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Jun 19, 2010 11:21AM
Jenn & in_cognito- my BS is who ordered the oncotype. I asked him about it and he said he does it for everyone ER/PR+ and lymph node -. I was glad he did it. He also would not send me to the oncologist without it. With my onc appt coming up on Tuesday, I thought I would call the BS and see if my results came back and the nurse said they did and my score was 16. I asked what that meant and she said she didn't know. She told me to ask the onc for a copy of the test when I go to onc. I too am scared that if I don't have chemo, I will be mad at myself later if it came back. I want to be as aggressive as possible.
in_cognito- Thanks for the info on necrosis. I wasn't really concerned with it until I had seen a couple people on here mention it as if it was something bad. I am glad to know what it is. Thanks.
Diane- first of all, the tape recorder thing made me laugh. I have owned my fair share of tape recorders, so that doesn't really mean we're old. I will say for my first BS appt the doctor gave me a tape of the appt and I had a hard time finding anyone with a tape player. I had to call my 72 year old uncle.....he seems to be the only person in my whole town that still owns a tape player..... Anyway, I had to drop out of the nursing program (one year of schooling left) once all this BC stuff happened and I can't miss any days, so I just want to know what is going on, so I can start again. I have been trying to stay busy and you are right that certainly helps. I am actually on here alot playing trivia games, etc.
Pam- I will ask for copies. If I have learned anything.....that is it. I am trying to keep copies of everything. My path report alone has told me more than any of the docs have told me.
Thanks again to everyone for your help. Take Care! Allison
4/9/2010, IDC, 2cm, Stage IB, Grade 3, 0/3 nodes, ER+/PR+, HER2-
5/20/2010 Mastectomy; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
6/22/2015, Left, Stage IV, Grade 3, ER+/PR+, HER2-
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)