Feb 16, 2019 01:36PM - edited Feb 16, 2019 01:39PM by leaf
Do tell the people that you had a horrible time with the last mammo and/or biopsy. (I did too. At the next mammogram-guided biopsy, I instinctively pulled out of the squishing panels, which I assure you hurt a LOT.) My big problem is that I did not communicate well enough about the pain I was in. If you suspect you may not be able to speak when you are in pain (like what happened to me), then set up some non-verbal system such as a rattle or bell or something, and explain to them what that means beforehand, so you can communicate to them when you are in pain. (I had some early childhood trauma.) For me, they told me I shouldn't 'move a muscle' during the procedure. I knew if I talked to them I would cry, and if I cried I would move, so they wouldn't be able to find the correct spot.
You may also consider applying some lidocaine used for teething babies (such as Orajel (R) or generic ), and although it may be messy, at least the outside of your breast may be more numb. Wipe it off just before your procedure.
The next time they gave me more injectable lidocaine (or another local anesthetic), and it was MUCH better.
Unfortunately, there is an ongoing shortage/difficulty getting a supply of injectable lidocaine and other injectable local anesthetics. (I work in a hospital pharmacy.) I have heard that some places have refused to do some procedures because they can't get enough of a supply of lidocaine. But I was prepared to tell them that if I was in utter pain DURING the procedure, and if I communicated this to them, AND my pain wasn't addressed during the procedure, to a tolerable level, I was going to walk out of there. I didn't have to do this. They were able to give me enough lidocaine so it was a tolerable procedure.
P.S. They usually don't treat classic LCIS with radiation. Maybe you have other diagnoses too?