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Oct 4, 2019 12:06AM
Oct 4, 2019 12:08AM
Many things about LCIS are controversial, even now. So even if you get 2nd opinions, you may get different recommendations. But, certainly if you've had the area excised, there is no huge rush to make a decision as to what to do (unlike if you had to make treatment decisions if you were found to have invasive breast cancer.)
I was diagnosed with classic LCIS in one breast in 2005, and many years later, also in the other breast. (It is actually quite common to have LCIS in both breasts if you have it in one breast.) I also have an unusual gene defect (not BRCA1 or 2) several years ago. If you have a SEVERE family history of breast/ovarian cancer, then your treatment choices may be different than if you don't. Remember, even in the 'general population' of women, about 1 in 8 women get breast cancer in their lives, and most of these women are NOT thought to have genetic causes. I read of one woman on that posted that had every female but one in her, her mother's and her grandmother's generation got breast cancer, which ended up being some 10 cases. That is certainly a SEVERE family history.
Its hard to get great data on LCIS because LCIS is only diagnosed by pathologists, and it is often not detected on mammograms. LCIS is usually an incidental finding. Since you have to remove at least a sample of it to diagnose it, you can't watch an undisturbed area in a breast over decades and see if it becomes DCIS or invasive cancer. Of the people with LCIS that DO go on to get DCIS or invasive cancer, many times it is in an area of the breast that previously was thought to be benign. So LCIS is quite hard to study.
Probably most women who started out with LCIS (with nothing worse like DCIS or invasive cancer) and went on to get DCIS or invasive cancer are not following this LCIS forum closely. They would be following the DCIS or invasive cancer forums because those conditions are more serious. So the number of responses you get to your question will NOT answer your question 'How many people with LCIS go on to get DCIS or invasive breast cancer?'
So do your research, take your time, check both what we know and how you feel about each choice, before you make your decision. Only you can say what is the best choice for you. If you've done your research, then you should get support here for whatever your choice (perhaps with the exception of NEVER getting any screening or treatment for the rest of your life.)
Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov
12/8/2005, LCIS, ER+/PR-
1/24/2006 Lumpectomy: Left
7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)