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Topic: Gynecologist tried to convince me I have breast cancer

Forum: LCIS (Lobular Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for LCIS.

Posted on: Mar 5, 2020 08:51AM - edited Mar 5, 2020 08:53AM by Lea7777

Lea7777 wrote:

I just saw a new gynecologist, recommended by a friend, who reviewed my health history and asked me about my "breast cancer." I informed her I have never had breast cancer, just Lobular Carcinoma in Situ (LCIS) and other atypia. I thought perhaps the wrong box had been checked on my chart.

The gynecologist proceeded to tell me LCIS was indeed very early stage cancer. I protested her conclusion and stated I was exceptionally well researched on this topic and that LCIS was atypical hyperplasia; it is not cancer but I acknowledged it increased my risk for breast cancer. The gyno persisted in a kindly manner with her cancer talk insisting I had breast cancer.

So I just dropped it. She is retiring soon anyway. (Meaning I'll be off to yet another gyno.) But the point is LCIS can confuse not only laypeople but the medical professionals we rely on to give us the correct info. I was a little shocked at this to be honest. And I was thinking that some poor woman who is very ill-informed might leave that gynecologist's office in a panic thinking she has had breast cancer all this time.

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Mar 5, 2020 09:27AM MelissaDallas wrote:

I wish everyone would jump on the "lobular neoplasia" bandwagon and stop using "LCIS." It would help people understand it a lot better.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Mar 5, 2020 11:10AM rtucker wrote:

Hi Lea,


That is crazy what you just experienced. That doctor only knows the bottom part of the woman’s anatomy. LCIS again which we all know is a risk factor and dcis is handled differently but is considered some what cancer because of radiation is considered. Thanks for sharing! Rtucker

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Mar 5, 2020 02:16PM leaf wrote:

Good golly, Lea! What a shocker! I'm so glad you are well researched.

One doc thought I was in De-Nile when I told him I had LCIS (and what LCIS stood for), but I forgave him since he was a neurologist. I tried to think of a kind way to tell him he was all wet.

Best wishes on finding a kind _and_ knowledgeable gyne.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 5, 2020 02:36PM BevJen wrote:

Lea,

You mentioned the magic words -- she is about to retire soon.

She is actually not incorrect. I was originally diagnosed with LCIS in 1990 or so. I actually went to G'town for a second opinion, and was told by a LEADING oncologist there -- you have breast cancer. In the 1990s, LCIS WAS considered BC by most practitioners in the US. At that time, I was actually told to have a bilateral mastectomy -- for LCIS -- by this oncologist at G'town who is still practicing and is well respected.

Of course, the opinion on this has changed, and now LCIS is seen as a marker for invasive breast cancer. And of course, your doc should not be clinging to this old information. But there you have it.

Dx 11/2003, ILC, Left, Stage IIIC, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+ Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 8/1/2019 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Chemotherapy TAC Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap
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Mar 13, 2020 02:40PM HelloItsMe789 wrote:

I was originally diagnosed with (P)LCIS and my gyn's office told me I'd have to have chemo or radiation after surgery.


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Mar 13, 2020 03:10PM AliceBastable wrote:

I've noticed in the news stories on FBabout Tom Hanks and Rita Wilson testing positive for the coronavirus that people in the comments say "OMG she had cancer and her system can't handle it!!!" Turns out she had LCIS several years ago, surgery, done. But part of the problem is she calls it cancer. When I corrected some people, I got called a heartless bitch for not getting all weepy for CANCER SURVIVOR WOMAN. Blech. 🙄

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Mar 13, 2020 03:13PM wallycat wrote:

Many women who have DCIS do bmx, so it doesn't surprise me that LCIS would garner the same possibilities.

Stage 0 or pre-cancer or ??? just too many names for things. How different is ADH from LCIS...even I'm not that well versed on this because the docs aren't on the same page.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 13, 2020 03:27PM - edited Mar 13, 2020 03:30PM by farmerlucy

re: Rita Wilson - Dr David Agus stated yesterday that both she and Tom were in a high risk for CV category. Even if she'd had invasive cancer I don't think that automatically throws her in the CV hi-risk pool unless she is currently doing chemo or immuno therapy but I don't know for sure. I certainly don't feel like that throws me into a high risk CV pool.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Mar 13, 2020 03:32PM - edited Mar 13, 2020 03:32PM by farmerlucy

My gyn said Tamoxifen increases your risk of endometrial cancer by 5%. That's not correct either.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Mar 13, 2020 03:39PM Beesie wrote:

I believe Rita Wilson is a couple of years out of treatment, so I was surprised to hear a news report that she is high risk. I wouldn't expect that to be the case for someone well past active treatment (endocrine therapy not counting as active treatment).

As for her diagnosis, she did have LCIS, and had high risk monitoring for years - and never went public about that. But then she was diagnosed with ILC, at which point she had a BMX and announced it publicly.

https://www.newsday.com/entertainment/celebrities/rita-wilson-undergoes-mastectomy-after-breast-cancer-diagnosis-1.10263025


“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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Mar 13, 2020 05:56PM AliceBastable wrote:

Hmm, when I googled her name, it only mentioned the LCIS.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Mar 13, 2020 06:14PM MelissaDallas wrote:

She did have ILC after being monitored for LCIS

https://www.survivornet.com/articles/academy-award-winner-tom-hanks-wife-rita-wilson-on-her-cancer-experience-options-for-stage-zero-breast-cancer/


LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Mar 13, 2020 07:40PM santabarbarian wrote:

She might have asthma, or something else that's a risk....

pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/10/2019 Whole-breast: Breast, Lymph nodes
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Mar 13, 2020 08:08PM - edited Mar 13, 2020 08:09PM by Beesie

The news report I heard specifically stated that Rita Wilson was high risk because she's had breast cancer. And Tom Hanks because he is diabetic. And both because they are older - both of them are 63. Just ancient.


“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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Mar 13, 2020 10:31PM AliceBastable wrote:

My gripe with the news report and the reactions to it was that too many people made it sound like they were frail old geezers with death's-door health conditions. People in ACTIVE treatment for cancer, or recovering from recent active treatment, are in a different category than people who HAD cancer at one time. And insulin-dependent diabetics with diabetic-related conditions are in a different category than people who pop a Metformin once a day but don't have to do anything else.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Mar 14, 2020 09:08AM Beesie wrote:

AliceBastable, I agree completely. I'm the same age as Rita and Tom. And I've had cancer. But I'm definitely not a frail old geezer. And neither are those two, based on their appearance and activity levels. I thought the news report was irresponsible. There are so many questions about coronavirus and who is at risk, and the report was raising concerns for a lot of people who probably have no reason to be concerned. They should have said nothing about Rita and Tom's cancer and diabetes presenting a higher risk, or they should have provided more detailed information to explain under what circumstances these conditions do increase risk, and when it would be of no concern or little concern.


“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke

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