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Topic: Mastectomy

Forum: LCIS (Lobular Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for LCIS.

Posted on: Jun 12, 2019 09:11AM

SueHallifax wrote:

I have been diagnosed with LCIS and am having another vacuum assisted biopsy tomorrow.

I do not want to watch and wait like a ticking time bomb.

I am 50 years old

And want a double mastectomy for my own mental and physical health

Should I be allowed this choice

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Jun 12, 2019 12:52PM Moderators wrote:

SueHallifax, we are sorry you find yourself here. You and your treatment team should be able to have a conversation about this after they know all the information. Here is a page that could be helpful to you: One in Six Women Choose Double Mastectomy. You may also want to talk with your team about genetic testing. Take a look here as well, if you think it could be helpful: Prophylactic mastectomy.

Hang in there, and you'll hear from others.


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Jun 12, 2019 04:28PM jessie123 wrote:

My LCIS was found during my lumpectomy for Lobular carcinoma, but I'm not having a BMX. I may have LCIS all through both breast, but I think with the close monitoring I'll receive they will catch any invasive early. May never happen, but if it does I'll do the BMX. Guess you should ask your insurance company if you can have the double Mx.

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/15/2019 Whole-breast: Breast
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Jun 12, 2019 10:54PM Meow13 wrote:

It is important to understand a bmx is no guarantee you won't get a recurrence either locally or distant. I had 2 tumors one ILC and one IDC. There seems to be confusion on ILC in particular, data shows that roughly one third of lobular cancer are found in both breasts. Some seem to worry it will travel to the unaffected breast that is not true. I had a left side mx the right side shows no suspicious areas on mammogram or MRI. Textbook clean my mo was confident AI drugs would be good protection.

I certainly can understand wanting a bmx for LCIS and ILC since it may go by undetected.

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Jun 15, 2019 08:02PM Lea7777 wrote:

Hello SueHalifax,

An LCIS diagnosis can be very stressful. Do take some time to research your options. Perhaps get two opinions. You may wish to give the drugs a try and see how you do. Best wishes to you.

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