad you didn't get any bad surprises!!

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
Log in to post a reply

Sep 19, 2017 05:44PM leaf wrote:

Thanks so much MTwoman! Thank you for helping the newbies learn about their situations. It sounds like you have a lot of good sense (which unfortunately isn't common.)

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Sep 19, 2017 05:50PM MTwoman wrote:

Hug

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
Log in to post a reply

Sep 19, 2017 07:13PM MelissaDallas wrote:

So glad for you Leaf

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
Log in to post a reply

Sep 19, 2017 10:28PM farmerlucy wrote:

Yay - great news!

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
Log in to post a reply

Sep 19, 2017 11:55PM - edited Sep 19, 2017 11:56PM by leaf

Thank you so much! But, its not over until its over. My GYN wants to send the report to my breast surgeon, which means I MIGHT need a surgical excision.

I'm trying to get her to send it to a DIFFERENT breast surgeon, because my original breast surgeon was great technically, but clinically was awful. (My BS said 'if you want bilateral mastectomies I will fall down in my chair - this was BEFORE she said Hello, or if I had any family history. Then, post-breast excision, after I described my horrendous wire insertion (by a different doc), this BS said 'If you have an awful time again, tell the CEO.' I just wanted her to say 'I'm sorry this happened to you.' (Takes 2 seconds.) This wire insertion was a 9/10 pain score procedure (it wasn't a 10/10 because I'm sure it would have been worse if they tore off my arm), they said I couldn't move, if I cried I would have moved, I ended up cringing EVERY time a doctor walked into the exam room, and pulled out of my next mammo-guided breast biopsy, etc.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Sep 20, 2017 12:44AM cyclegal wrote:

Great news, leaf!!!! So happy for you :)

Dx 2/2017, LCIS, Right Surgery 5/9/2017 Lumpectomy: Right Surgery 8/24/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Log in to post a reply

Sep 22, 2017 12:54PM leaf wrote:

Thank you, cyclegal. My appt with my preferred surgeon is Nov 20 (this is just the office appt, not an appt for an excision), so I will update in the future, when this thread is probably buried. Thank you all for your best wishes!

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Page 1 of 1 (20 results)