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Jan 16, 2018 01:47AM
One thing you should consider _if_ you decide to switch is whether/how much your insurance will cover if you go to non-network doctors/hospitals. I have gotten non-breast care at UCSF, and I did have to pay out of pocket for lab work. Obviously, different insurance plans differ.
(BTW, PLCIS patients can also get subsequent IDC or DCIS. https://www.ncbi.nlm.nih.gov/pubmed/28612228 Obviously these are incredibly tiny numbers, and it is unknown if the PLCIS was a precursor to the subsequent breast cancers. For plain classic LCIS, some subsequent breast cancers were genetically related to the previous LCIS, whereas in other cases, other breast cancers were genetically UNrealted to the subsequent breast cancer. So, at least some of the time, we don't know how LCIS puts you at higher risk of subsequent breast cancer.)
You may want to read this https://www.nytimes.com/2015/09/29/health/a-breast... I think Dr. Esserman's philosophy is that many breast cancers that are detected would never be life-threatening anyway.
I decided to be part of the Wisdom mammogram study, which is run (at least in part) by Dr. Esserman. (Not sure about my wisdom about this.) Of course, I do _NOT_ have PLCIS; I have classic LCIS. I do have an unusual breast /ovarian cancer mutation, but its not BRCA, but its in the BRCA pathway. (The breast cancer risk for this gene is NOT as high as for a BRCA gene mutation.) I was assigned to the 'individualized' group, so was assigned to the 'mammograms every other year' group. I'm not real excited about this assignment, but know that I will probably get yearly breast MRIs, since the Wisdom study is for mammograms only. But since PLCIS is controversially sometimes treated like DCIS, if you go with Dr. Esserman, you may want to be prepared for less screening than you expect (unless you find you have invasive or opt for bilateral mastectomies.)
They don't do much long-term studies on LCIS because its very difficult to study. That may go double with PLCIS because its even more uncommon than classic LCIS.
Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov
12/8/2005, LCIS, ER+/PR-
1/24/2006 Lumpectomy: Left
7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)