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Topic: PLCIS Question: What was your treatment?

Forum: LCIS (Lobular Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for LCIS.

Posted on: Nov 17, 2018 08:57AM

KMo1975 wrote:

Hi All,

If you PLCIS was discovered after biopsy or lumpectomy, how was it handled? Further excision for clear margins of 2mm? Lumpectomy? Surveillance? BMX?

Thanks,

Kim

Pleomorphic ILC and Pleomorphic Lobular Carcinoma In Situ 4.5 cm Dx 12/1/2017, ILC, Right, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/31/2018 Arimidex (anastrozole) Surgery 9/23/2018 Lumpectomy; Lymph node removal: Sentinel Surgery 12/19/2018 Lumpectomy: Right Radiation Therapy 3/4/2019 Whole-breast: Breast
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Nov 21, 2018 07:00PM AMLMom wrote:

I’d be interesting in hearing as well.

Thx

Dx 11/2018, DCIS/IDC, Left, 6cm+, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 2/13/2019 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Nov 25, 2018 03:37PM Michi wrote:

so I had what was debated LCIS/PLCIS. I still don’t have a clear answer because pathologist could not agree (at two major cancer centers). We know the cells looked larger and more irregular than LCIS, but not quite PLCIS. Knowing the stats being 50% chance of invasive with PLCIS, and given my age, only 35, I opted For a double mastectomy and just had my reconstruction in September. I have been thrilled thus far and took my chances down 1%. Every course of action is highly personal so it all comes down to what you are comfortable with, But with PLCIS the standard course of action would certainly include radiation and drugs

Dx 4/12/2018, LCIS, Right, <1cm Surgery 5/21/2018 Prophylactic mastectomy: Left, Right; Reconstruction (left): Fat grafting, Silicone implant, Tissue expander placement; Reconstruction (right): Fat grafting, Silicone implant, Tissue expander placement
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Apr 27, 2019 02:33PM Crescent5 wrote:

wow plcis is so rare. Mine was discovered after a surgical biopsy and that put me over the edge. I just did not like 'aggressive." I opted for a PBM which I know is extreme, but they ended up finding invasive. So my instincts were right.

I don't know if 8 years later (I cannot believe it's been that long!) there's more info on plcis than what I had to go on, but in my gut, I just did not like pleomorphic. I took a year to be sure of my decision, and I'm comfortable with it.

Good luck. It's deeply personal and there's no right or wrong. It's your choice and yours alone

Dx: ALH, LCIS 10/10, PLCIS 11/10 ~ PBM 1/13/12 ILC 4mm & 7mm found post MX Stage 1 Grade 2 ER/PR+ HER2- 0/9 nodes Oncotype Score = 6, Tamoxifen 4/12 ~I want this sh*t to leave me alone Dx 1/13/2012, ILC, <1cm, Stage IB, Grade 2, 0/9 nodes, ER+/PR+, HER2-

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