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Topic: 2.1 cm swollen supraclavicular lymph node on left side

Forum: IDC (Invasive Ductal Carcinoma) — Just diagnosed, in treatment, or finished treatment for IDC.

Posted on: May 29, 2012 03:05PM

mrave0 wrote:

About 8 months ago my oncoligist found a 2.0 cm swollen supraclavicular lymph node on left side. He had a needle biopsy done and the results were negitive for cancer, also had a pet scan done which showed nothing. About two months ago he had an ultra sound of lymph node done again, this time 2.1 Cm. He acts very concerned and confused as to why it's still swollen and why the test showed nothing. He's ordered another pet scan, yet to be done. I was wondering has any body else had this and how concerned should I be? I've also been feeling poorly for the last few months.

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May 29, 2012 05:20PM , edited May 29, 2012 05:20PM by HealingDreams

I'm sorry you're not feeling well, mrave0. It sounds like your MO is keeping tabs on the node.

I can't speak personally to this issue and hope others will chime in about it.

Oncotype score: 8; 50 grays of radiation over 25 sessions Dx 4/23/2012, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 05/16/2012 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left) Hormonal Therapy 06/14/2012 Arimidex Radiation Therapy 06/19/2012 External
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May 30, 2012 11:19AM , edited May 30, 2012 11:20AM by Angelfalls

Hello Gwen,

I'm sorry you're worried and feeling poorly. I'm obviously not an expert, but a couple of things occur to me:

Firstly, my understanding is that lymph nodes can enlarge for all sorts of reasons, not just because of cancer, so it could be that you're fighting some low level virus or other illness which is making you feel ill and your lymph node is a result of that. Let's hope so!

Also, I had a CT scan in February which showed 3mm progression since December in an inoperable tumour I have behind the sternum. My onc told me that in terms of reading rads, 3mm is actually considered to be stable, so I'm not sure why your onc is so worried about 1mm.

The good thing is that your team are keeping a close eye on you and this lymph node, so can act quickly if needs be. Fingers crossed that this all has an innocent explanation, though. Take care xx

Dx 3/2003, IDC, 6cm+, Stage IIIa, Grade 3, ER+/PR+, HER2- Dx 10/5/2011, Stage IV, mets Dx 9/15/2006, 5cm, Stage IV Surgery 04/01/2003 Mastectomy (Right); Lymph Node Removal (Right); Reconstruction: Breast implants (permanent), Latissimus Dorsi flap (Right) Chemotherapy 04/30/2003 Cytoxan, Ellence, fluorouracil, Taxotere Radiation Therapy 11/15/2003 External Hormonal Therapy 01/05/2004 Tamoxifen Radiation Therapy 11/01/2006 External Surgery 01/31/2007 Prophylactic Ovary Removal (Both) Hormonal Therapy 02/28/2007 Arimidex Chemotherapy 01/05/2012 Xeloda Chemotherapy 03/20/2012 Taxol Hormonal Therapy 10/24/2012 Aromasin Targeted Therapy 05/07/2013 Afinitor Hormonal Therapy 01/07/2014 Femara Chemotherapy 01/31/2014 Navelbine
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May 31, 2012 05:20PM mrave0 wrote:

Thank you

Gwen Ravellette Dx 4/8/2007, IDC, 4cm, Stage IIb, Grade 2, 1/15 nodes, mets, ER+, HER2-
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May 31, 2012 05:21PM mrave0 wrote:

Thanks Angelfalls

Gwen Ravellette Dx 4/8/2007, IDC, 4cm, Stage IIb, Grade 2, 1/15 nodes, mets, ER+, HER2-
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Jun 30, 2012 09:10AM sweetbean wrote:

Mrave,

Have you been tested for mono?  You can get it more than once in your life (happened to my sister), it can hang on for months in adults because they generally aren't diagnosed until later, and it makes your lymph nodes swell.

Dx 11/18/2010, ILC, 5cm, Grade 2, 2/15 nodes, ER+/PR+, HER2+