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Topic: Tamoxifen

Forum: LCIS (Lobular Carcinoma In Situ) — Just diagnosed, in treatment, or finished treatment for LCIS.

Posted on: Nov 17, 2021 10:49PM

Sears123 wrote:

I could take tamoxifen for only two years. I developed uterine polyps and was advised to discontinue. Has anyone had this experience.

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Nov 18, 2021 10:52AM leaf wrote:

I finished tamoxifen for a total of 5 years, but I had uterine polyps multiple times. All were benign.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 18, 2021 11:21AM PamEP wrote:

What were your symptoms of uterine polyps and how long after starting tamoxifen did you get them? Did you take the full 20mg standard dose?

This is something that I am already worrying about having started taking tamoxifen. Thanks.

Dx 7/26/2021, IDC, Right, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 8/6/2021 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 10/15/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 10/27/2021 Whole-breast: Breast
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Nov 18, 2021 12:33PM - edited Nov 18, 2021 12:35PM by Sears123

My symptoms were light vaginal bleeding. Mine were benign but I was told to discontinue. I got them around the two year mark. Yes I was taking the full dose.

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Nov 18, 2021 12:57PM PamEP wrote:

Thanks, Sears. That is what my MO said to look out for, the spotting. He acted like it was no big deal (it may have just been his way of expressing himself), but endometrial polyps and uterine cancer are a big deal to me. I am going to ask my PCP is she recommends a pelvic ultrasound as a baseline. I already have a certain feeling in that area that I didn't have before the drug and haven't felt since menopause.

Dx 7/26/2021, IDC, Right, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 8/6/2021 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 10/15/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 10/27/2021 Whole-breast: Breast
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Nov 18, 2021 05:55PM Sears123 wrote:

You may not develop polyps. Not everyone does. It would probably be best to take it and see what happens. Another person answered here that she took it for the full five years even with the polyps. Your doctor will certainly advise you regarding the best way to go.

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Nov 19, 2021 01:31PM leaf wrote:

Yes, I took the full 20 mg dose. I also had uterine polyps _before_ I started tamoxifen. I had several pelvic ultrasounds. I got polyps (or at least a D+C for dysfunctional bleeding) about every 1.5 years. I went into menopause shortly after finishing tamoxifen, and had no uterine polyps after that.

We're all different.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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